I had the lab corp western blot and got a false negative. After my LLMD took the IgeneX test, it came back positive.
I understand. Without a diagnosis, you wouldn't know what meds to order.
You might consider some herbal remedies, but be sure to tell the doc when you get there what you have been taking and for how long, because the herbs can confuse the diagnostic picture and perhaps affect the test results.
A good doc is the most important thing imo and experience. Hang on! You'll get there. If the doc can put you on a cancellation list, that might get you there sooner.
"Ordering your own meds"?
If you mean from a foreign pharmacy, on line, that can be fraught with many dangers. Esp. the ones that advertise 'no prescription needed'.
If you have other ways to get your own antibiotics----(no rx) that can also prove problematic if you have a reaction to them. Unless you have a close family member who is a doctor or maybe a nurse who is willing to get you the abx.
But if you have a different safe, proven way------ then maybe. But who will oversee your treatment?
I certainly wouldn't depend on public online forum members; not me, not others.
Not that they can't be knowledgeable in many ways.
Unfortunately, there are no other LLMDs in my driving distance. She seems like a good one but I seriously don't know if I can wait that long. However I don't know where else to turn other than start ordering my own meds.
You are waiting 5 more months to see a Lyme doc? Find another one!
As you have found, Lyme does not respond to all antibiotics, and a few weeks of random abx isn't a useful approach.
" I guess it probably varies from person to person."
You can say that in spades and with all caps but leave out the 'probably'. :)
Reading all our testimonials here is valuable---- I never get tired of that.
I used to ping pong back and forth between elation at finding a 'cure' and despair of finding out it wasn't (for me).
Then I 'settled down' and actually started learning about the disease while still enjoying the individual 'testimonials'.
The sad news is Lyme has become so politicized. That muddies the waters and a person has to learn just who McSweegan is. And Steere. And Sue O'Connell. Plus how to get treatment for themselves.