Aa
looking for support groups
I am looking for support groups regarding hep c patients. Or any news regarding hep c study groups.
Mary
Mary
I know of support groups in CA (near Petaluma) and in Durham, NC. PM me if you want info about either of these.
Here's a couple links that, in addition to this site, I've found to be quite good:
http://www.janis7hepc.com/
http://www.hcvadvocate.org/
http://www.janis7hepc.com/
http://www.hcvadvocate.org/
Good luck finding a support group. We'd all love a forum to vent into and have mostly used these on-line forums for that. It's been really useful to me.
There is such a social stigma to Hepatitis C that even when you are sitting in the viral clinic with 20 other people who are treating, no one talks. If I hadn't finally started posting on the MedHelp forums, don't know what I'd have done with all of the isolation of treating in secret.
Search the forums and it's as good as a study group. Some of the posts are not useful but many posters site newly released research reports that you would probably never come across on your own. The internet is a wonderful resource once you get the feel for what's junk and what's helpful.
There is such a social stigma to Hepatitis C that even when you are sitting in the viral clinic with 20 other people who are treating, no one talks. If I hadn't finally started posting on the MedHelp forums, don't know what I'd have done with all of the isolation of treating in secret.
Search the forums and it's as good as a study group. Some of the posts are not useful but many posters site newly released research reports that you would probably never come across on your own. The internet is a wonderful resource once you get the feel for what's junk and what's helpful.
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