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IDSA tries to block PBS showing of Under our Skin

The Infectious Disease Society of America is trying to block the showing of Under Our Skin on PBS stating that it does not go along with their "objective" thinking.  PBS will show this edited and updated film documentary around May 26th.  Please check your TV station time and dates and watch this very informative documentary.

If the goverment is trying to block this, there must be alot of truth behind it.  Sorry JackieCalifornia.  This will help people more than a soothing voice.. People need to get upset over this, otherwise we wil not be heard...

http://www.underourskin.com/news/idsa-aims-censor-under-our-skin-tv-broadcasts
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Avatar universal
LOL, liked the last post!  

I truly feel that if they are going to the trouble of trying to convince stations not to show it, there must be some validity.  Also, supposedly the version that is to be shown has been edited and updated  since the final version had come out.  We'll see.  I hope this stirs up a hornets nest and gets the public talking and the govt walking...
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Avatar universal
Okay, further reading of the IOM's report shows that a majority of those on the review board are IDSA-oriented.  So maybe not worth reading, unless you like mystery novels where you try to figure out who is who and who whacked Col. Mustard in the library.  
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Avatar universal
Further to my comment above about the Institute of Medicine's report on Lyme, it can be downloaded for free from their website (in uncorrected proof, at least so far), but cautionary words:  a quick look at the text uses phrases like 'post-Lyme symptoms' which are a tell for the IDSA approach to Lyme.  So be skeptical.

As I read the report, I'll post comments if warranted.
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Avatar universal
Thanks for posting this.

I agree, 'Under Our Skin' is an interesting window into the wider world of Lyme.  When ill, it is natural and even necessary to withdraw from the world, due to lack of energy and just feeling lousy, so seeing in the movie that others share the suffering can reduce the feeling of isolation from illness.

Yes, I have objected here to comments complaining about how Lyme patients are treated, but only when those comments go over the top and make the whole situation sound so hopeless and that one might as well crawl in bed and stay there because nothing will improve ever, ever, ever.  Railing against the system is understandable, and my only concern and complaint has been when posters take the negative approach that 'all is hopeless!  nothing is being done right!!  we are DOOMED!!!', because this approach can heighten the sense of hopelessness that may be felt by someone already very ill and frightened.  There needs to be a balance between railing against the stubborn medical orthodoxy of the IDSA and taking into account the fragility of Lyme patients.

The movie, 'Under Our Skin,' points out not only what has gone wrong in the diagnosis and treatment of Lyme generally, but also can give hope that one can find help.  My only complaint (here I go again) about the movie is that the ~4 people whose true stories are portrayed in the movie are presented at some level for dramatic effect, showing people whose symptoms are dramatic and severe, without making it clear that this does NOT happen to everyone.  When I was first ill and diagnosed with Lyme, seeing 'Under Our Skin' would have scared me terribly, and I am no chickenheart.

The quality of Lyme that allows it to affect the mind and emotions is one of its most awful aspects, imo.  Not only is one ill and miserable, but can also feel hopeless and frightened to a notable extent.  By all means watch the movie, but know that not everyone gets as bad off as those in the movie and try not to be frightened by it.

Incidentally, the Institute of Medicine ("an independent, nonprofit organization that works outside of government to provide unbiased and authoritative advice") has recently published a report, "Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and Other Tick-Borne Diseases:  The Short-Term and Long-Term Outcomes: Workshop Report" on the mess medicine has made of research and treatment of Lyme.  The whole report costs $90, but a free summary is available online for those interested.  
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