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Avatar universal

Do I have herpes?

Hoping you could help me pleeeaaassseeee.  

During intercourse in November, had pain internally like burning and lower abdominal pain.  Had to stop midway.  

Went to walk in right away.  Internal exam showed nothing.  Tested for STDs and yeast and BV all came back negative (did not test for herpes b/c no sores).  Next day swelling of vulva, sore, yellow watering discharge (almost looked like urine)....walk in again....no sores...no testing for herpes done.  Next two weeks nerve pain in vaginal area like shooting pain and vulvodynia type pain.  Subsided a bit then extreme nerve and leg pain, vagina and anus on fire, swelling of anus and fissures....abdominal pain again and discharge.  

I have swabbed vaginal fluid, vaginal skin, anything that looks like a pimple, or boil down there, all negative (never swabbed anus) - dr said was hemmrhoids.  Everything has come back negative.  Blood test at 10 weeks negative.  Went on Valtrex for 2 months to see if it helped....didn't help.  The pain and burning is less but still there.  It's manageable now I can sit and stand, but before I was in so much pain only thing that would help was to shower.  Since Valtrex didn't really help, I stopped for a month (month 5) and then a month later (month 6) took a blood test that came back negative for herpes.  

I still have vaginal pain and anal pain and burning.  Pins and needles in legs.  I feel like I am having outbreaks constantly but with no sores I can see unless they are internal.  Dr only checked internally for first 2 months then just did external checks.

I really feel this is herpes.  I dont know what to do anymore.  Haven't had sex in 6 months.  I am in pain with various degrees all the time.  Doing an MRI to check to see if its anything else.

I also have the same/similar symptoms orally.

Question:
1.  Would Valtrex for 2 months then stopping for 1 month (at the 6 month point) impact my blood results?
2.  Do I have herpes?
3.  Is there another STD that mimics this, perhaps HPV?
4.  What do you suggest I do now....I am so at a loss?

13 Responses
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Avatar universal
I think I had a primary oral and primary genital outbreak at same time so if it comes back positive hsv1 i think i have it both places.....will keep you posted
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Avatar universal
Remember what I said though, positive for HSV1 does not prove a genital infection, the odds are overwhelmingly with an oral infection. I agree it would be a good idea though. You can take things further after that test.
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Avatar universal
Thx for your prompt responses FLeetwood.  

It's so frustrating to be in this ambiguity.  Western blot here I come!
Helpful - 0
Avatar universal
A most common place for the sores is just on the inside of the vaginal lips, particular if oral sex is the culprit. There is almost always sores at the point the virus enters and very rarely internal sores where they can't be felt.
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Avatar universal
I could have sores internally and not know.
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Avatar universal
Sorry, I am misunderstanding, you think I don't have it because I don't have external sores?
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Avatar universal
That's the issue though, except external sores. This is what herpes does best, the predominant symptom, not just a random one that is missing.

Even for people infected with genital HSV1, what you describe is extremely rare amongst that population.

There is also the issue that if HSV1 is detected, you won't really know if it is an oral or genital infection.
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Avatar universal
OK.  I am almost 100% sure I don't have HSV2.

So then its HSV1 which has a higher false negative rate.....10%!!!! I think I got it from oral sex.  So now what?  I guess I could be part of the 10%.

Every doc has told me to give up on testing for herpes but goodness, all the symptoms are so similar except for external sores.  Impossible not to have external sores with herpes they say.  I guess I could have internally and never know.

Maybe its just better to do Western Blot and be done with it already.  I am soooo scared.
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Avatar universal
The ELISA tests are over 97% accurate for HSV2, but over 90% for HSV1.
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Avatar universal
I may do a Western Blot then thanks.  

I am so nervous though.  Torn, I want it to be positive so I can move on already and then I want it to be negative b/c I don't want to have herpes.

Do you know how accurate ELISA blood tests are at 6 months?  
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Avatar universal
Herpes just wouldn't be providing this consistent level of symptoms.

You could try a Westernblot that would be over 99% accurate for identifying the presence of HSV.
Helpful - 0
Avatar universal
At one time I felt a pencil eraser type sore internally, never got it swabbed....couldn't get to a doctor.  

I am doing an MRI, but neurologist doesn't think it's a nerve problem.  

Could it be that because of these constant symptoms, my body can't develop antibodies?

Also, I got these symptoms 2 weeks after receiving oral sex from unknown STD status male.
Helpful - 0
Avatar universal
In terms of your questions:

1. No, you have a total of 4 to 5 months without antivirals including the first 10 weeks.
2. I'd suggest this is conclusive that you don't have herpes.
3. I'm not sure this is an STD at all.
4. This does seem nerve related. There could be an issue of compressed nerves in your lower spine or even an entrapped nerve in your pelvis.
Helpful - 0
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