congrats!!!
best of luck with your up and coming wedding too :)
grace
It's been a long time since I have posted on this website feed. I am up late tonight and for some reason my experience has been on my mind, so I thought I would provide an update.
Before my update, I want to thank everyone who wrote me during my tough time with advise. At the time, I was really looking for some guidance from people outside of my world.
Update: Since my experience I have been tested for Herpes 1 & 2 several times... In fact, I have been tested 6 times with All Negative Results! Although that was all very good news to me, it's obvious that I TRULY struggled with the process. I would have to say that being falsely diagnosed was one of the toughest things I have been through in my life and anyone who knows me would say... The medical part of my life hasn't been easy. I was never re-tested for the WB, but I can say that I have never had symptoms and or any reason except for the false positive test, to believe that I was infected.
I am happy to also report that I have had a boyfriend for over a year now and instead of worrying about this disease state, I am busy planning a wedding. :) I know for a fact that this never would have been possible with out my due diligence in getting re-tested. I am not sure that i would have been able to open up to someone like i have today. I was extremely disabled the possibility of having the disease. I will forever tell people that if you get a test result back that doesn't seem quite right... To definitely get tested again!
Thanks again to this website and all who share their stories... And for anyone who has herpes.... There are people out there who understand you and who will love and support you no matter what. Just trust that life still goes on and the people that truly care for you will be by your side during the tough times... Sometimes you have to ask for help, even if you are afraid. :)
Well the best thing to do is just as grace said. Given her knowledge on HSV and the fact she does have HSV makes her an invaluable resource here. She goes to various STD conferences so she like you have a lot of information at hand.
The fact is tests can come back wrong and off. As I am sure you know getting bloodwork drawn is a pretty routine task. Though running the tests are a little more difficult. I don't know about your PP but the one that is close to us here sends their lab work out to be done by the big lab companies.
With this being the case the WB is going to be the best bet. Though I would say maybe look into the Biokit test done as well. I don't know if that will add to the confusion but is worth a shot before the WB. The Biokit did pretty well on HSV-2 when compared to the WB test.
Thanks. I know for fact my primary Dr gave me the IGG test because I specifically ask & it reads directly on the results. I never got a copy of the Planned parenthood test, but I called them & it seemed to be the same. I'm going to drop by my negative test there tomorrow, visit w a counselor and then schedule the new text at my old Dr.s office which is a few hours away. I will never go to planned parenthood again for anything.
also make sure ur personal doctor and planned parent hood gave you an IGG test. Not and IGM test.
I know the feeling. Im confused too!.. I tested highly positive 4 times between august 2010- and December 2010. I was negative in March 2010! the only person I was with during the time frame was my ex bf who i confirmed is negative!.. I was thinking about getting a western blot.. I think you should considering you seem low risk (ur partners are negative) and u were tested before and were negative. best of luck. it is a confusing thing. keep us posted! :)
Thanks.
I will go back and get tested for the westerb blot to get checked one more time. The Culture test was indeed negative. Emotionally this is all very confusing.
There is a part of me who is too scared to get a nother test done and another part who knows that it's the right thing to do. This all hasn't been adding up from the beginning and I find I have a lot of anger including trying to keep my enotions straight while feeling alone. I looked up my last test that my Dr. gave the exact name, etc and that test is suppost to be 97-99% accurate. I would really just to love to let this go. Being in Pharmaceutical sales and talking with Dr.s all day probably isn't helping either. I absolutely know more about Herpes thant the majority of society. I even wrote a 12 page paper on it in college. This is a rare finding. I would love to talk to anyone else that has gone through this. :)
was your lesion culture + also that you had done?
your hsv2 igg of 5 typically is not a false positive but it can be. at this point I'd get a herpes westerb blot ( wb ) done to check on your status. since your current bf has tested negative I presume, you can get the WB done at any time.
grace