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Eye Dizziness

Hi
Since 2007 I have had dizziness, or thats what I call it.
I have really taken notice of it lately and its coming from my eyes.
My eyes feel dizzy  (if that makes sense)
If I hold my head still, and move my eyes that is what makes me dizzy, if I turn my head from side to side quickly it also makes the dizziness worsen.
So does looking down, I kind of walk around with my nose in the air as it seems to lessen it.
I also get watery eyes a lot, and have head pressure, and feel like there is water in my ears when I tilt my head sometimes.
Have had my ears checked and they are fine though.
What I would like to know is 'does anyone with lyme on here have anything similar to this'?
I have been tested for ms and so far all tests have been clear.
My cd57 here in Australia has come back at 39 which could indicate chronic lyme, and I'm now waiting for bloods results from igenex as the G.P. who requested them has no doubts I have lyme.
My daughter has also had optic neuritis, tingling hands and feet symptons for 3 years now and is also going to be tested.
Thanks again
Melissa
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Avatar universal
I don't know how often Gaucho checks in here; you might want to send him a private message (PM) by clicking 'inbox' in the upper right corner of the screen; he might be more likely to see that.
Helpful - 0
Avatar universal
Hi
Have posted my results on here, my Dr says I have a lyme co infection and has sent me scripst for 4 lots of antibiotics...
I haven't put them in to the chemist yet, as I am going to get a 2nd opinion before I take them.
With what everyone has said on here, (both sides) about aussies not being able to get lyme, etc, I'm more confused now then ever.
I'm hoping someone on here can shed some light on my results..
Helpful - 0
Avatar universal
Thanks will keep eye out for your post.
I spoke to my Dr today and igenex still has not faxed the sheet through with the numbers, and there is a time difference between here and there also.
So hopefully they will have it tomorrow.
Will let you know
Helpful - 0
Avatar universal
I agree Jackie, I really dont understand the CDC criteria.. but for some reason most LLMD doctors make you send the blood samples to IgeneX.... right? I rather look at what IgX says, otherwise why send them there?... i think IgX is the most reliable lab for a reason...
Melissa, in other words, I think I do have Lyme, I will keep you all posted whenever I see my doctor...thats going to be this week.
Helpful - 0
Avatar universal
IgM indicates a current or recent infection; IgG indicates an older or dormant infection.  It's a question of timing, not a question of infection.

The starred bands are, to my understanding, the ones to look at for the Lyme determination.

Band 23-25 detects outer surface protein C (OspC), which is specific to Lyme -- meaning no other infection will cause a positive on this band

Band 31 detects outer surface protein A (OspA) -- see above re OspC, same meaning

Band 34 detects outer surface protein B (OspB) -- ditto

Band 39 detects a major protein of the Lyme bacterium's whip-tail, so this is specific to Lyme and shows in no other disease

Band 41 detects any spiral shaped bacteria, so may be Lyme, may not be Lyme

Band 83-93 detects only Lyme bacteria bits and pieces
---------------------------
The difference between the IGeneX 'yes, you have Lyme' and the CDC 'no you don't have Lyme' is how many of the bands are needed to call it an overall positive.  I have never read a CDC explanation for why some positive bands don't count, if they are specific to Lyme.

Looks like Lyme to me, but I'm NOT medically trained.  See what your doc says.

Helpful - 0
Avatar universal
Yes will post my results when I get them, have asked for them to be emailed to me.
So with your last post does igenex say your positive for lyme and another group say your negative???
Helpful - 0
Avatar universal
Thanks
I will hear from my Dr today, hopefully very soon, with my results, and hopefully igenex has refaxed through the bit of paper that come through blank.
I don't understand those numbers at all, and the bands and all that, so does that mean you have lyme???
Melissa
Helpful - 0
Avatar universal
Hi Melissa, sorry I just read this thread. Well I received the results. They performed the Western Blot IgM, IgG, ELISA, Whole Blood, PCR... and it came back all negative except for the Western Blot IgG according to IgeneX its positive, according to CDC criteria Im negative... so that's something, isn't it?
I will post it  here so you can see:

Lyme IgM (Igx: Neg, CDC: Neg)
18 kDa. -
**23-25 kDa. IND
28 kDa -
30 kDa. -
**31 kDa IND
**34 kDa -
**39 kDa IND
**41 kDa ++
45 kDa -
58 kDa -
66 kDa -
** 83-93 kDa -
----------------
Lyme IgG (IgX: Pos, CDC: Neg)
18 kDa -
**23-25 kDa -
28 kDa -
30 kDa -
**31 kDa IND
**34 kDa +
**39 kDa -
**41 kDa ++
45 kDa -
58 kDa -
66 kDa -
** 83-93 kDa IND

can you post your results? what do you think about mine? I have a doctors appointment this week, I will probably have to fly to USA since I live in Argentina and got infected when I was living in USA.... at least all my symptoms started when I was living in Houston...
Helpful - 0
Avatar universal
Gaucho posted a message about the same time you did.
Helpful - 0
Avatar universal
How did you go with igenex, did you get any results back yet??
Melissa
Helpful - 0
428506 tn?1296557399
I never thought to single this out as a symptom, but I've had the same feeling of eye motion causing dizziness or disorientation.  For awhile I would also get vertigo when I turned my head.  For the latter, I think I have a minor misalignment in my neck that got exacerbated by all of the inflammation from the Lyme.  As for eye movement making me dizzy, I guess that also seems like an inflammation issue.  I had my eyes checked by an opthamologist while sick and my eyes were structurally fine, so other than inflammation I don't know what to blame.

Hope you feel better.
Helpful - 0
Avatar universal
Hi, I also have some similar sensations at times.  I get a weird feeling behind my eyes that makes me feel a little "off". Although, it actually makes me feel better to look down rather than up.  I have had off and on head pressure, ear ringing, and many, many symptoms.  From what I have read from others, they sound like symptoms of Lyme.  It seems we all have our own strange list of symptoms, we just experience them all a little different.  It's all very strange! Good luck, take care.  

Ally
Helpful - 0
Avatar universal
Hello Melissa I also have that type of eye dizziness, i know exactly what you mean, I have no diagnosis right now, but I sent blood samples to Igeenx Today. What test did your doctor order for you? In my case I ordered Complete Lyme panel... What is cd57? should I have ordered that too????
Helpful - 0
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