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Equivocal, then Negative, then Negative again.., What does this mean?

Hi all,

I had sexual encounter this past May ( on the 27th). We had protected vaginal sex and unprotected oral sex. It was one time, then the guy ghosted me. I asked him why and he blocked me and changed his number, which kinda worried me because it felt like he knew he had done something wrong, but he did not want to tell me what. I tried to get my mind off it because I just wanted to move on...

Well one night in mid to late June, my lips started to feel dry, by the third day, it was more of a tingling, by the fifth day, it was more of a burning and I decided to go get tested for herpes. My doctor gave me some medicine to help with that because she was pretty sure I had contracted HSV 1. A week later, my test comes back equivocal (score of .92). So I'm distraught because her nurse told me that meant positive. To this day, I'm still not 100% sure what equivocal means, BUT my doctor asked me to come back a week later to retest. (KEEP IN MIND: The burning in my lips is still happening, about two-three weeks at this point). I go back to retest, it comes back negative (.81). The doctor tells me to drop it, and get over it, I don't have herpes. BUT MY LIPS ARE STILL BURNING, and my legs started to hurt so bad to the point where I couldn't walk, and my head was hurting whenever I stood up too fast.

At this point, I'm fed up with being dismissed, so I go to another doctor. The doctor tells me that she will retest me, but the symptoms I listed do not sound like herpes, especially considering the fact that (even to this day), I have never had a cold sore. She retests me again on July 12th, and it comes back negative AGAIN. She ran some bloodwork and she suggests I start taking iron supplements because I was pre-anemic.

(FOR CONTEXT: I was on nexplanon birth control. I was on my period for 57+ days by the time I went to this other doctor. She assumed the pain was due to the blood being lost.)  

I took the iron supplements, and I got better. Now, its 9/22, almost 4 months later, and I'm having the lip problem again, its just not as bad as the first time. Still no bumps, still not cold sores, nothing. What does this mean? Do you think I actually have herpes? What are the chances of me having herpes? What do I do?
Best Answer
207091 tn?1337709493
COMMUNITY LEADER
So equivocal doesn't mean positive. It means indeterminate, and your follow up negative test showed you don't have herpes.

Lip burning isn't a symptom of herpes, and can be a sign of anemia - well, burning mouth can be.

I think you should focus on the iron, especially if you are bleeding again.

I don't know why your partner blocked you - maybe he's just a jerk who only wanted a one night stand and it doesn't have anything to do with herpes.

Don't get too caught up in herpes that you miss other possibilities.
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