Leg/Butt Pain. Muscles Twitching> Herpes Related??

[bamboozled86]

I'm a 26 yr old male that has never had any health issues or problems in my entire life beside the occasional cold/flu that everyone else gets. That all changed a little over 4 months ago.

Had brief unprotected oral sex from a girl i met the day before and about 40 secs of brief unprotected intercourse. The rest was protected sex. 6 days later while driving, I began experiencing short sharp random stinging pains in my groin mostly above the right testicle area but the pain didn't feel like it was from the testicles.More like deeper in the groin. Also, my perineum area felt swollen like I was sitting on something near my rectum. 1 day later i got a sore throat and my neck lymph nodes felt slightly swollen. 2 days after that, I noticed a raised bump on my penis shaft on the bottom right side. It looked like it maybe an ingrown hair cause it didn't hurt and it never turned to a blister but I have never seen a bump on my penis like that before. Also, when i would shower, I would feel a sting in one area on the rim of my penis head when the water from the shower head touched it but there was never any sign of redness, bumps, cuts, or abrasion whenever i checked it.This weird pain lasted in the penis head rim for almost 2wks. Went to get tested for all STDs/HIV and all tests came back Negative. I know 1 week is too soon for HSV and HIV test but both were negative so I had no previous exposure. Urine sample, clean. Girl also said she was clean on everything but i'm not convinced she had herpes testings. Doctor did turn and cough test on me and said I might have a hernia. Doctor looked at bump and thought, ingrown hair or irritation. Prescribed 10 days of Doxy as a precaution if I had any bacterial infections. The bump went away in about 3-1/2 days. Had a surgeon rule out hernia and thought pain was due to some type of strain.
Then got sick with cold-like symptoms that lasted almost 2 weeks. Very rare for me. Was treated for sinus infection. During this time, i developed the random burning pain up and down both legs and buttocks, sometimes in arms and back. Then the muscle twitchings started. mainly in legs when i would sit and relax. Every couple days or so I would notice very tiny tiny white head like pimples on my penis shaft that would last for like maybe a few hrs or so maybe 1 day tops. Never more than one at a time. They looked just like pimples you get on your arms or face but then again, I've never seen this on my penis before. Ever.
Got blood tested again for HSV and HIV at 6 wks. Tests came back Negative again. Showed doctor one of the tiny whitehead pimples and he said it wasn't herpes.
The random pain in my body, mainly in the legs, groin, penis, and buttocks have been on and off ever since. I seem to get a pain in my penis minutes after i urinate every now and then but never while urinating. Urologist said I may have prostatitis but all my urine samples have been clean for bacterial infections. The swelling in my perineum was gone by then but I still feel the random groin pains.

Still convinced that I had something wrong with me, I went and got tested again at 12wks. HSV 1 and 2 were again Negative. All herpes tests have been Herpes Select Type specific IgG. I began to believe that i didn't get herpes but then the pains would come back and change all of that. I then got another bump like the one i described in the very beginning near the base of the penis by the pubic hair region which again didn't hurt. Doctor saw it and said she was certain it wasn't herpes and was probably folliculitis/ clogged hair follicle. Bump completely went away in about 5 days.

It has now been almost 5 months past expose and i still don't feel normal. Some days i would have a day or two of little to no symptoms but then it would all come right back. I don't know what to think. This issue has been driving me crazy. If its not herpes, then what is it? The bumps i got don't point to herpes but all the nerve pain and constant non-stop muscle twitching mainly in my legs seems to say that it may be nerve damage from herpes. I have done tons of searching on the web and I have seen ppl saying they got leg twitchings from herpes but all the experts don't seem to think its related. I take all sorts of vitamins so, i can't have any deficiencies. And i had an xray of my back to rule out spinal abnormalities. My next step will be an MRI of the spine but I'm almost certain it will show up normal.

I try to live a normal as possible life so i won't get stressed over this but the symptoms won't let me move forward. Anybody experienced these issues but never tested positive for herpes or any type of virus? Sorry for the long post but i wanted to give everyone specifics of what I'm going through. I actually left out way more information but that's just how complicated these past 4-1/2 months have been for me. Any help is appreciated.

[comfortoall]

Quite simply, I a specialist in the area of viral infections is what is needed. Herpes antibodies are not always produced to the level of detection within the first six months, and sometimes even a year.

Many of my colleagues agree with you that there are few if any studies linking Herpes II with Zoster symptoms, however, this does happen, and I have seen patients with Herpes II that exhibit classic Zoster symptoms. I have personally treated patients with lingering pain in the posterior and legs years after their first outbreak of Herpes II. Many report stabbing and shooting pains, most of these being men.

I suggest you research the Great Brittan studies on certain H II sufferers that were not helped by antivirals and indeed exhibited Zoster symptoms.

Again, nothing is more important that seeing a doctor. This is not trying to instill panic, but to rationally direct people to the proper specialist whom can help.

[venkatahelp]

You might ignore this comment just like you ignored the many negative herpes tests, but I pray that maybe, just may be, this can bring you back to living your life. I will post this for others like you and me.

I was just like you, found that cold sores are caused by herpes when I was in college, and freaked out so badly. The cause of all this was the Internet, and the fact that herpes has been associated with SO many different symptoms such as having flu like symptoms, pain etc. I kept examining my self and finally got a bump on my nose, which I knew 100% was herpes. I went in for antibody test and it came back positive for HSV 1. I was in tears over the phone but the lady did not even seem to care, she said it so casually. I said, is this serious? She laughed and said no, and that the bump on my nose is probably not even herpes related.  She continued and said you have antibodies for HSV 1 because you most likely got it as a kid and almost all of your friends are likely to have it, then the call ended. I was devastated, all from getting a bump on my nose. I did not share drinks or any contact; did not kiss anyone for 2 years because of that. I was a student in college living in constant fear and depression. It took those 2 years to finally accept that it is no big deal as I saw cold sores on so many people, including my dad.

So after 2 years, one drunken Halloween night, I had protected sex and unprotected oral with a girl. This was the first time I had sex. The morning after was one of the worst mornings ever, because fear kicked in that I might of caught herpes. I imaged thousands of scenarios. What if I kissed her, and I was shedding HSV and then she gave me oral, so it got transferred to genital, and I was drunk, so my immune system was probably weakened so BAM, I MIGHT of TRANSFERRED it to my genitals. See, during or before this encounter, I remember having a little open sore on my scrotum. I did not hurt nor itch and did not even notice until I peed. That was only time I saw it, didn't worry, never looked for it again. 2 weeks after this encounter, I RANDOMLY remembered this sore and had a heart attack thinking it was from herpes but it no longer was there. There is actually a very good chance that I dreamed this because I honestly would have worried my self to death and went to the doctor and not just casually ignored it. Also the fact that it randomly popped in my head makes me suspicious.  So I honestly think it was a dream or happened way before in my life. BUT that did not stop me from googling and reading. I felt so many of the symptoms you described, twitching, tingling, pain, soreness, discomfort in the region, burning sensation and every other symptom. I went to the doctor and described the sore and all these symptoms and he assured me that it did not sound like herpes. I went back six times; to the same doctor and 3 more times other doctors who all said nothing I descried sounds anything like herpes. But I could not take that, I kept reading forums, many on here who were like me, and kept "feeling" these symptoms and associated it with herpes. The seventh time I went, the doctor took my hand and walked me up to the university counseling center and stood there until I made an appointment.

I will now cut to the point. I lived my life like this for the past 4.5 years, in constant fear. At different occasion through out those 4.5 years, I convinced my self I transferred it to my eyes, anal area and even buttocks. Went to so many doctors, spent so much time and money. Caused so much constant stress, it is unbelievable, until one day I put an end to it.

I got a little tingle on my lower lip and I went right to the mirror suspecting a cold sore, a incredibly tiny spot, that was crusty.  I do remember cutting my self at that spot from shaving 5 days before that. But panic started to sink in and I kept pressing on the area to see if it would hurt, and guess what it started to hurt a little. More nervousness took me over. But for some reason, I decided to start rubbing and pressing on my UPPER lip. I did it for a while and focused on it and guess what? IT STARTED HURTING. Just like the bottom lip. I shut my eyes took a deep breath and finally pressed my bottom lip, at that spot, this time with an open mind, NO PAIN. I had moment that wasn’t like any other. I finally saw the power of my brain.

I wrote this in detail so it can leave a lasting impression and help you get out of the hell you are putting your self through. See we have severe herpes anxiety, which made us hypochondriacs, that is the worst and a trillion times worst than having a herpes outbreak every hour. The Internet became our downfall. We are so powerful in our thoughts and beliefs that we make the mind start feeling symptoms. If you focus on an area in such a deep way, you WILL, and I repeat YOU WILL notice symptoms. WE ARE NOT A MACHINE that stays still, we are a living thing.  There could be millions of OTHER reasons that can cause these untypical symptoms we associate with herpes. And herpes having so many common symptoms, you can always associate one or 2 with them and then the CYCLE STARTS AGAIN. Doctors know what they are talking about, they dedicated their life to help, trust them. What you need to do is tackle your anxiety and I promise you this will all stop. If there was a machine that scanned your genitals and had a proven accuracy of 100% of detecting ANY herpes EVER, and you tested negative, then may be that could ease your mind. But guess what, YOU WILL MOVE TO OBSESSING OVER ANOTHER STD. The problem isn’t the symptoms, it’s your mind. It is so extremely powerful, you make almost make it do what you want. Go look at the symptoms for anxiety, many of symptoms you describe such as twitching, pain, burning are ALL PART OF ANXIETY. It is the stress that is doing all this, the fact is we are HERPOcondriacs, and you testing negative both times on antibodies and still worrying completely confirms this. The .0000000000000000000000000001 chance that it might be herpes, who cares? Not caring is easier said than done, I KNOW. But understand that you will never know for sure and guess what, SO MANY PEOPLE HAVE IT.  It is a skin nuisance that rarely causes anything serious what so ever. If it happened anywhere else on the body, we would not care as much. Big part of fear stems from thinking we are going to spread this and that causes extreme stress. THIS FEAR STARTED AND ALL CAME FROM THE STIGMA OF HAVING HERPES CREATED BY THE OUR SOCIETY AND NOT FROM THE ACTUAL HEALTH PROBLEMS ASSOCIATED WITH IT. Why do you think cold sores and genital herpes are viewed SO DIFFERENTLY when they can come from the SAME exact virus? SOCIAL STIGMA.  Ask yourself, is this really something I should be loosing sleep and peace of mind over?

LIFE IS SHORT, go live it, it is beautiful. Your life is at the top 1% of the world, living in a country like this. Billions of people suffer from REAL problems. There might be a time when you have to deal with REAL problems such as death of a loved one or a serious illness, imagine how you would react then, when you react like this to something that causes no real health problems. You are making a living hell for yourself. I know it because I was you for 4.5 years. There is going to be a time, when we all pass this short life, it could be years from now or it could be tomorrow or it could be the next hour. At that last waking moment, your life will flash before your eyes. Make sure it’s worth watching.

[bamboozled86]

Ok, I am thoroughly confused and ultimately stressed out!! I need answers.

Went to get a repeat blood test for Herpes 1 & 2 last week because I wanted piece of mind if I had it or not (i have tested for both 3 times already, last test at 12 wks past possible exposure). Frustrated with my unknown condition, I also asked for a whole host of other tests including HIV, Gono, Chlam, Vitamin deficiencies, and even Lyme Disease. It has now been 7 months past possible exposure so I was hoping to get some definitive results. Got results today..... Everything was negative except for Lyme Disease and HSV!! My vitamin d levels were a bit low as well.

Here's the thing, the HSV test was a IGM I/II combo test and the results were 1.47. It does not differentiate the types. Now, I know by reading on here that the IGM test is flawed but is it really? And if it is, why would they still use it to test? I have always asked for a IGG test (which were all neg in the past) but for some reason they decided to do a Igm. I have already given blood for a Igg and possible WB test for Herpes and will hopefully get results on those sometime next week. I wanted to say that I'm not surprised given the circumstances and that I did have unprotected oral sex before all these symptoms came up but now I am skeptical about the test results.

Now for the Lyme Disease. The results were that the IgG Western Blot was negative but the IgM WB was positive at 1.19. The doctor says that it means that it is a recent infection. This completely caught me off guard since I don't remember being bitten by any tick recently at all.

Could I have been having Lyme disease symptoms all this time or did I indeed contract herpes and sometime later contracted lyme disease?? Can lyme disease trigger a herpes IgM test to test positive? The fact that I have had bumps appear on my penis and the prostate and urinary issues make me feel like I do indeed have herpes but can Lyme Disease been the culprit for those symptoms? And if it is a recent infection, why is there no rash or tick bite mark anywhere and why have I been having muscle pain and twitching since MAY?

Anyway, I wanted to update my thread to keep ppl informed on my ongoing saga. Any comments are extremely appreciated.

[Sparkii]

Hello, It certainly seems like a strange coincidence that you started having all these problems after sleeping with that woman.  Nerve pain is very real when dealing with the herpes virus.  Pain associated with urinating also.   If you do have it, I have read the antibodies could take a year to show up. And some people who test positive on the sores will test negative in the blood.  I wonder if you could ask the Dr. To test a sore just to make sure. I've heard they can be mistaken for ingrown hairs.  Everybody is different and your immune system is putting up a fight for something.  Best of luck to you.

[RainyDay2]

Its sad that this post is so old because I would have been able to give you all the answer you were looking for.  But I will post this for anyone who may come across this in the future.  I have almost the EXACT same symptoms as the original poster.  ALMOST THE EXACT SAME!  I am a healthy, 33 year d male that works out regularly.  I tried to have sex with a HSV2 positive female.  Condom broke almost instantly.  Was exposed for less than 5 seconds.  5 seconds was all it took for the virus to get inside my penis.  My nightmare started within the next 36 hours.  Tingling penis tip was the first sign of trouble.  Not during urination, but atter or before.  Swelling of my underarm lymph node.  Severe neck pain.  A single bump that looked like an ingrown hair but was undoubtedly a herpes lesion that appeared in my pubic region.  Then the shooting pains began.  The electrical jolts in my toes and legs.  The burning sensations throughout my body that I had never experienced before in my entire life. The palm of my right hand burned.   Nerve issues.  All caused by this virus invading my body.  Constipation for weeks. I had never been constipated like that in my life.  Diet never changed.  Intermittent back pain.  I never got any fluid filled blisters.  Just little itchy pimples in my inner thighs every now and then which probably were related to the virus.  My IGG test was negative at 6 weeks.  I will take another soon but that will probably be negative as well.  My body may not make the antibodies for quite some time.  That 12-16 month window may not apply to me. But I know without a single doubt my body is infected with HSV2.  Ive eliminated all other options, and Ive read too many accounts of others dealing with the same issues who have been diagnosed with HSV.  And Im damn near certain the original poster was infected with it as well by that encounter he described.  

[Nicholas68]

Going through the same thing, same symptoms, tested negative over 6 months after exposure negative. It’s been  over a year of misery. Dr’s don’t seem to be very experienced with these symptoms. But I’m coming to terms that it must be hsv.

[auntiejessi]

Good lord, do not come to terms that it must be HSV. It is NOT hsv. Keep working to find another cause. Don't do this to yourself.

[Nicholas68]

Thanks! I’m trying! It’s just been a year of misery and stress, I live for the good days! But don’t know what to do next? I’ve been to clinics, urologist, go, naturopath, dermatologists....

[Stevens5]

Hi there, I am going through something quite similar

[Atomic12214]

I would like to pass on what i think might be the answer PLEASE try and let me know if it works for you. Get Acetaminophen 350mg you can get at almost any drug store let me know if this works for you. Take it straight not with any other aspirin. This ingredient is in Tylenol   But get the pure stuff.

[LMD2276]

I'm in the same boat mate ! 3 months and still no answers ,

[Lost_man]

Hi guys, posted 2 years ago, experience the same as pretty much most of you. Everything & I mean everything is negative. Anyway, recently been reading about olive leaf extract & it's amazing benefits. I will begin taking this in the new year to see if the symptoms subside. I was very foolish, cleared of stds & took their word for it, now my girlfriend experiences similar symptoms. Someone needs to give the medical professionals a kick up the butt. I'd greatly appreciate honesty from them, something along the line of, "well I can't say for certain, we just don't know enough st the moment" as opposed to their nonsensical ********, you're fine, it's in your head crap!

[Jayse33]

olive leaf didn't help me. also cause upset stomach. proceed with caution. definitely take with food

[Yogalove15]

I too have experienced these same symptoms within 2 days after a sexual encounter. I have had fevers/ headaches, numbness in fingers, shooting pain at buttocks and down my legs, inflammation in my pelvis, swollen lymph nodes, chest pains and what seemed like a cut in the corner of my mouth that has scabbed. I also had a cut in my vaginal area last night though it is better today after having placed coconut oil on it last night. I'm also noticing sensitivity around my elbow and ankle. I went and got tested last week and my std tests have shown up negative.
Any answers for this would be great!

[MeinAz]

Has anyone gotten any answers to these weird / after sex /. Herpes like /. But every doc sees you and days it's not bit can't tell you what it is.  ?!!?

[robolife]

I am more or less experiencing the same symptoms though no lesions or blisters, no lymph node swelling, sore throat or anything, I have general weakness and tingling in the same location of which i had the initial single lesion.. no experts agree but the symptom is happening.

[Dj98765]

I know this conversation was a long time ago, but did you ever figure out the cause bamboozled?

[HelloV]

Hi!! A cold sore on your lip is caused by one of two herpies virus. Most likely herpies simplex type 1. HSV1 is most common in the mouth but now with all the crazy oral sex practices hsv1 can also be transmitted to your crotch. As goes the same for Hsv2 which is most common in the crotch but as I said with oral sex it can be transmitted to the mouth. So if you have had a cold sore on your lip... You have herpies. And so the nerve symptoms you are experiencing are probably from herpies irritating your nerves. I have the same problems, acutely much worse than most and it's hard to convince your doc that it's related to herpies. I haven't convinced mine yet, I'm going in again for another appointment with a shipload of informTion I have printed off the internet. It's a type of nerve disorder kinda the same as what shingles causes. Shingles, chicken pox, hsv1,and hsv2 are all herpies viruses and live in the nerves of the spine. All of them...

[Alfred170194]

Hey guys I'm currently having the same problem. Do u guys have any idea how to figure it out ? I'm suffering with muscle ache and twitching all over my body.

[Bigtimeworried55]

That's disheartening. What specific symptoms did you have? Did they continue during and up to 9 months?

When you say detected, were you confirmed positive? If so, what was your antibody count? Did you ever get sores and have them swabbed?

9 months doesn't make sense. Did you ever get a WesternBlot? I'm getting this done at 4 months post exposure next week.

[hagemarusan]

detected igg antibodies hsv1 9 months adter exposure and no risky activities in between. Symptom as the poster told..so much for a window period ...sigh

[Bigtimeworried55]

Man, read this entire thread. Give or take a few symptoms, this describes my situation to the T!! Multiple negative bloodwork, swabs, tests with no answer.

I'm curious if this person did in fact have HSV1. If he did, I honestly believe I have herpes type 1. He's literally me fast forward a year.

This sucks. Anybody ever get a diagnosis??

[Life360_Dave]

please start your own question

[catalyst233]

Infected Hsv 2 25 years ago
Hsv 1 2 years
Headaches constant muscle ache have tried most supressive medication currently Valtrex 500mg Bd Not working costant tingling, aches, Zings of pain in muscles.

[Claire_MHModerator]

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[anzo409]

dont worry, ill tell what it is ive been trought this for a year and a half to discover that was herpes, it lives in the nerves and it can deeply hide thats y no test could get trought the 9 first months but i found something very intersting called mms im not gonna say it cured me but it released the pain for almost 80 % trust me i was suffering big time.
good luck anyway i hope u not in my case.

[bamboozled86]

I have no definitive solutions yet but if you have read this entire thread, you will see that I have tested negative on numerous IGG herpes tests well after 10 months. I have had one low positive IGM combo test but am told that that result is totally useless and should be thrown out since it could be detecting antibodies from chicken pox. I also had other negative igm titer tests for both types so this contradicts the positive igm combo test. I did test positive for lyme disease and as of now, that is what i am being treated for. Lyme can cause all types of symptoms and perhaps it may have been the culprit for my groin issues all this time.

Please seek help if you are depressed. Continue to seek medical opinion on whats going on with you and ask plenty of questions. Do not take their words for it. You know your body. If you do indeed have herpes, it is in no way the end of the world. You just have to use caution. Nothing is worth taking your own life for. I know its tough and I've been there, but it gets better with time. Just continue to search for answers. Thats what I'm doing, and I'm feeling better for it.
Good luck

[realsmith200]

pls any solutions yet,cos im suffering the same thing but no solutions and im contemplating suicide. pls pls pls help

[bamboozled86]

Have you ever been blood tested for the virus and if so what were your results? you've read my posts so I'm sure you've seen that I've been blood tested numerous times since exposure but all my igg tests always come back negative. Even at 7 months past exposure. So you can see why I am soo confused about whats going on with me.

To Grace,
Here is yet another person who is saying that herpes caused her leg spasms. And I'm sure they didn't start till right after she got infected with the virus. I am truly overwhelmed with this whole saga. The more time that goes by and I'm not getting any answers from my neurologist or urologist, the more I believe that I may have hsv1 and for some reason Its not showing up in the igg test.