side effects long term....

[Chrisann144]

hey everyone,
i posted a question to someones question my mind isnt functioning anyway so my bf is 16 weeks post tx and is still feeling the sides of peginterferon and riba!!!! he is very frustrated if he only knew....i know that the sides could take a long time to truly go away....his hepc came back with the first blood work after tx :( he isnt sure he will treat again it was a living hell to watch so i cant imagine what you all went thru God bless....any suggestions he still has low energy brain fog dizzyness just not feeling like himself but better than when he was on the meds!!!!
chris

[R Glass]

<<< Pretty much what Pam said. I know it is frustrating but it takes awhile to get over the tx for most people. We feel like we paid our dues and want our lives back. For some of us, the first few months were actually worse than the treatment. I’m sorry to hear the tx wasn’t a success. We are here for him and he needs time to recoup before he entertains the thought of re treating. Godspeed, Ricky

[paen53]

This may not be what you want to hear - and others may dispute it, but to have residual effects of the meds 16 weeks post is not that uncommon. And sadly, to add to that the reality of a relapse, some issues may be even more pronounced - depression anxiety, etc.

As Will mention, a thyroid check is important, even if at EOT it was normal. Mine didn't go hypo until about 6 months post and then was regulated with Synthroid. Some basic building blocks of a healthy lifestyle are important to mention - drinking enough water, a nourishing diet, exercise as tolerated - preferably outdoors. Finding a method of stress relief that works for him and along that line - getting enough rest.

There are no quick cures for detoxing from these potent meds, but a degree of patience helps - the ol', 'one day at a time approach'. I am just over one year post tx and do get frustrated at times with the slowness in rebounding but incrementally, I know I'm improving.

Stay strong, Pam

[willbb]

Just to add to what Desrt said..... make sure his thyroid has been checked also. often the meds can send it into hypothyroid  and that has a  whole host of symptoms.
Sorry to hear of the relapse...hope he considers giving it another go with the new meds  and that he starts to feel better as time goes on

Will.

[desrt]

1) Get your friend some sublingual B-12.

2) Do a Google search on the OTC supplement CoQ10 and the prescription form of vitamin B 'CerefolinNAC'.

3) Ignore the threads discussing amphetamine use as a way to deal with post treatment side effects.