My son was recently diagnosed with having evidence of an anomalous right coronary artery coursing between the aorta and pulmonary artery. The cardiologist explained that a right coronary artery appears to connect with the proximal main pulmonary artery. He also said that this can be fatal. He was given an echocardiogram and a MRA/MRI.
The cardiologist said that my son will need a catheterization. He also said that this condition is very rare and so they will not be able to deal with this problem so he recommended that I take him to the Boston Children's hospital after the catheterization. I tried looking on the internet for information about but I was not able to find anything. The doctor did tell me that I will not find anything about it because it is so rare.
The results also showed that my son also has:
heart click
mild mitral regurgitation
Systolic Murmur: Grade 2/6 systolic ejection murmur along the left sternal border to apex
1st Heart Sound : Single
2nd Heart Sound: Normally split.
1. Could someone please explain these problems to me in layman's term.
2. Please tell me the chances of him dying from this?
3 Please tell me if there are treatments available for this conditon.
4 Do you think a catheterization is absouloutely necessary. What are the risks involved? I am extremely scared and worried. Please give me some advise.
Thanks in advance.