stage 4 liver disease

[Wilko1956]

Hello out there! I’m 51 and was diagnosed with Hepatitis C just a few weeks ago. I had a biopsy last week. Today the doctor told me it is stage four liver disease. This is my first post so I would like to know from others what works and what is available to me. Again many thanks and hope to hear from you all. Best wishes-Willy

[needhelp38122]

really need  to know more about stage 4 and hep c dont know all the detils bt my mother was digonas as hep c and stage 4 of liver trouble dont know if she has cirrhoius or not, her liver enzimers where 19,000 just a month ago so i really need help on what is going on with my mom any help will be great and good luck and god bless all of u in this time of need

[Wilko1956]

LOL! Thanks for the info on the song! I'll have to get it!
I'm going to get a record of all tests and response to questions I ask my doctor.
I am going to post it all! This was it will help others and hopefully I will get feedback by people that know to insure I am asking the right questions. HectorSF has been real helpful with things I should ask the doctor and demand from the University study if I take it.
I’m not going to do a study if I don’t feel it will be my best chance to rid my body of the HEP C.
I really wish we had doctors more involved in this site on Hep C. It really is hard to go through all this information without really knowing what works and who it works for.
Hope you are doing well! Thanks again-Willy 

[ILuvWilko1956]

Thanks meNtoby! Wilko1956 plays the drums and I would like to see him get back in to jamming again. You will be sure to hear about our experiences with medicines and the study. The doctor explained that the study would kill to have Wilko1956 because he's never been treated i.e. a clean slate. I admit I'm still wrapping my head around it because you hear a new pill being advertised on tv every day but then a class action lawsuit five years later. I myself took depo provera and that was a big mistake. Still, Wilko1956 wants to do it and it's worth a try. The good news his liver can't get any worse as explained by the doctor so I'm hoping the betting the only way now is up! Thanks meNtoby!

[meNtoby]

I think the title is "That's the way the world goes round"  Since I have to use a post anyway, here is some of it for you...everyone else, fast forward.

Some of it's too odd for here ;-) but fave vs. goes...

"I was sittin' in the bathtub countin' my toes, when the radiator broke, the water all froze, I got stuck in the ice without any clothes, naked as the eyes of a clown..

"I was cryin' ice cubes, hopin' I'd croak, when the sun-came-thru-the-window, the ice all broke, I stood up and laughed, thought it was a joke, tha's the way that the world goes round.

(chorus)
"That's the way that the world goes round, yer UP one day, the next your DOWN, it's a half-a-inch a water, ya think yer gonna drown, tha's the way that the world goes round."

I sang it for you in hillbilly too!  I've played guitar for many years.
A GREAT OUTLET I MIGHT ADD.

I like "Whistle and Fish" by JPrine as well.  ;-)   Won't bore y'all further with my singin'

To: luvsWilko, I will be interested in hearing more from you guys on the new drugs and
your experiences with this disease.  You make a great team, and thanks for your kind words.  I'm cheering from the sidelines for now..
sign me: "I'm Cathy and I have HCV antibodies"  

[ILuvWilko1956]

To Wilko1956-Oh Lord here we go with asking what song again it will be blasting on every radio in the house. Btw Wilko1956, you left the stereo on maximum the other day and I almost soiled myself when I turned the ignition. You guys please don't encourage this, don't tell him don't tell him (just kidding!) That's the Wilko1956 I'm used to!

To meNtoby-you are absolutely right: true friends are hopeful and the party friends don't care. We've weeded out the haters for quite some time now and it looks like not a minute too soon. It is very funny but personally I stopped having bad luck when they left and I couldn't be happier with my life.

I'm beginning to see a new light on these treatments after telling Wilko1956 I don't want him being a guinea pig to some lab. But Wilko1956 brings up a good point: how do you ensure they give you the actual drug and not the placebo? I'm jotting down all these questions and bringing them with us to the doctor. I really appreciate everyone's help as we embark on treating this blood borne condition. It looks to me like in order for it to not kill you, one has to be broke with the high cost of medicine. However, I will settle for the latter since how can you put a price on life?

[Wilko1956]

Hang in there girl. We got your back. Hope is really all we have. I didn't know there is a WORLD HEP DAY?!? Sorry to hear about your mom. Even if it is 8 years, it really is like it was yesterday. You never stop missing them!  I'm so lucky to still have mine. By the way, What John Prine song are you talking about? Best wishes, -Willy :)