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PLEASE SOMEONE HELP ME :( SECOND TRY FOR HELP

Hello all, this is my second try for help as im at a loss, below is a copy paste of my first question to which i had no response and im hoping someone can help and advise me.

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Hello all

within the last 9 months my daughter has had several lypmh node issues first started off as groin, she had 2 large swellings and after 2 weeks fluid was drained from behind 2 lymph nodes each side they were left to heal inside to out without stitches.... they do not know why this happened. She was very poorly, pale, glassy eyed, continous clear fluid running from nose, always complaining of belly ache. Very emotional easily upset, very lathargic, sleepless nights, bed wetting.  Since having 3 operations 7-9 months ago ( they operated on the lymph nodes 3 times ) she has had same issues, as explained above less the groin swellings but now has lymph nodes swollen in her cervical (neck)  area each side with the right being more then the left.... from top to bottom.... she has no apparent throat infection however she has been treated with anti-biotics but still has the swellings, she was reffered to an ENT specialist who said he feels its not tonsilitus as she doesnt have the symptoms but is going to remove her tonsils and he feels they are chronically inflamed.... he said she could also have swollen lymph nodes in her tummy hence why she always complains of tummy ache.... im worried that this could be lymphoma as ive never seen a child have 4 operations on lymph nodes within a year she is only 5.  

Can someone give me advice about this, help me in what to do or say to the doctors, as i feel for my daughter whos ill every few days, whos always emotional, always pale, and now always wetting her bed at night.

Thanks :(

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Since writing this she has had a terrible time going from thriving to poorly, pale emotional you name it everything has gone bad this week, she has once again a clear fluid running from her nose continous, she has started sleep walking and wet her bed 5 times last night dispite being lifted to the toilet at 1030-11pm.  We have had very bad temper yesterday she didnt know why she was acting the way she was. There is still no news of her tonsil op as yet.
Her armpits looked swollen yesterday im not sure if this could be a lymph swelling?

please help someone =o(
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Avatar universal
Hi and thank you for your comments, last year when she had the op only one so i was told node was removed because the first time it happened they didnt remove it they told me the results were normal but showed puss signs??? i know puss was drained both sides.
My mum is a celiac sufferer and my daughter doesnt have any of the systems associated with celiac her stools are normal, she doesnt have the classic pop belly that some children get.
She is always tired, pale, glassy eyed, always ill at least once every few days, very emotional, bed wets, has also had night sweats in the recent weeks.  the list is becoming endless.
they are removing her tonsils due to them being large not because she has had lots of bouts of tonsilitis. The ent specialist said theres no guarentee this will sort out her issues its just trial and error and an agreement between the drs to try things.

She is being retested on the 26th (her bloods) then they are going to go from there.
see ive had my tonsils out and they dont usually do bloods first so im not aware of what results would be.

Just want to know whats wrong with her shes been like this for a year
Helpful - 0
1081992 tn?1389903637
COMMUNITY LEADER
Platelet count can rise as a result of inflammation. Her ESR shows inflammation. What causes the inflammation? It could be infection. It could be some other unusual immune reaction.

If they removed any lymph nodes they would have biopsied them and discovered any lymphoma, so you can probably relax on that score.

Possible, but not likely, would be some food reaction. E.g., celiac disease could account for the symptoms, even the lymphadenopathy. You could remove all gluten, especially wheat,m for a couple of weeks and see. That is under your control without needing a doctor.
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Avatar universal
hi,

i have only just seen this comment so appologies for the late reply.

She has had night sweats not all the time but sometimes, she has not had a fever.  She hasnt had head images done no.  She has had no noise drainage.
She had a series of blood tests completed which showed ESR at 81 should be 4-12! and also raised platelets everything else seemed within the normal range.

can you help further? thanks again
Helpful - 0
Avatar universal
Has the child had any imaging of her head?  Has the drainage from her nose been cultured?  

Fevers?  Any abnormal lab results?  

Any of the nodes biopsied?  

Sorry to ask so many questions, but I need more info to give my opinion.  
Helpful - 0
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