I am sorry to hear you are struggling.
Unfortunately, stephen898 has not posted here for four years. Perhaps your MD's office could recommend someone to help, or perhaps a social worker at the local social services office?
Sometimes churches may have people who can help also. If you belong to a church, try asking there.
Best wishes to you --
I need to apply fir disability but I am stuck on the application process My doctors are too busy to be cooperative can you help with that website?
I am on the verge of not being able to perform my job responsibilities and have not been able to adequately for quite some time. I did not think that Social Security had a short-term disability..could you send me the information you had referred to in your August 2009 about the website you found that has advice for those submitting with Lyme disease? I am wrong in thinking SS does not have a short-term disability program? Please advise
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If you are talking about short term disability with Social Security I just completed the forms two days ago. I really should have done this months ago. If you want you can send me a message and I can give you more detail. Also found a web site that has advice for those submitting with Lyme disease.
I wanted to and should have been off but I did not have the option of short-term disability at my job.
I debated taking a leave of absence, but since my treatment was judged to require at least a year, that didn't seem like the best option.
I don't have disability insurance, nor do I have a disability benefit at work.
What worked for me was to switch from fulltime to partime. I switched back in Dec. and have no plans in the near future to go back. I'm also on a flex schedule, so I can work more on good days and less on bad days. As long as it adds up to a certain number of hours every 2 weeks. I was also able to keep my benefits, though I pay a bit more for them now.
It has helped a lot. I get nasty flares and Herxes, and at 8 months into treatment I still have lots of days where my Lyme makes it very difficult to work, even for just an hour or two at a time. I still take full days off more often than I'd like.
The biggest "snag" in my situation is my position is not permanent, so I feel a ticking clock to get better enough to be on the job market before my job expires.
I was offered to telecommute, but I have such a short driving commute that I'd rather keep my work at work. But that's another option others may want to consider.
I would definitely suggest looking into any accommodations your work can make for you while in treatment. Hopefully, you will make a fast recovery, but any stress you can take off of yourself will help.
Obviously, I've lost a lot of income in making this choice. But these days, I hardly stand out for tightening my belt a bit. I can still pay my rent/bills/treatment. So while it's a blow to my ego, I get by and know it's made a huge difference to have more time to rest and focus on treatment/recovery.