Aa
Has anyone noticed.......
Has anyone noticed that there are numerous women on this forum who are managing/researching their husband's treatment yet I have not noticed any men who are doing the same for their wives.
Perhaps I have missed something,but this superficial evidence suggests that women are more proactive in this department than men.
Interesting.
Perhaps I have missed something,but this superficial evidence suggests that women are more proactive in this department than men.
Interesting.
Hi, Franke566. Thanks for the congrats. I'm trying to stay alive as long as possible. I've been told to my face by my specialists that I'm terminal and need a liver or that's it. I keep a very positive attitude about life. Hell, we only get one shot at it, right? Might as well make it a good ride.
I've seen a lot of very bad things in my life, many of them thanks to the US Army, but that too is a part of life. I am 43 years older than my daughter and want to leave a positive impression in her life.
I just responded to a forum post regarding ammonia levels in the blood of a failing liver. If the levels get too high it can cause encephalopathy. You can't think right at all. Hell, I have enough trouble as it is. After all, I was a teenager in the 60s.
Take care,
MARTY
I've seen a lot of very bad things in my life, many of them thanks to the US Army, but that too is a part of life. I am 43 years older than my daughter and want to leave a positive impression in her life.
I just responded to a forum post regarding ammonia levels in the blood of a failing liver. If the levels get too high it can cause encephalopathy. You can't think right at all. Hell, I have enough trouble as it is. After all, I was a teenager in the 60s.
Take care,
MARTY
On the Hepatitis C side I was told Viral load has nothing to do with Cirrhosis/fibrosis-
I can't explain how my liver continues to become more useless-By the way-Congratulations on your new grandchild! I feel like everyuone believes achieving SVR is it-the liver will go back to health and all will be fine and dandy. I was not wise like you. I drank a six pack after work, got on ADs and pain meds for my back. Heck, why not? I was so called cured. Okay so thats what I thought. You didn't do this so what are your drs telling you? I wish you the best buddy. I know you have your hands and heart full! You are carrying quite the burden. Good luck and God Bless. Frank
I can't explain how my liver continues to become more useless-By the way-Congratulations on your new grandchild! I feel like everyuone believes achieving SVR is it-the liver will go back to health and all will be fine and dandy. I was not wise like you. I drank a six pack after work, got on ADs and pain meds for my back. Heck, why not? I was so called cured. Okay so thats what I thought. You didn't do this so what are your drs telling you? I wish you the best buddy. I know you have your hands and heart full! You are carrying quite the burden. Good luck and God Bless. Frank
Hi, Franke566. Sorry its taken me a while to get back to you, but I had to deal with some family issues, I have a daughter who is 17 and just had a baby. Nothing like additional stress. My ex is no help so I'm it for her. I'm trying to get her on the right path before I end up being unable to help any longer.
Sorry to hear about your situation with the transplant issue. That *****. I am in pretty good physical condition as a result of a couple of decades of not smoking, eating right, not drinking and exercising at my Dr's suggestion. It may have slowed down the cirrhosis, but as you know with Hep-C it's inevitable.
My heart is very strong. I do have type II diabetes and thyroid disease as a result of the Hep-C and the interferon. I do have portal vein hypertension with verices, but no bleeds. I do get nosebleeds now that I NEVER got before. No gums or other kinds of bleeding and no hand spasms. My spleen is super enlarged as a result of the red cells being sequestered there. Iron and platelets are in the toilet. I take iron supplements but can't do anything about the platelets.
I just had another test this morning to see if something else is causing the extreme pain in the stomach that I'm experiencing. I'm hoping they find something treatable.
Good luck to you, Franke566.
Sorry to hear about your situation with the transplant issue. That *****. I am in pretty good physical condition as a result of a couple of decades of not smoking, eating right, not drinking and exercising at my Dr's suggestion. It may have slowed down the cirrhosis, but as you know with Hep-C it's inevitable.
My heart is very strong. I do have type II diabetes and thyroid disease as a result of the Hep-C and the interferon. I do have portal vein hypertension with verices, but no bleeds. I do get nosebleeds now that I NEVER got before. No gums or other kinds of bleeding and no hand spasms. My spleen is super enlarged as a result of the red cells being sequestered there. Iron and platelets are in the toilet. I take iron supplements but can't do anything about the platelets.
I just had another test this morning to see if something else is causing the extreme pain in the stomach that I'm experiencing. I'm hoping they find something treatable.
Good luck to you, Franke566.
Howdy Veteran 1. I believe I told you I am end stage after Tx and SVR and my Hepatologist said at my stage of cirrhosis my liver will never regenerate. I would take a liver now if I were eligible but other conditions has or is keeping me off the list. I have a friend who had a transplant just under two years ago and he is a new man.
I waited. After all I was SVR and thought my liver would repair itself. I was only F1, F2 for fibrosis and cirrhosis-sometime between then and now I had a mild heart attack, pneumonia, chronic respiratory infections I believe were triggered by Tx and am diagnosed with COPD so Baylor turned me down for transplant. Have you discussed this with your Hepatologist? Do you have ascites/ Portal Hypertension between the liver and spleen? Mental encephalapathy? Any esophogeal bleeds?
do your gums bleed at night? Hand spasms? Not being nosey just want to compare. Thanks, Frank
I waited. After all I was SVR and thought my liver would repair itself. I was only F1, F2 for fibrosis and cirrhosis-sometime between then and now I had a mild heart attack, pneumonia, chronic respiratory infections I believe were triggered by Tx and am diagnosed with COPD so Baylor turned me down for transplant. Have you discussed this with your Hepatologist? Do you have ascites/ Portal Hypertension between the liver and spleen? Mental encephalapathy? Any esophogeal bleeds?
do your gums bleed at night? Hand spasms? Not being nosey just want to compare. Thanks, Frank
Hey, WriteItDown, I just read your post about HCA and hope he's okay, too. I'm wondering if anyone personally knows of a person who has successful results from the Telaprevir protocol that is currently in trial. My end stage liver disease from Hep-C has reached the terminal phase and lots of bad things are happening to my body. I've developed severe cirrhosis and have a collapsing Hepatic Portal Vein which causes gastropathy and esophageal varices which I also have. I've proven resistant to all known protocols and have geno type 1A Hep-C that I got in the Army 40 years ago. My question is; can liver damage as extensive as mine be overcome once the virus is stopped? I realize that cirrhosis cannot heal, but can the liver regrow and will the Portal Vein Hypertension be relieved? I have a MELD score of 12 and am very close to being a candidate for transplant. I am 60 years old but in really good shape physically other than the liver disease. I'm wondering if I should hope for the trails to be successful and the treatment made available by next summer or if I should be more focused on accepting that a transplant is inevitable. Providing, of course, that a liver should BE available. I would really appreciate any feedback on this subject, and thanks.
I tried to message him, too. I hope someone hears from him. He ought to be almost done with his Telaprevir trial by now, no? I certainly hope he gets his SVR.
No, I haven’t heard from HCA for a couple of months now. I tried to message him, but he’s blocked notes and messages from his inbox. Might have gotten fed up with some of the nonsense goings-ons in here. If someone hears from him, steer him my way?
Bill
Bill
You two birds put a smile on my face. It's nice to hear about your wonderful husbands taking such good care of you.
And by the way, seeing this thread reminds me once again that I miss HCA around here. Anyone have any information regarding him? I certainly hope he's okay.
And by the way, seeing this thread reminds me once again that I miss HCA around here. Anyone have any information regarding him? I certainly hope he's okay.
My DH took care of me all through my tx. He cooked. He cleaned (in his way). He drove me back and forth to LA (six hours RT) for my doctor visits. He left me alone when I needed it (which was a lot of the time) and kept me company and took me places when I needed to get out and interact with the bigger world. He dealt with my spontaneous tears and lifelessness and made me feel cared for and safe.
No one could have done it better.
No one could have done it better.
gettimg a key board today because the letter that comes after M is out-I follow your posts & you cotribute so much- You are a good soul & I was just puttig my voice out there for balamce-just use the M for the letter that comes after it-ha ha. Happy T day
to every 1 that observes it.
to every 1 that observes it.
I have to get a keyboard-the letter that comes after M is ot workig. Touched by your
words-God Bless You & God Bless your courage. The spirit that shapes us is our very self-you did what real. Humams do best & are all the better for it!
words-God Bless You & God Bless your courage. The spirit that shapes us is our very self-you did what real. Humams do best & are all the better for it!
Actually, just this moment is the first I've read your post. I have a feeling it didn't get a word of appreciation because other posts pushed it off the page and it didn't get read.
It's a hard subject. I think men get much misaligned - and yet on this particular thing, I think the kind of caregiving and nurturing that seems to go with someone being ill doesn't come as naturally to a man as it does to a woman. Doing the hunting and gathering thing, men excel to be sure. I'm not sure we should pat women on the back for what they're naturally good at and malign men for what they're not naturally good at. Exceptions to the rule always but in a general sense, it's probably women who are better at caring for the sick than men. Maybe that's why more men are doctors and less women and more women are nurses and less men. Along with that childrearing thing ... and so on and so on. I happen to think that when we expect men to be like women, that's when we just set ourselves up for disappointment.
It's a hard subject. I think men get much misaligned - and yet on this particular thing, I think the kind of caregiving and nurturing that seems to go with someone being ill doesn't come as naturally to a man as it does to a woman. Doing the hunting and gathering thing, men excel to be sure. I'm not sure we should pat women on the back for what they're naturally good at and malign men for what they're not naturally good at. Exceptions to the rule always but in a general sense, it's probably women who are better at caring for the sick than men. Maybe that's why more men are doctors and less women and more women are nurses and less men. Along with that childrearing thing ... and so on and so on. I happen to think that when we expect men to be like women, that's when we just set ourselves up for disappointment.
My comment was a tongue-in-cheek response to HCA; it was not intended to categorize anyone nor was it meant to be disrespectful in anyway. I'm sorry if my attempt to interject some humor caused any one, or any gender, to seriously take offense. Instead, I guess could I have theorized:
"Men don't bother because they know their wives won't listen to anyone's good advice." Or would that have intimated an equally low level of understanding of human nature?
Husbands such as yourself and frank566, like many spouses mentioned in this post, are deserving of much credit and compassion -- my comment and/or its omission in addressing individual situations presented should not be construed as an indication of any particular attitude or my personal feelings. Perhaps just a shot at humor way off mark.
"Men don't bother because they know their wives won't listen to anyone's good advice." Or would that have intimated an equally low level of understanding of human nature?
Husbands such as yourself and frank566, like many spouses mentioned in this post, are deserving of much credit and compassion -- my comment and/or its omission in addressing individual situations presented should not be construed as an indication of any particular attitude or my personal feelings. Perhaps just a shot at humor way off mark.
Ah, male bashing...most women's favorite pastime. I love a good discussion as much as the next person, and am also wondering why no one responded to your declaration of compassion for your wife's condition and your helpful and caring attitude towards her.
I too had a wife who suffered from a condition that required a lot of research and trips to the doctor's offices. This condition lasted for five years and she took a lot of prescription pain meds, including hydrocodone. She became addicted and it was like living with a heroin addict; mood swings, outbursts, and other related side effects.
I stuck with her through it all, researched the history of the condition and found progressive physicians who could offer potential help. I also took care of our two children, cooked, cleaned, and worked at a job ten hours a day to pay for everything. I didn't berate her for her addiction nor did I ever consider leaving or not doing all I could to help her. I'm told that's what love is all about.
For anyone to categorize men OR women in one group of with the same character disorders is not indicative of a high level of understanding of human nature. They probably have difficulties in most of their own relationships, and it's understandable given the attitude of grouping each sex together with identical traits across the board.
I have terminal end stage liver disease resulting from Hep-C I got while serving in the Army during the Vietnam Era. My now EX-wife decided that she didn't want to endure helping me with doctors and the research into alternative medicines because it infringed on her freedom to live her life. Going for liver biopsies, ultrasounds, and watching me deteriorate was just too much for her. So, I continue on my own and don't regret for one minute helping her through the tough times.
Sorry you don't see more men answering the original question on this forum, but maybe they just don't like to join forums?
I too had a wife who suffered from a condition that required a lot of research and trips to the doctor's offices. This condition lasted for five years and she took a lot of prescription pain meds, including hydrocodone. She became addicted and it was like living with a heroin addict; mood swings, outbursts, and other related side effects.
I stuck with her through it all, researched the history of the condition and found progressive physicians who could offer potential help. I also took care of our two children, cooked, cleaned, and worked at a job ten hours a day to pay for everything. I didn't berate her for her addiction nor did I ever consider leaving or not doing all I could to help her. I'm told that's what love is all about.
For anyone to categorize men OR women in one group of with the same character disorders is not indicative of a high level of understanding of human nature. They probably have difficulties in most of their own relationships, and it's understandable given the attitude of grouping each sex together with identical traits across the board.
I have terminal end stage liver disease resulting from Hep-C I got while serving in the Army during the Vietnam Era. My now EX-wife decided that she didn't want to endure helping me with doctors and the research into alternative medicines because it infringed on her freedom to live her life. Going for liver biopsies, ultrasounds, and watching me deteriorate was just too much for her. So, I continue on my own and don't regret for one minute helping her through the tough times.
Sorry you don't see more men answering the original question on this forum, but maybe they just don't like to join forums?
Oh my Gosh! I could have sided with andiamo and Goofydad but no- I exposed my
feminen side and didn't get one word of appreciation-and that ladies is why men
don't give a hoot er, I mean darn.
feminen side and didn't get one word of appreciation-and that ladies is why men
don't give a hoot er, I mean darn.
Women just can't trust their husbands to make good decisions all on their own... ;)
Married 40 years to one woman and proud father to 3 children and 3 grand children.
Wife had cancer w both breasts removed and I was husband and father and played the mother role for a very long time. I am not offended by your post in the least but
although we may be wired differently it is sexist to jumble all men into one category.
We by nature are wired to hunt, gather, defend and die if necessary for our family and
or clan. This might sound sappy or self-serving but I cherish my wife and have always been there for her and she has always been here for me.
Wife had cancer w both breasts removed and I was husband and father and played the mother role for a very long time. I am not offended by your post in the least but
although we may be wired differently it is sexist to jumble all men into one category.
We by nature are wired to hunt, gather, defend and die if necessary for our family and
or clan. This might sound sappy or self-serving but I cherish my wife and have always been there for her and she has always been here for me.
Its because men see it as an opportunity to finally be rid of them.
I kid....but do I ?
I kid....but do I ?
Could be true as the person that helped me find tx when I had relapsed was a woman that cared about me. I think i would have done the leg work and obviously had to do the real work in the end but wonder if I would have been fortunate to get in the study if it hadn't been for her. We all have our contributions we make to having functional lives and likely it's people living in their strengths when circumstances seem to indicate more interest from the woman... my 2 cents on that. We all need to live in our strengths and 'hire for our weaknesses' so to speak... the goal for male or female is get to SVR whatever it takes...
There are givers & takers in the world, there are people who think of no one other than themselves & people who care and put others before themselves.
I am a giver and carer, i have attended every appointment since my Fiance' has been diagnosed with Hepatitis C and Fibromyalgia, many people have stated to me she is lucky as many men would have left her by now.
She Lives in Texas united states and i live in the United kingdom, she has to start her treatment in january 2010 and my PRIORITY is to travel back and for from UK to USA in which to be there and care for my Fiance'.
If you truly love some one you it would never even enter your head in which to leave or abandon them, i shall care for her get through her course of treatment and in 2-3 years time Marry her.
I am a giver and carer, i have attended every appointment since my Fiance' has been diagnosed with Hepatitis C and Fibromyalgia, many people have stated to me she is lucky as many men would have left her by now.
She Lives in Texas united states and i live in the United kingdom, she has to start her treatment in january 2010 and my PRIORITY is to travel back and for from UK to USA in which to be there and care for my Fiance'.
If you truly love some one you it would never even enter your head in which to leave or abandon them, i shall care for her get through her course of treatment and in 2-3 years time Marry her.
My wife has been very supportive and she is the one that found this forum and got me involved. I was just ridin it out cowboy style before that.
Maybe men give their support in smaller, more frequent events rather than the more dramatic long drawn out ones. ??
GoofyDad: I didn't know you were a Pastafarian, bless your little noodle!
Maybe men give their support in smaller, more frequent events rather than the more dramatic long drawn out ones. ??
GoofyDad: I didn't know you were a Pastafarian, bless your little noodle!
You are right Speed, not all are nurturers. Male or female, we all are not capable of everything. We are, who we are. I learned to understand this a long time ago with a mother who was not a nurturer. I love and enjoy people for who they are and never impose my expectations on them.
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