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terrible taste from victrellis
I am starting my fourth week of victrellis and ten days ago the pills began to give me a horrible taste in my mouth. It taste like I would imagine gasoline tastes. It seem to erupt from my GI system and just go up through my mouth and nostrils. It is truly disgusting. Sometimes I get so nauseated I can' t eat. My doctor gave my phenergan to take for the nausea. I also have sores in my mouth so she gave me miracle mouth too. The phenergan keeps me from tossing my cookies but it does not help with this horrible taste. If anyone has any suggestions I am willing to try anything safe. My doctor says about 30-40% of people get this with victrellis. I know most of you are on incivek but you still may have some helpful advice. thanks everyone
Your welcome I like them I change off I just had my afternoon Vict- wont be long I will be grabbing a Lemon Drop ha!
http://www.healthline.com/galecontent/dysgeusia
Definition
Dysgeusia is a disorder of the sense of taste.
Description
'Any condition that affects the ability to taste is referred to as dysgeusia. While dysgeusia is often used to describe any change in the sense of taste, more specific terms include ageusia (complete loss of the sensation of taste); hypogeusia (decreased sense of taste); parageusia (bad taste in the mouth); and dysgeusia (distorted sense of taste, such as a metallic taste in the mouth).
A wide variety of conditions can cause a deficit in the sense of taste, including any conditions that interfere with the functioning of the taste buds (the nerve cells on the tongue that process information about taste), conditions that interrupt the taste signal that is sent to the brain, or conditions that interfere with the normal brain processing of those signals. Processes that affect the functioning of the lingual nerve or the glossopharyngeal nerve may impair the sense of taste. Furthermore, the sense of taste is frequently dulled or impaired due to dysfunction of the sense of smell.'
Hector
Definition
Dysgeusia is a disorder of the sense of taste.
Description
'Any condition that affects the ability to taste is referred to as dysgeusia. While dysgeusia is often used to describe any change in the sense of taste, more specific terms include ageusia (complete loss of the sensation of taste); hypogeusia (decreased sense of taste); parageusia (bad taste in the mouth); and dysgeusia (distorted sense of taste, such as a metallic taste in the mouth).
A wide variety of conditions can cause a deficit in the sense of taste, including any conditions that interfere with the functioning of the taste buds (the nerve cells on the tongue that process information about taste), conditions that interrupt the taste signal that is sent to the brain, or conditions that interfere with the normal brain processing of those signals. Processes that affect the functioning of the lingual nerve or the glossopharyngeal nerve may impair the sense of taste. Furthermore, the sense of taste is frequently dulled or impaired due to dysfunction of the sense of smell.'
Hector
Hepatology - Management of Hepatitis C Infection
Authors: Jordan J. Feld, MD, MPH, Hemant Shah, MD, FRCPC
http://www.clinicaloptions.com/inPractice/Hepatology/Hepatology/ch8_Mgmt_of_Hep_C_Infection/Pages/Page%2012.aspx
Adverse Effects and Management Strategies
'Boceprevir use also causes dysgeusia in some patients. Anecdotally, taking boceprevir capsules with chocolate milk seems to help manage dysgeusia in some patients.'
Frequency = 35-44% (vs 11-16% with only pegIFN & RBV)
Hector
Authors: Jordan J. Feld, MD, MPH, Hemant Shah, MD, FRCPC
http://www.clinicaloptions.com/inPractice/Hepatology/Hepatology/ch8_Mgmt_of_Hep_C_Infection/Pages/Page%2012.aspx
Adverse Effects and Management Strategies
'Boceprevir use also causes dysgeusia in some patients. Anecdotally, taking boceprevir capsules with chocolate milk seems to help manage dysgeusia in some patients.'
Frequency = 35-44% (vs 11-16% with only pegIFN & RBV)
Hector
Thanks, I will try the ginger chews. I have been drinking ginger tea and I also use the biotene products. I will continue to try to keep food down also. thanks again
I buy the bags of life savers they are in my car at work in my room kitchen etc hehe..Lemon drops are good too!
The metalic taste can be very bad, but in my instance it went away completely after 4-6 weeks. I hope you have the same experience. I also bought Biotene as 1swimmer said above and used it several times per day and that helped immensely. Hang in there!
hey there. im on triple tx with incivek. i get a horrible metallic taste in my mouth. i try to use hard candies it helps some...best wishes
Yes the Vic does leave that nasty taste, I used some mints to suck on after the pills. Helped somewhat.......... Good luck
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Overall, eating for me has been my saving grace. I'm on week 10 with Vic. and today has been one of my few nauseaus days. I never let my stomach get too empty; half a banana, crackers, rice or an egg. I reach for different foods to see what works. Ginger chews will give the mouth a nice POW. I also floss regularly and use biotene products. Swishing water in my mouth often, as I am always chug, chugging. For me, that bad taste is not constant. Good luck.
C