Aa
Aa
A
A
A
Close
Avatar universal

Lupus? Estrogen Dominance? Help...

This might be kind of long???

Hi Guys :)
I'm 24 years old, and very much thinking I could possibly be (developing) Lupus. I have an appointment with an MD tomorrow, but I'm worried they will dismiss my symptoms and tell me I'm just stressed. It all started about 4 years ago.
I started getting numerous UTI'S in summer 2009. The UTI's were like clock work, every two weeks. I would even pee blood with them they were so bad. It was summer, I had a pool in my back yard, I was dating a new guy- the doctors came up with everything. I can't tell you how many times I heard "You're a female, this happens to us."
My sophomore year of college, I turned into a kidney stone- making machine! I even had one lodged in my ureter for a WEEK and they needed to do surgery. I had never been so sick in my life.This happened twice (2 surgeries). SEVEN kidney stones later, I went to an endocrinologist because one blood test showed a parathyroid hormore to be elevated. The parathyroid hormone was never elevated again in future blood tests, so I was released from the endrocrinologist's care. I am happy to say, I haven't been plagued by kidney stones for some time now. (*knocks on closest wood furniture*) I still get random "ticks" in my kidneys, maybe like there is stones bouncing around...
    So, lately... I've been having some sort of "episodes" before my period. They usually come on approx. 2-3 days before my period. I am on a birth control pill. The gyno said that I possibly had too much estrogen in the pills, and we've tried a butt-ton of different ones. Nothing seems to deplete whatever these "attacks" are I'm having every month. Let me explain.
     Every month, I wake up with a KILLER MIGRAINE. Like, I've been partying for days and days... such a sickening headache. I have thrown up multiple times from them being so bad in the past- can't keep my eyes open. Then, within a few hours, my body follows suit. My neck goes, my shoulders become so sore, my legs feel like I've been doing heavy squatting, very weak muscles.  Simply moving from the bed to my couch in my tiny little apartment is exhausting. Needing to get up to go to the bathroom is so strenuous. When this starts, I know darn well there is no school for me,no work for me- no nothing for at least 2 days. It makes me feel so worthless because I'm in my last year of school and I want to get this figured out before I graduate and get a job.
     Last month (September) I had a rash accompany the "attack". It was on my left shoulder. Red, raised, scaley patches. It stretched down to my shoulder blade. Didn't itch, just hung out for a couple of days and then vanished. I thought it was dry skin, so I put cocoa butter on it a couple of times a day and just chaulked it up to dry skin. The two biggest patches donned a boarder, the other smaller ones did not. I'm so mad at myself for not getting a picture to show the doctor. I usually stay sick for close to three days, until my period starts or I start a new pill pack. These "attacks" are so painful, I BEGGED my mom or boyfriend to take me to the hospital and they just told me to rest it off and I would be ok. "Resting" during one of these things is impossible. The heating pad is my only relief.
   If it were just related to my periods, perhaps I wouldn't be so concerned, however, last semester during finals, I had the same sort of situation happen. This, however, was mid- cycle... completely ill. Pounding headache, body aches, next to "immobile", vomitting. But, I had ONE finger swell up... just one. My left pointer finger. (I'm right -handed)  Thought I may have hit it on something (I just didn't remember), the joint was really swollen, looked like one giant sausage finger. I couldn't bend it down all the way. It stayed like this for a LONG time- quite a few weeks and gradually returned to back to normal. Not long after that, (this was May) I developed a weird little dry patch on the same finger. Somedays it looks red and irratated, other days (like today) it's just dry and cracking. It's still on the tip of my left pointer finger and now it's October. And of course, what lead me to this page... I have the muscle twitches too. Not painful by any means right now, just annoying when trying to fall asleep or sitting with my feet up.

Basically... I just need to know I'm not crazy guys. I'm SO scared this MD tomorrow will just brush me off (Tomorrow is our first meeting). Tell me what you think... and I will keep you posted.
For the record, I've had seven kidney stones by the age of 22, I KNOW pain, and whatever I'm going through right now is no joke- I'm not a wussy.
    Whether it's lupus or not... I just want to get it figured out. I can't miss school when I'm so close to the end.

Night!! Katie
2 Responses
Avatar universal
Also, I would like to add- I have experienced the nose/mouth sores, when I'm having the "episodes", I shake like a leaf and i do not experience heavy bleeding/ cramping on periods.
351246 tn?1379682132
MEDICAL PROFESSIONAL
Hi Katie!
I am sorry to hear about your medical problems and for the late reply. Recurrent kidney stones are in found renal tubular acidosis, medullary sponge kidney, Dent's disease (genetic disease of the kidney), hyperparathyroidism, primary hyperoxaluria and Crohn's disease. Diet high in animal fiber, dehydration, and low calcium intake can also cause recurrence of stones. Please discuss these possibilities with your doctor and see if you suffer from any of these disorders. Treating these would help reduce many of your symptoms. Please consult your doctor regarding this. Take care!

The medical advice given should not be considered a substitute for medical care provided by a doctor who can examine you. The advice may not be completely correct for you as the doctor cannot examine you and does not know your complete medical history. Hence this reply to your post should only be considered as a guiding line and you must consult your doctor at the earliest for your medical problem.
Have an Answer?

You are reading content posted in the Lupus Community

Didn't find the answer you were looking for?
Ask a question
Popular Resources
Bumps in the genital area might be STDs, but are usually not serious.
Chlamydia, an STI, often has no symptoms, but must be treated.
For people with Obsessive-Compulsive Disorder (OCD), the COVID-19 pandemic can be particularly challenging.
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Here’s how your baby’s growing in your body each week.
These common ADD/ADHD myths could already be hurting your child