Aa
Aa
A
A
A
Close
Avatar universal

New Lymes Disease Sufferer

Hi all,

I didn't drink for the month of November and felt great til I started drinking in December and noticed that it was making me feel significantly different than it used to. That's when symptoms began and progressively got worse culminating in my visit to the doctor.

I thought I had an issue with over-training from working out and severe dehydration due to randomly evolving intermittent elbow/knee/wrist/back pain (joints&ligaments), headaches (particularly on the left side of my head near "Broca's area'), and a strange tingling in my foot that seemed to be synced with my heart beat.

I received a call on New Years Eve, it turns out that I tested positive for Lymes Disease (LD). My issue now is that i have done significant research on the topic - as I'm known to do on any remotely important topic I come across - and I don't think that my doctor is nearly as knowledgeable as I am on the matter due to his prescribed treatment for me:

21 days of taking 500mg Amoxicillin 3x per day
(I will not be drinking, sadly)

While this treatment is said to be "standard" on some websites, it seems dangerously and unnecessarily insufficient as it is too short of a timeframe and too low dose for LD, let alone any possible co-infections (e.g. Ehrlichia) - the latter of which I was not tested for and cannot be treated with Amoxiciliin. (source: http://www.cdc.gov/mmwr/preview/mmwrhtml/rr5504a1.htm)

I've found ILADS to be one of the most coherent and defined sources of relevant information. The Diagnostic Guideline pdf is particularly useful: http://www.ilads.org/lyme/B_guidelines_12_17_08.pdf

Anyway, I guess I've decided to post here because I was wondering what your thoughts were about my treatment and what I should do about it. Also, I would appreciate any ideas/info/feedback you share with me regarding LD or your personal experiences.

It seems that I have a somewhat mild case but I'm beginning to question whether my LD has been discovered early (as I am led to believe) or it has gone undetected for a while which may explain some anxiety, brain-fog, and sometimes irrational fear I've developed the past few years.

1 Responses
Avatar universal
I have had lymes disease since 07. That was my first treatment as well. It is ok. You can do it. For me it didnt help. I had to do Doxy for 2 weeks and then for a month a couple times in a row. Where are you located? I could possible help with doctors and diet plays a big role in this disease.
Have an Answer?

You are reading content posted in the Lyme Disease Community

Top Infectious Diseases Answerers
1415174 tn?1453243103
CA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Fearing autism, many parents aren't vaccinating their kids. Can doctors reverse this dangerous trend?
Can HIV be transmitted through this sexual activity? Dr. Jose Gonzalez-Garcia answers this commonly-asked question.
A breakthrough study discovers how to reduce risk of HIV transmission by 95 percent.
Dr. Jose Gonzalez-Garcia provides insight to the most commonly asked question about the transfer of HIV between partners.
Before your drop a dime at the pharmacy, find out if these popular cold and flu home remedies are a wonder or a waste
Fend off colds and the flu with these disease-fighting foods