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cysts after hysterectomy
in 2005 i had a full hysterectomy due to many many years of endo and cysts. in 2007 i had abdominal pain that i knew all to well. but i was shrugged off saying it was in my head. in feb. 2008 the pain came back again. i had ended up in ER and they did a MRI and siad my left ovary looks normal. after i got over the shock i told him he was wrong to look again. he said thats what the report shows i went to an GYN and he dismissed me and said he would have a talk with the radiology head and get to the bottom of it cause it wasnt possible. duhhhh. well long story short i went in for surgery and had a endo filled cyst removed from the spot where my left ovary should have been. well feb. 2009 that pain we all know all to well was back. my doc tells me to go home and put a heating pad on it my stomach it would feel better. its not female related problem. two days later i ended up in the ER and guess what the MRI scan says my left ovary looks normal. WHAT... My question is why does this keep happening my doctor told me in the beginning that the hysterectomy would fix this. but it didnt and i want to know why, i gave up the chance to be a mother again. i wanted a second child but i couldnt go thru any more surgeries one a year for 5 years was enough.
I have had uterus and cervix removed 11 years ago and my ovaries and fallopian tubes plus 1 pelvic cyst removed 7 years ago.I was put on hrt 8 years ago before my ovaries and fallopian tubes were removed. 6 mo after everything was out a new pelvic cyst grew on my cuff. Because of how many surgeries I have had down their the dr was worried about scar tissue and chose to remove fluid from the cyst instead of removing the cyst. At 5 years later they found a second cyst right next to the 1st one. So far they wont do anything for it now I changed hospitals to mayo clinic and hopefully they will remove the cysts. Its possible tho I could have a third one. I took a year off of the hrt to find out the cyst still grew without hormones. So they don't think the cyst is due to HRT. Any clue to why this happens? I have never had endometriosis. When they aspirated it before it showed lactobacillus,which comes from the intestines as far as I know; in the lab results.
1 Comments
I am sorry you are dealing with this. Endometriosis came to mind as I read your post. But since you said you never had it, I don't have a clue what could be causing the cysts. Is it possible you had endo and didn't know it / surgeon didn't diagnose it? It is my understanding that it isn't identifiable by some surgeons or not biopsied hence not diagnosed. What are your symptoms?
I also had a hysterectomy and ovaries removed. :( It has caused problems but not cyst formation (that I know of anyway).
Please post back and let us know what you find out from your surgery at Mayo. I hope your surgery and recovery go well.
I also had a hysterectomy and ovaries removed. :( It has caused problems but not cyst formation (that I know of anyway).
Please post back and let us know what you find out from your surgery at Mayo. I hope your surgery and recovery go well.
unfortunately if it's endometriosis the only way to get rid of it is to cut out the disease at the root....I too had a hysterectomy with ovaries removed and continued to have endometriosis destroy my pelvis...it was everywhere...I lost half my colon, part of an adrenal gland, my gallbladder, appendix...it has been up my ureter and on my bladder...all after having had a complete hysterectomy...now I have had the disease removed by a TRUE endometriosis excision specialist and am doing pretty well despite the damage done because of being dismissed by dr.'s for decades..so please see and endometriosis specialist and have the disease excised...yes endo can grow without female organs...it actually sets up its own nerve and hormone supply factory....which is most likely what is going on with you...your endo is still in there doing it's thing because most dr.'s don't understand the disease well enough to do more then make things worse..get to a specialist!
I'm afraid I have the same problem. Ovaries and uterus all removed in Oct. 2013 and now I'm almost doubled over in pain just left of center where my uterus was (and presumably left ovary). I have a call into my doctor (not the one who performed the hysterectomy), so we'll see. Pain is increasing a little and becoming more constant. I'm curious as to everyone's hysterectomy procedure?? My doctor used a Veress needle and a Thunderbeat instrument on both ovary removals during the surgery. Did anyone else have these instruments used yet have had a post-hysterectomy cyst too?
Removal of any part of the "reproductive" system (our parts are for much more than reproduction) can cause problems with the remaining parts. That is true of any system - remove or otherwise alter the system and its functions are "crippled." That is why the ovaries oftentimes do not function properly after the uterus is removed. This can cause cysts to form. It can also cause the ovaries to stop functioning completely. INTACT women's ovaries produce hormones into their 80's for good health and well-being.
Another mechanism of pelvic discomfort or pain after pelvic surgery is scar tissue (adhesions). Removal of the uterus also causes displacement and dysfunction of the bladder and bowel which can be uncomfortable or painful.
Hysterectomy also destroys pelvic skeletal integrity. The spine compresses, hip bones widen, and the rib cage falls onto the hip bones. This altered anatomy causes back, hip, and rib cage pain over time as well as the post-hysterectomy belly and loss of the curve in the lower back.
Another mechanism of pelvic discomfort or pain after pelvic surgery is scar tissue (adhesions). Removal of the uterus also causes displacement and dysfunction of the bladder and bowel which can be uncomfortable or painful.
Hysterectomy also destroys pelvic skeletal integrity. The spine compresses, hip bones widen, and the rib cage falls onto the hip bones. This altered anatomy causes back, hip, and rib cage pain over time as well as the post-hysterectomy belly and loss of the curve in the lower back.
I am starting to believe a study is needed I too had a total hysterectomy...and have been having pain in the same area the cyst use to be now they take a cat scan and see something that looks to be a cyst. I believe it is one. Doctors need to stop being so close minded and think out the box: things happen. Now I sit around in pain and its not fair.
Hmmm - So they did a "complete" hysterectomy (uterus, ovaries, tubes) because you had an ovarian cyst? Yet they could not remove the cyst? Maybe I am misunderstanding.
I am in the hospital right now , 6 weeks after a complete hyster with a non-infected cyst that came from........no one knows!!! They drained it and will probably have to drain it again but leave it in. Where do these come from and will they keep coming back?
Hi, I think I understand your question but to clarify please when you say you had a complete hyster you do infact mean they took your ovaries and fallopian tubes as well as uterus and cervix correct?
I find it very odd indeed that a cyst was in exact spot where ovary used to be..heres my "theory" it happens, drs can leave a sliver a small small portion of ovary , this can be due to any surgical difficulty, it is called an ovarian reminant, this can still produce trickles of hormones and thus,,,,cysts to a person like you prone to cysts
ask your dr his thoughts on this theory if, he perchance performed your surgery he is not likely to admitt any possibility of this,,,
also I dont like the idea of er telling you to go home and use heat..heat can be a really really bad thing,,if a cyst was about to rupture what would heat do help it to rupture,,heat increases swelling and bleeding,,try and ice pack next time, see if it helps better, ice doesnt sound comforting but it really is effective for many types of pain.
I dont have an answer as to why,,but do not stop looking until you find it. I had a situation w my neck it took me 3 years and I had to go from nice to down right mean to get answers so if Nice isnto working get pushy do what you must.
C
I find it very odd indeed that a cyst was in exact spot where ovary used to be..heres my "theory" it happens, drs can leave a sliver a small small portion of ovary , this can be due to any surgical difficulty, it is called an ovarian reminant, this can still produce trickles of hormones and thus,,,,cysts to a person like you prone to cysts
ask your dr his thoughts on this theory if, he perchance performed your surgery he is not likely to admitt any possibility of this,,,
also I dont like the idea of er telling you to go home and use heat..heat can be a really really bad thing,,if a cyst was about to rupture what would heat do help it to rupture,,heat increases swelling and bleeding,,try and ice pack next time, see if it helps better, ice doesnt sound comforting but it really is effective for many types of pain.
I dont have an answer as to why,,but do not stop looking until you find it. I had a situation w my neck it took me 3 years and I had to go from nice to down right mean to get answers so if Nice isnto working get pushy do what you must.
C
1 Comments
Hi Cherie,
From what I understand/how it was explained to me by medical professionals and from the medical literature I have access to (I work in the veterinary field and I'm currently working on a master’s degree in public health which includes medical terminology (mis)communication and comprehension), the medical terminology used for the various types of hysterectomies can vary somewhat depending on the country as well as the medical field in which you work.
A partial hysterectomy can be described as the removal of the uterus only while a complete or total hysterectomy would include the removal of both the uterus and the cervix. Dr's/surgeons/OBGYNs will greatly differ in their approach to hysterectomies when it comes to the removal of the cervix. Some will not remove the cervix unless there is an obvious reason to do so because its removal can cause issues such as further build-up of scar tissue and increased pelvic pain. Others will advise to remove it/opt to do so as part of their protocols as this can eliminate the risk of cervical cancers, especially if a patient is taking HRT (although the medical literature seems to indicate a slightly higher incidence/ risk of maligant ovarian cysts vs cervical cancers in patients taking exogenous hormones ie. HRT/other hormonal therapies such as contraception or Lupron, especially if they are already prone to cyst formation). Another benefit of removing the cervix is that one won't need anymore pap smears!:D (it is important to note however that benign cysts, malignant growths and/or endometriosis can still develop in that area where the cervix once was or the pelvic cavity including the bladder and other organs of course. Hence why hystos aren't always a 'cure all' for most and reoccurring growths shouldn't be taken lightly, especially if one is taking hormones).
The removal of the uterus, cervix and the fallopian tubes/ovaries is generally described as a radical hysterectomy.
I was advised to keep my ovaries so that I could avoid HRT but I was a bit wary since hormones seem to play into endometriotic tissue formation in the first place (were my ovaries the issue to begin with?) and I was concerned of the risk for the endo spreading/cyst formation on the ovaries if they were left behind (although at the time, they seemed fine. It was the uterus and bladder that were affected). I thought to myself that maybe I should have gotten a radical done instead of a complete hysto so that I could avoid needing more surgery down the road but the Dr. refused (and I can see why, HRT has its own set of issues). 4yrs post-op and I am pretty sure the endo has returned and quite possibly a or several cysts. Would having a radical done made a difference? Idk. Would having to take HRT increased the chances of cyst growth too? I guess it's a double edged sword...
I will agree with you that an ovarian torsion or a ruptured cyst can be very serious. I too was made fun of and went around the wringer for years before I finally got my 1st lap out of 2 and only then was I taken seriously when they could actually visualize the extent of the endometriosis, cysts and surgical clips that had migrated and implanted themselves into the uterus from a previous liver surgery! (Duh! And you guys were wondering why I was in so much pain... ). When I requested a hysterectomy after everything else I tried failed, Dr's were extremely reluctant with a lot of them stating 'Are you sure? But you're so young. Don't you want kids?'. It was one of the most frustrating experiences ever but once I got the hysterectomy, you couldn't pay me to go back. Has it been perfect, no. Has it come back? Most likely and they warn you about that but that hysterectomy allowed me to live my life for a few years without being curled up nearly daily in the fetal position from being in so much pain as well as not bleeding for months on end (Ps. Not all supplements are the same as some are more bioavailable than others. Some iron supplements will be better absorbed by the body so I would talk with your physician about which one may be best). I truly was at the end of my rope. And if I may, I will also add that as someone with an 'invisible' auto-immune disease to boot, yes, it sucks to go through all of that! It is soul breaking but the squeaky wheel gets the grease. You just have to push on through no matter what until you get the care you deserve. Trust your bodies ladies no matter what. ❤ Some Dr's can be horrible sometimes but there are some good ones out there too!
From what I understand/how it was explained to me by medical professionals and from the medical literature I have access to (I work in the veterinary field and I'm currently working on a master’s degree in public health which includes medical terminology (mis)communication and comprehension), the medical terminology used for the various types of hysterectomies can vary somewhat depending on the country as well as the medical field in which you work.
A partial hysterectomy can be described as the removal of the uterus only while a complete or total hysterectomy would include the removal of both the uterus and the cervix. Dr's/surgeons/OBGYNs will greatly differ in their approach to hysterectomies when it comes to the removal of the cervix. Some will not remove the cervix unless there is an obvious reason to do so because its removal can cause issues such as further build-up of scar tissue and increased pelvic pain. Others will advise to remove it/opt to do so as part of their protocols as this can eliminate the risk of cervical cancers, especially if a patient is taking HRT (although the medical literature seems to indicate a slightly higher incidence/ risk of maligant ovarian cysts vs cervical cancers in patients taking exogenous hormones ie. HRT/other hormonal therapies such as contraception or Lupron, especially if they are already prone to cyst formation). Another benefit of removing the cervix is that one won't need anymore pap smears!:D (it is important to note however that benign cysts, malignant growths and/or endometriosis can still develop in that area where the cervix once was or the pelvic cavity including the bladder and other organs of course. Hence why hystos aren't always a 'cure all' for most and reoccurring growths shouldn't be taken lightly, especially if one is taking hormones).
The removal of the uterus, cervix and the fallopian tubes/ovaries is generally described as a radical hysterectomy.
I was advised to keep my ovaries so that I could avoid HRT but I was a bit wary since hormones seem to play into endometriotic tissue formation in the first place (were my ovaries the issue to begin with?) and I was concerned of the risk for the endo spreading/cyst formation on the ovaries if they were left behind (although at the time, they seemed fine. It was the uterus and bladder that were affected). I thought to myself that maybe I should have gotten a radical done instead of a complete hysto so that I could avoid needing more surgery down the road but the Dr. refused (and I can see why, HRT has its own set of issues). 4yrs post-op and I am pretty sure the endo has returned and quite possibly a or several cysts. Would having a radical done made a difference? Idk. Would having to take HRT increased the chances of cyst growth too? I guess it's a double edged sword...
I will agree with you that an ovarian torsion or a ruptured cyst can be very serious. I too was made fun of and went around the wringer for years before I finally got my 1st lap out of 2 and only then was I taken seriously when they could actually visualize the extent of the endometriosis, cysts and surgical clips that had migrated and implanted themselves into the uterus from a previous liver surgery! (Duh! And you guys were wondering why I was in so much pain... ). When I requested a hysterectomy after everything else I tried failed, Dr's were extremely reluctant with a lot of them stating 'Are you sure? But you're so young. Don't you want kids?'. It was one of the most frustrating experiences ever but once I got the hysterectomy, you couldn't pay me to go back. Has it been perfect, no. Has it come back? Most likely and they warn you about that but that hysterectomy allowed me to live my life for a few years without being curled up nearly daily in the fetal position from being in so much pain as well as not bleeding for months on end (Ps. Not all supplements are the same as some are more bioavailable than others. Some iron supplements will be better absorbed by the body so I would talk with your physician about which one may be best). I truly was at the end of my rope. And if I may, I will also add that as someone with an 'invisible' auto-immune disease to boot, yes, it sucks to go through all of that! It is soul breaking but the squeaky wheel gets the grease. You just have to push on through no matter what until you get the care you deserve. Trust your bodies ladies no matter what. ❤ Some Dr's can be horrible sometimes but there are some good ones out there too!
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