Ok this is one thing that I have found I also have IC, and I am going to miss spell some things help but hopefully your get the hide. (hubby's asleep he's my spell checker) have they checked you uterus, to see if it moves. The reason why I am saying this is because mine does they had a blasted when I delivered my daughter. when it is tilted I do not even try to sit down it hurts so much. my hubby helps me lie down. and I have found that heat helps the best. also and this might not help you but it does me. my husband's butt. I curl up behind him and I have his butt right under my boobs, the pressure helps enough with the pain that I can sleep. Oh and I cann't take the meds that they use to treat IC so thats why my stuff is different. sorry if I scared you diddn't mean too. I'm just so happy that I have found some people with IC to talk to. good luck.!!!!
I hate to ask this question but can your guys describe the pain. I am really doubted that is IC i have . My pain feel like someone put a knife in my vagina and twisting and turning the knife. My uterus feels like it wants to come out .Sorry to be so graphics
Have you considered nerve entrapment? Pudendal Nerve perhaps?
Have you had kids? the reason why I ask is because my pain is like giving birth over and over again, the sad part is that it shows as contractions. every month ... oh and I'm fixed. so we know that a baby is not the problem.