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lower back / hip pain and herpes
In February, I started having burning, itching and the need to urinate frequently. This began a long line of visits to doctors' offices and little idea of what is going on with my body. Lower back and hip pain on the right side added to this shortly after. Then pressure and pain inside the rectum and vagina began. In addition to numerous visits to my primary care doctor, I have been in to see several gynecologists, a urologist, proctologist and was recently referred to a pain doctor and physical therapy. The physical therapy does very little. I have been seeing a chiropractor with little relief as well. Now the pain doctor wants to do injections in the lower back. About three times in the last few years I have had a sore right above the peridium. My primary care doctor has taken a swab test for herpes in this area and near the rectum and both came out negative. Currently, I have a visible blister at the entrance of the rectum. Since this pain I begged my gynecologist to do a blood test for herpes. This blood test came out positive that I had been exposed but none of the doctors believe my problems are caused by herpes because there are no obvious blisters or lesions they have seen. I have been with my husband for nine years and he has had no symptoms representing herpes. I have been told many things through this process with doctors - I have been told I may be allergic to latex, I drink too much water, I need to use a natural detergent when washing, I have pruritus ani, I am wiping to roughly, I was put on extended antibiotics even after labs revealed no infection... This list goes on and on. In my heart I believe these problems are attributed to herpes. Can herpes cause lower back and hip pain along with all of these other symptoms and can it be reoccuring again and again? This whole thing seems to cycle continuously with my period and vaginal discharge is prevelant in the midst of these symptoms. The lower back pain seems somewhat consistent and my primary care doctor believes it is a pinched nerve. I am having a hard time accepting this. Shortly before these symptoms started (only 1-2 weeks) I was diagnosed with major depression and put on Welbutrin. Thinking there was a correlation, I even came off the Welburtin but the symptoms persisted. I am out of ideas and do not want injections of steroids and lidocaine for something that may not even be causing this pain. The cost of copays and medications are causing many problems and I don't know what to do...
your symptoms and thoughts are correct....herpes does cause hip and lower back pain,....eventually......, got herpes down there in 1992 from a drunk night with a tourist....in the beginning just the classic itchin and tingling, then the outbreak....about near 2 years ago, i woke up to hip pain... then, a small break out, did tests but the dr cant say if the pain is from hps2.....well now i feel i have about 3 to 4 episodes a year, and makes me sick, .. with itch pain in my head with head aches and general blah health....so i did my own daignosis, when i feel my back and hips pain in the nerves, i take acyclovir .... and in two days the pain in gone...i do feel that the virus has gone beyond the sacral area, travels up the spine and travels to the skull, i have tmj and after a flair up the pain i feel in my hip, goes to my jaw, my ears ring as well....yes this is a hells disease...
I don't want to get anyone's hopes up but I recently read on the Internet that Olive Leaf Extract cures herpes. At first I thought what absolute BS. I am very cynical and I really have a hard time believing things. I was desperate though and tried it. The first time it didn't work. Then a complete stranger out of the blue said that I must watch out for herxheimers syndrome (a syndrome that occurs when pathogens are released from the body which causes temporary nausea and headaches. I thought well that actually sounds like a good thing. I upped the dosage from one to two to three capsules on an empty stomach when I got to three I had an intense bout of nausea. I have not had an outbreak since. I am not sure which hsv I had but I had outbreaks on my genitals and my lips. I think I contracted it from my ex wife who used to get it on her lips. I used to get an outbreak every three months. I haven't had an outbreak for nearly six now. I also feel great I used to feel drained. The brand I used was solar but I am sure that as long as it is 500mg or more and 20 - 25% or higher (if there is higher) that it should have the same effect. I tried another brand without success but don't let that stop you. The website said you cannot overdose so I recommend starting with a low dose and building until you experience the nausea and headache. I don't know how long it will take or if it will ever cure it entirely but the absence of the blister and pain is enough for me to make this part of my life.
So here I am reading all these responses and feeling glad I bothered to google. I've had herpes outbreaks since my early 20s, the very first one found me hardly able to walk, the GP bless him enquired if I had any small spots or blisters and I was amazed. He diagnosed herpes but not any treatment.
I'm now 64 and have had many out breaks,none as bad as the first until this week when my hip began to pain me and sure enough after several days the blisters. Alas the pain eased for a few days but is back big time and walking is so painful with what I expect is referred pain in my back probably from trying to compensate. I haven't taken pks because I know from experience only really strong stuff is likely to work. I will though be seeing the GP for antivirals, I have bought many tubes of cream which helps the blisters and resisted taking the pills but if I am going to be faced with this level of pain from now on Ineed a fix. Thanks to all who contributed to this question, it's helped a lot.
I'm now 64 and have had many out breaks,none as bad as the first until this week when my hip began to pain me and sure enough after several days the blisters. Alas the pain eased for a few days but is back big time and walking is so painful with what I expect is referred pain in my back probably from trying to compensate. I haven't taken pks because I know from experience only really strong stuff is likely to work. I will though be seeing the GP for antivirals, I have bought many tubes of cream which helps the blisters and resisted taking the pills but if I am going to be faced with this level of pain from now on Ineed a fix. Thanks to all who contributed to this question, it's helped a lot.
Hi, I've just read your comment and really feel for you. Your story practically mirrors my own. I am 47 and 6 years ago I met the most wonderful man. One year into our relationship I developed blisters on my left buttock. Having been diagnosed with shingles I later discovered it was herpes. I was so devastated and cried loads as I felt so embarrassed and didn't want to tell him. I think this must have been from my ex-husband who used to get cold sores. I want to reassure you that he was so lovely and understanding and has supported me through recurrent outbreaks, that have only been on the buttock. He has not contracted it and we are very careful. We are getting married this June. So please be encouraged that this is something that can be overcome and we just say I've got a cold sore on my bum! I cover it with a dressing, take antivirals and get on with life until it clears up. If he is a decent and loving man you'll get through this. Take care
To all on this blog. I have been having small outbreaks on my left buttock. I had my first one last year "May/14",went to emerg and they diagnosed me with shingles due to the fact I was under extreme stress and the doc told me my immune system weakened. So about 3 months later I had another OB in the exact same area, so went to my doctor this time. My doctor also told me shingles, then another OB 2 months later, in the exact same place "left buttock". So off to the doctor again and he took a swab this time, it came back undetected as there was not enough culture on it I guess. Now as I sit here wiriting this I have gotten another OB just today, exact same spot once again. I am very scared as I have read that if you have Herpes 2 you could possibly have HIV as well. I have a req sitting on my counter for the past month to go get blood tested for Herpes, but I am too scared to go get it done. I am crying right now as I write this. I appreciate all of your stories that I have read. I have been single for 4 years and have just recently met a super nice man and now here I probably have herpes, I feel I should just tell him I can't see him anymore and just be alone for the remainder of my life as I am to scared to pass this on to someone. I am a 55 year old woman and feel just sick to my stomach about this all. It is not a fun thing to deal with. I am pretty sure I do have Herpes even though I have not had the nerve to get tested. I will get up the nerve to get it done, I know I will. Thank you all for reading this. Any suggestions on whether or not to pursue this new relationship??? Thank you.
I have a similar situation. The ONLY thing that helps is high doses of Antivirals. I was prescribed 1.6 grams (two 800 mg) three times a day. It gave me a little bit of diarreah but it was worth it to get out of pain.
I have Viral Sciatica from Herpes. Pain in Hamstrings Calves and feet. Lower back and Hips. Rarely get blisters. If it were not for Antivirals, I'd be in very serious trouble.
Problem with herpes, no one knows how YOUR immune system will react to it. It actually does kill people if it gets into the spine and brain aka Encephalitis and Meningitis. For me, it's a horrible disease that causes me great pain. I take a lot of pain killers (prescription) but they do not help much. Best remedy is a clean diet, low stress (almost impossible these days) and high antivirals. Thank GOD for Antivirals. We need a cure for this disease. It can be debilitating.
I have Viral Sciatica from Herpes. Pain in Hamstrings Calves and feet. Lower back and Hips. Rarely get blisters. If it were not for Antivirals, I'd be in very serious trouble.
Problem with herpes, no one knows how YOUR immune system will react to it. It actually does kill people if it gets into the spine and brain aka Encephalitis and Meningitis. For me, it's a horrible disease that causes me great pain. I take a lot of pain killers (prescription) but they do not help much. Best remedy is a clean diet, low stress (almost impossible these days) and high antivirals. Thank GOD for Antivirals. We need a cure for this disease. It can be debilitating.
your symptoms and thoughts are correct....herpes does cause hip and lower back pain,....eventually......, got herpes down there in 1992 from a drunk night with a tourist....in the beginning just the classic itchin and tingling, then the outbreak....about near 2 years ago, i woke up to hip pain... then, a small break out, did tests but the dr cant say if the pain is from hps2.....well now i feel i have about 3 to 4 episodes a year, and makes me sick, .. with itch pain in my head with head aches and general blah health....so i did my own daignosis, when i feel my back and hips pain in the nerves, i take acyclovir .... and in two days the pain in gone...i do feel that the virus has gone beyond the sacral area, travels up the spine and travels to the skull, i have tmj and after a flair up the pain i feel in my hip, goes to my jaw, my ears ring as well....yes this is a hells disease...
Hello everyone, Well today I went to my Dr. because I too have had this awful persistant pain in my left hip for the last 2 weeks. Well about 6 months ago I was diagnosed with Herpes 1 and 2. This diagnoses after previously being mis-diagnosed with everything from Steven Johnson's Syndrome to Erythema multiforme. At first I thought I was having this pain because my period was coming because I had this pain previously last month as well and after my period it went away. Well this month it did not! So long story short, today a new doctor at the office diagnosed me with shingles! She said that this is not suprising though, due to the fact that Herpes, Shingles as well as Erythema Multiforme and the like are virtually all the same kind of virus. They are all basically related to the Chicken pox virus. The difference this time and the dead giveaway is the pain in the hip and back. Shingles effects the nerves in your back and hips and sometimes you will have a breakout of a rash and sometimes you will not. This time I had very few blisters. Other times I have had a million blisters but I have never had this kind of pain before. The Dr. stated that Shingles usually appears after a person becomes older, I am now 50 Y.O. At any rate I was prescribed Acyclovir. I hope it works! I hope this is of some help to someone out there.
Good luck and take care!
Good luck and take care!
Low back pain comes and goes on left side of spine. Had shingles there 20 years ago. If too much arginine or I become ill from a cold or flu, I develop severe debilitating pain that puts me in bed. Lysine and Vit C mega dose every 2 hours get me past crisis in 24 hours. No blisters ever show up but I know this is a Varicella Zoster recurrence from the level of pain.
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Get a culture test for herpes. The ER doc told me I had shingles, but the test came back as herpes type 2. Shingles does not come up and go, but herpes I and II does.
I have severe hip pain on my right side when I am fighting a herpes outbreak. Yes.. Drs. Will say **** like if they don't see lesions then its not herpes. I don't believe that. I think it has attached itself to the nerves or whatever on the inside of my hip. I believe it may have damaged it also because that hip is in chronic pain. But! It flares up and I have severe pain during my fighting outbreaks. I try not to let it break out so I am in suppressive meds. Where I am suppose to take it everyday. I have it more than the average person. My lower abdomen and right overy area hurts badly as well and I get what I've heard them call herp headache.. This disease does suck. Along with all my other ****. I hope someone gets this. It is old I see. Thought I'd add my input and glad I found others with the same hip problem. Drs. Are so unaware.
I have had herpes for over 20 years. I hardly ever get actual blister outbreak but I am on valtrex for suppression. What does still happen however is that occasionally, I get shooting stabbing pains (usually in my feet, sometimes elsewhere) that I think is the virus activating. This has happened for close to 15 years and my partner that had this had the same issue. It feels like a pin is getting stuck in you. In addition, when I do get an outbreak I do not get blisters but it feels like the skin got pulled off and my nerves are raw from my genital area through my buttocks and down my leg. It is always on the left side. Very painful. Ibuprofen and upping the valtrex seems to tamp it back down. I tried going off the valtrex because I have depression issues and that can be a side effect but I had a bad recurrence which is depressing too....Anyone who has this, please be honest with partners. I got this from my first encounter in college and he didn't tell me what he had. I have a lifelong horror because of it. Not cool.
I am experiencing my first outbreak of cutaneous herpes on my upper right buttock. I am 62, not sexually active and was very surprised when the diagnosis of the two blisters (one large and one small) was herpes. The lesions were preceded by low back and hip pain for about a week, that was causing me to limp when walking. I assumed it was due to my degenerative discs and never thought of herpes. When the blisters and redness appeared I immediately thought shingles, of which I had an outbreak 6 years ago on the same side but along my waistline. During the holidays I was eating more nuts and chocolate which could contribute to an outbreak, according to what I have read. What a drag...I am taking the anti viral and hope it clears it up and hope this isn't the beginning of a recurring problem. I also have chronic itching on my upper left arm which I know is nerve related. That has happened in the past and I found a label for it: brachioradial puritis...the only thing that stops it is ice. So I lay in bed with a burning hip/butt and an ice pack on my arm. MISERY
I have had H for 3 years now. I have constant buttock and leg pain. The pain runs from my buttock down the back of my leg and through my calves and into my heel area. Sometimes I have hip pain. It's definitely herpes as it came on about a week after my first outbreak. I have only had two outbreaks in three years, but I have pain every day in my buttock and legs. It's not debilitating, but it has really destroyed my life and I can't ignore it. My doctors have tried antivirals, pain meds, and even anti depressants. Nothing really helps with the pain except exercise..... WHEN I am exercising. When I stop the pain comes right back.
The person whom gave me this horrid disease said "it's no big deal, just a little itching". This may be true to SOME. It's different for everyone, but for me, it's been three years of hell. I can't imagine the rest of my life like this, but that's what I am in for unfortunately. I wish you all good luck. We need a cure. Let's hope and pray. Someday.
The person whom gave me this horrid disease said "it's no big deal, just a little itching". This may be true to SOME. It's different for everyone, but for me, it's been three years of hell. I can't imagine the rest of my life like this, but that's what I am in for unfortunately. I wish you all good luck. We need a cure. Let's hope and pray. Someday.
Whenever I consumed a lot of sugary foods like ice cream, cookies, candy and such, I would break out with sores around my nose and inside. They were very painful to touch and would last for weeks. Lately I have not had these sores but have pain in the buttocks and lower back is sore and painful with spasms and pain down the back of both legs. If I lie down and go to sleep,the pain is so excruciating it takes a long time to slowly get out of bed. Once I can get up the spasms slowly subside as I walk and move around. I had numerous back surgeries for pain and was told it was a herniated disk every time except the last time showed nothing on the x-ray, but they did the same operation anyway and the pain was relieved. I am 64 and have no money for co pays and doctor visits and cannot stand any more painful tests that go on and on with my diagnosis the only one that makes sense. Diet and stretching exercises and yoga seem to be the only thing that works between flare ups that do not have any side effects like meds. Also if I consume too much beer and wine it seems to cause a flare up. Hope this helps someone.
Hi everyone, I have the same hip/back pain you all have described. However I have constant outbreaks inside my nose(crazy right?!?) and on my face and neck(nothing genitally). The hip/back pain is mild and constant but when I have outbreaks(every 2-3 weeks) the pain in my hip/back get worse. I am only 22 and I was in very good physical shape. However, after getting the hsv I noticed that my joints hurt all over my body especially my hips, knees and lower right back. I absolutely cannot sleep lying on the left side of my body or lying on my back. I have constant stomach aches. I can no longer sit still for longer than 10 minutes without having to move around and try to alleviate the back pain. Overall I constantly feel physically unwell most of the time now. It's kind of like you're always a little bit sick. Everything began with a 3 week period of flu like symptoms, headaches, night sweats, sore throat. I don't know how much of this has to do with the hsv but it seems strange that it all started at the same time. Every problem I described started withing that 3 week period. Before this I was in 100% perfect shape. I could run 5 miles without even breathing heaving. Now I struggle to run 100 yards without extreme pain in my back/hip. I've had no damage from a sudden impact or anything like that. Also, a medication I had been taking successfully(something completely unrelated) for 8 years suddenly stopped working. My doctor didn't seem concerned about it and said that my nervous system and the neurons in my brain had probably changed as I got older. But this was not a gradual change. This medication has worked for 8 years without fail and then almost completely stopped working over a 3-4 month period following my initial outbreak. I know the herpes virus has a lot to do with the nervous system and I feel like this occurrence could also related. I also feel like most doctors are CLUELESS when it comes to diagnosing any form of herpes. Has anyone else had similar experiences?
I am currently waiting on my test results to see if I have herpes. However, I have ALL of the signs. The first couple of days, it all staeted with a strange discharge. I haven't seen my boyfriend for a few months and it's been a while since we had sex. After he left, that's when it all started.it all started with a cold like symptom. I thought I was catching a regualr cold. Then the discharge came (thought it was from all the sex we had) Then afterwards, I saw a coulple of blisters that hurt like hell when you touched them.I made a appointment the very next day, and my doctor said he believes I have herpes. My boyfriend says he is clean and etc. However, if he was..then why am I going through something like this?? He and I have taken several blood tests before and we both came out clean. However this time around, I am having these problems. My doctor told me he was going to treat it like herpes and put me on medication for it. It didn't help at first, but after a couple of days the pain went away. I was legit scared to use the restroom because it was like peeing acid and I would cry and scream because of the pain. Now, it isn't so bad anymore(I believe it is because the medication is working) I am praying it isn't herpes and my significant other did not give me anything. However, everything I have read. The medical professionals I have talked to, confirmed that it is a possibilitly I have contracted herpes from my current partner. I get my results tomorrow, and I would love to know what anyone thinks at this point. I am very scared, and do not know what to do.
How do you consider it an outbreak if you had no visible signs? An outbreak in fact is symptomatic. Hip pain alone would not be herpes.
How were you diagnosed?
How were you diagnosed?
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How would you know? You are SO wrong. you don't need to have visible signs to have an outbreak. I usually get unbearable back pain and in less than one week i get cold sores
I too just had a bout with a breakout although I have no visable signs....took some medication for relief and now have so much pain in my right hip......don't know what to do AND if Herpes is causing the hip pain although all other symptoms have gone away!!!!!!!!!!!!!!!!!!!!!!! this disease is "HIDEOUS" and a HELL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! It is like a bear in a cave so to speak....you never know when its coming out!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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you are so right, it hits you when you least expect it. You go a month with no outbreaks or pain only to have the pain sneak up on you when you least expect it, followed by an outbreak of cold sores a couple days later
Have you had any luck with your diagnosis? Reading your entry is almost just like my problems. My hips and buttocks just kill me and it is hard for me to sit down. My doctor, as it seems as yours, is telling me the pain is coming from my back, but I really don't believe it is. I would love any comments from anyone. Thank you!!
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i get the most unbearable pain in my back about 2 days before an outbreak. I cannot make myself comfortable, whether I sit, stand, or lay down, makes no difference, and there is no pain pill that really relieves this pain, I just have to let it run its course. I take 2 grams of valtrex daily, this would be a chronic condition without the valtrex. I've always had cold sores, when i was young, once they healed, I'd go into remission for years at a time. But when they diagnosed me with diabetes, it seems like I cannot get rid of it and at least once every couple of months (i'm lucky if it goes that long with no outbreak or pain) I get this.;
I am 53 years old and contracted herpes when I was 23. I still have attacks and have exactly the same pain as you, though I no longer get blisters near my vagina. They occur on my buttocks and the pain I have at the moment is lower back and hip...pain now is like electric shocks. Persist with the herpes tests and get some help!!! Sorry to say this, but your husband may have contracted this - my ex gave it to me...
Geraldine
Geraldine
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Herpes spreads by oral, vaginal and anal sex.
Herpes sores blister, then burst, scab and heal.
STIs are the most common cause of genital sores.
Millions of people are diagnosed with STDs in the U.S. each year.
STDs can't be transmitted by casual contact, like hugging or touching.
Syphilis is an STD that is transmitted by oral, genital and anal sex.
