many centers would consider someone for transplantation even if they dont have 6 months of sobriety. While on morphine it sounds as if there unfortunately is no turning back.
no turning back? does that mean a center would not consider him cos he is on morphine? I just need to know for peace of mind. Hard to read between the lines.
i think a center would consider him but if he is in a hospice receiving morphine they would not. the hospice concept would have to be reconsidered--for peace of mind it may need to be considered. what state does he live in?
we live in florida.. cocoa beach.
i am going to fill out form for miami institute..thank you.
do you mean he must get out of hospice before they would consider him?
his heart is strong, ammonia level is high... morphine every six hours , 10 milligrams.(sometimes not needed)..he did say he wants to live.. so I am trying all I can do.
i think that he would need to be out of hospice before they would consider him frankly--Miami is a good choice. Good luck
Thank you for the help..I did call Miami and they were extremely helpful and supportive. However, as we made plans he passed away yesterday afternoon.. Do appreciate your words. You made a difference and
I thank you..
BonBon, I'm so sorry about your son - so tragic, but you obviously did all that you could to help him. I'm glad to see that you sought and got advice from Dr Schiano. That gentleman is a treasure - so consistently helpful to many of us here.
BTW the policies in our area are the same: your son would have had to first be removed from hospice status, the morphine discontinued, etc - in order to even be considered...and that would be with no guarantees of course. It's a pretty tall order...even under the best of circumstances. It sounds as though your son was likely already too sick for that to have happened. I hope that you can find peace in knowing that you did all that you could...and in the fact that your son is no longer suffering -
yes.. thank you for your warm thoughts.. and yes, I knew it was a tall order.. but I would rather react pro-active and try try try.. (the mom thing).. than to sit by the bed and watch him slip away.
I feel good that I did try.. he should have tried much sooner. and yes, he is at peace and I am uplifted by all the emails, facebook .. amazing about the power of people.. very soothing. thank you VERY much.
This forum is a wonderful way to communicate... my heart goes out to many.. just as their hearts touched mine during this difficult time.
i am very sorry to hear the bad news. My sincerest condolences to you and your family