no answers

[tnt1984]

30 yr old male, sexually active. Around jan 17 i had frequent and constant urge to urinate. Jan 19 went to ER, they treated me for Gon and chlamydia. Frequency never stopped. Went to dr got tested for gon chlamydia and came back neg. Went to urologist and tested me for chlamydia, ureaplasma, Mycoplasma, gonorrhea. All neg.  Cultured urine 3 times no infection found. During this time urethral discomfort, and occasional small clear discharge. Had ultrasound on bladder, kidney, doc said everything seemed fine. Also prostate exam, doc said seemed fine. Went to an std clinc, told story, they gave me antibiotics for trich. Symptoms still persisted. I went and got herpes type specific blood test which came back neg for hsv1, equivocal for hsv2. Retested 2 weeks later, neg hsv2 .20, neg for hsv1 .25. By this time, symptoms felt much better, only irritated went i ejaculate. Went and got a second opinion from different urologist, put me on doxycycline for 2 weeks, symptoms better, but still after i ejaculate seems to irriate urethra a litte, got a second course of doxy, and i almost feel 100% but i masterbated once this week, felt ok. Waited 2 days, did it again, and have a little irritation again. Please help me. Its been 3and half months. This irritation seems to linger, i dont know what it is, i feel my sexual history is low risk. Really messing with me mentally.

[Rubin59]

I have had frequent UTIs for many years.  Then the UTIs came without an infection.  Then the diagnosis of IC.  Wow my life has gone down hill.  How do you stay positive?  If any of you are married, how do you keep it going?

[ipurr2]

I do understand the trying to figure out what's wrong...it took me 13 years of actively seeking help from dr. (not on IC but on Endometriosis) only to be treated like a head case...by the time they did listen and find it I had so much damage...they removed organs but not disease so then it took me another 7 years to get a dr. to believe my endo was still inside and sure enough it was...and it has caused extensive damage...so I am now 24 years in to be well...I have the diagnosis but have not found the cure...;) I don't look as hard now for the diagnosis but do seek to feel well as my body has been broken down to many times by disease and surgery...so keep seeking answers, trying things to help and most of all tune into your gut intuition...it will guide you well! Don't give up hope...because it can and will get better you might have set backs as it seems when we have health issues flares go with the territory...just keep working to get to your best place and don't give up...even with all that my body has gone through and continues to go through...it is better in some ways then it was...;)

[tnt1984]

Thanks for the advice. Im going to try probiotics. Im just upset because i havent found the cause for this.

[ipurr2]

it could be hypertonia of the pelvic floor muscles causing this as you have been dealing with lots of tests, meds and stress from all this sometimes this makes our muscles and nerves begin to miscommunicate...so you might seek a physical therapist who specializes in pelvic pain...this could be all you need to get back on track.
Also, you might try taking probiotics for a while as you have been on antibiotics often and they do not distinguish good bacteria from bad bacteria they just kill them both so you might want to replenish the good bacteria see if that helps...also perhaps Prelief would be helpful...it's an over the counter medication? it helps with cystitis (inflammation) pain...you might also try Epsom salt baths as the magnesium in the Epsom salt and the warm water will help relax the muscles of the pelvic floor...when the burning is really bad put some form of ice on the urethra area...(with clothes between your skin and the ice...don't want to frostbite anything!) this should bring the pain under control at least temporarily. Your body has been through alot so give it a chance to heal...