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Avatar universal

READ THIS!!!!!!!!!!!!!!!!

What is everyone’s thoughts on this?? has anyone found information supporting this???

I've always believed that Lyme Disease can also be sexually transmitted, because both my husband and I have Lyme and very similar symptoms. I was bitten in 2002, but did not experience noticeable symptoms until several years later. My husband has never been bitten (that we know of) and he never experienced an EM Rash like I did. My Lyme journey has been very long and trying process like the rest of our community. So I won’t go into detail.

I have a theory with the EM rashes. I truly believe that the EM rash symptom percentages are so low (only 30-50%) because the other 50-70% that don’t experience an EM rash, were actually not infected via insect bite (I say insect, because I honestly believe that ticks aren’t the only vectors in this epidemic).

They say the EM rash is a sign that the infection has penetrated from the tick to the skin. So how come some people don’t get the skin infection but then get Lyme and all the symptoms? I am truly convinced that those who don’t experience an EM rash were infected sexually. The infection was not passed through the skin. I think doctor’s need to wake up, well I shouldn’t say just the doctors but the CDC, Health officials, government and everyone else involved in the health system. They need to see that this is an epidemic and its going to cost more money in the end out of “their pockets” for people who are disabled from this disease. This disease is debilitating and need to start a full throttled awareness


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Avatar universal
i was diagnosed with chronic lymes 4 months ago. i believe to have been bitten my summer before highschool. i wasn't sexually active at that time. im the only person of my family and friends who has this. and i never saw a rash.

just saying it happens more often than than i think you really understand. maybe it didnt happen for you that way, but it seems this disease doesnt always follow the rules anyways.
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Avatar universal
Yes, he is fine now. Now he is 9. Antibiotics took care of the issue in 3 days when he was 4. Deer are walking on my lawn. I am also having all kinds of problems similar ro lyme but wasn't diagnosed with it. so, I think, it is nerves.
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Avatar universal
Probably from a tick.  Someone posted here recently that of the many (~100) strains of Lyme, some give a rash, some don't, and sometimes the rash is partial and not that fat bullseye like a Target store sign.

There's some thought that mosquitoes and other insects can transmit Lyme etc. also ... which sounds pretty reasonable.

So much is unknown about Lyme transmission, that I don't think hard and fast rules about how it comes about are possible to formulate yet.  

I hope your son is better now.
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Avatar universal
My son was 4 when he suddenly had all his joints hurting him and he had no rash or any sign. But he was tested positive for Lyme!
Now, you tell me, how in the world did he get it?
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Avatar universal
Say there Tick, I don't know you do I?  You sound like someone in California I know.  Both she and her spouse have LD that is to have been from sexual transmission.

As for me and mine...was Myself, Son and Spouse although all were infected at different time frames and geographic locations.
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280418 tn?1306325910
I was bitten by three ticks who stayed in my scalp for almost a week when I was 11 years old.  Then my mother removed them, inadvertantly leaving the heads in.  At the end of that week, I had lumps all over my scalp.  Pediatrician removed the heads and said re: the lumps, "probably just an infection."  My mother and I don't recall if he treated me with antibiotics.  This was 1986.

Fast forward:  I'm CDC positive via Igenex and have had neurological issues for 3.5years.  Husband and I have had only each other in our entire lives as sexual partners -for sure.  Now, he's getting weird neurological symptoms.  He had a standard Western Blot -negative.  Igenex is next for him.  

I guess my point is, anything is possible and open for discussion on Lyme and we've established that on this board for a long time.  I hope that you and Jackie California can patch things up, because we are already divided from the world with our disease; we don't need to be divided amongst our group.  She has always been thoughtful and well meaning in her responses to me.  I am sleepy right now, but from what I read it seems to just be a misunderstanding.  Anyway, call me a softie, but I hate conflict, even in cyberspace LOL.  
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Avatar universal
I hope you guys get everything sorted. The tests are so inaccurate. They arent reliable for diagnosing lyme. I have had 5 negative, 1 indetermant and 1 false positive. I wish doctors would just get over it and start attempting treatment.

Sometimes antibiotics arent the route to go, they need to work on that as well. I did a 7 month run and symptoms just came back :-(
Viatmin supplement and lifestyle changes has definitely helped me. Its just so hard to stay on track!
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1029507 tn?1287714315
Im with you, my wife has been ill for along time also,I say she has lyme and somtimes she thinks she does,she has been tested with the wb but not from igenex lab, i want to have her tested next time i go to my llmd just to make sure,but then again we all know how that goes with the testing, I would of been dead by now if my chriopractor would have not of told me what she thought I had she knew the symptoms of lyme and told me that was what i had.  keep me informed about anything having to do with it being spread from sex.
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1210011 tn?1281472365

"They say the EM rash is a sign that the infection has penetrated from the tick to the skin." or "..entered through a different route..."

The EM rash is a sign that you are infected with strain of lyme that affects the skin, in the form of an EM rash.

Not every strain of lyme creates the EM rash despite the mode of transmission. Because of Variance.
Not all of the 100 strains of lyme in the U.S. produces the EM rash.
In fact, very few may at all.

Some produce other so-called atypical rashes, and some---NO RASH at all.
At the IDSA review panel hearings over the summer, I believe one of the ILADS doctors mentioned this.

so, if we factor this in with the fact that the rashes may not be visible b/c of where ppl are bitten, it reasonably explains why 70% of ppl don't see a rash or even get one. It's not Weird at all.

some strains FAVOR the skin
some strains favor the joints,
some, the central nervous system, others the endocrine system (HPA axis),
the digestive tract, the eye. You name it. It doesn't mean that multiple systems aren't affected, but it's about the likelihood of the strain, based on its own genetic makeup, where it prefers to go.

Some strains simply do not cause a skin rash.

Some people with lyme never have lyme arthritis either.
i.e. 10 yrs ago, NY doctors noted that Massachusetts patients had a greater tendency toward neurological strains of lyme than the patients in NY/NJ, where the arthritic strains were more commonly seen.

My thoughts on Sexual Transmission? it's advisable to take precautions.
There have been no definitive studies proving it.
Lyme being a more complex cousin to syphilis, sexual transmission is a consideration.

However, family members and anyone we spend time with are more likely to be exposed because we share something in common:

the same or similar environment. and, in the case of relatives, shared genetics, so may be shared susceptibility.

btw: one of my sisters never had an EM rash to her knowledge,
nor recalled ever having a tick bite.
Not until she went on IV antibiotics did she break out in 3 perfectly formed "tell-tale" bull's eye rashes, as a herx.
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Avatar universal
Yes:  people can get bitten by a tick, get Lyme and not have an EM rash.

No:  this isn't fun, and I won't be responding to your comments again.  You are misstating and speculating wildly instead of reasoning things through, and that's not helpful to anyone.  There is enough grief associated with these illnesses, and hyping the anxiety level is counterproductive.  Please don't do that.
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Avatar universal
I don’t care if people are scared because of what i'm saying. If someone has Lyme, how you got Lyme isn’t the scary part. The scary part is when you decide to go to a doctor for treatment and they deny you. And you start reading other people’s stories of how they were rejected 10 times by doctors for treatment.
What’s even more scary.. is not knowing what path this disease is going to take you. Maybe you’ll end up being in a wheelchair, unable to walk, swallow, think.

THAT’S WHAT’S SCARY.. who care’s what “don’t_tick_me_off” says about sexually transmitted Lyme.

Plus We are a fear-junky nation. We need fear, we need to be scared or we don’t recognize consequence.  Its what our society/government/evolution has bred into us.

My point is this: People need to weigh the option that it COULD VERY WELL BE transmittable through another way and need to take precautions. That’s what I was trying to get across.

So you're telling me you had an EM Rash, but you never saw it?????? then how did you know you had an EM rash on your thigh. Someone saw it, whether it was yourself, your doctor, or family member. So you are one of the lucky 30 percenters then. Good for you.

I'm sorry, I just don’t believe that 70% of people don't see their EM rash because its hidden. I think it’s because EM Rashes don't appear if Lyme was entered through different route other than the skin. I do believe the rash could be missed or overlooked.  Maybe making up 25 percent of the 70… BUT 70% OF PEOPLE DON’T GET THE RASH??? Very weird.

I am stating a THEORY,... A THEORY that is proposing this.. if you have an EM Rash then you were bitten by a tick. PERIOD.
The tick passed the Bb infection from its body, THROUGH YOUR SKIN (HENCE THE EM RASH, because the rash is sign that the skin has been infected)

So if someone doesn’t see the rash, it doesn’t mean that they got it other than I tick bite, it’s because it was hidden.

So let me get your proposal or point straight.. you are stating that people can be bitten by a tick, get lyme, but not have an EM rash???

We'll i guess this is a debate then, Cause i disagree.

This is FUN! :-)
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Avatar universal
"This is not about correcting people or putting people down for their thoughts on this terrible and misunderstood disease. Its about supporting people on the forum with open arms."

Actually, it's about sharing information and support.  An important part of sharing information and ideas is to comment on ideas where they seem off, and let the reader of both points of view decide what they think.  You state your point of view, I state mine.  It seems you are suggesting that instead, you state your point of view, and if I disagree, then I should say nothing?  Not very informative for anyone.

Your point seems to be that if one sees no rash, then one did not get Lyme from a tick bite, but some other means (congenital, sexually, or other interpersonal contact).  

My point is that if one sees no rash, it is still possible to have been bitten by a tick or other insect and gotten Lyme that way.  

First, you reject my view, saying "You saw no rash?  Then there was no tick, so you must have gotten Lyme some other way."  

Second, you go on to concede my point, saying someone with Lyme could have gotten bit on the scalp, and the scalp hair obscured the rash.  That directly contradicts your first point, that if no rash is seen, then there was no tick involved.
=================================
Here's the deal:  some people see the tick and the rash; some see one; some see neither one.  Sometimes the tick and/or the rash are obscured by hair, or in my case, because it was on the back of my upper thigh where I didn't see it until very late in the game.

Just because no tick or rash is seen does NOT necessarily lead to the conclusion that no tick was involved, and if you go around saying that someone who gets Lyme and sees no tick MUST have gotten it through semen, saliva, congenitally, breast milk or other person to person contact, then you are going to scare a lot of people and have them thinking that because their spouse or sweetie or child has Lyme and never saw a tick, that some illicit or other interpersonal activity has been taking place that transmitted the Lyme.

THAT is why I dispute what you are saying.  You are entitled to be illogical, but when you say things that could scare people and cause an even greater burden of mistrust and fear between a Lyme patient and his/her family, you should be ready to be corrected, for the benefit of all.

Sorry if this offends you, but I stand by what I say.
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Avatar universal
I guess my thoughts were whirling when writing. I could have written a proper 16 page chapter on my thoughts of Em rashes. I summed it up in a paragraph or too.

*what I should have stated was.. I believe (which is truly my opinion) that people who don’t experience an EM rash have contracted lyme not through an insect bite, but rather another means (whether it was sexually, congenitally, via breast feeding or saliva, etc.)

I can’t support my thoughts or beliefs with evidence, I’m definitely not a doctor/scientist/researcher, but I’ve done my fair share of learning and educating myself on this disease. But there are people who contract lyme, that don’t see their EM rash (for example, they’re not painful there for if a person has a tick bite on their scalp their hair would disguise the rash) which I would believe is quite common since ticks love the back of the neck/hairline.

All I am SUGGESTING is my thoughts on EM Rashes and that doctors shouldn’t rule out lyme on a patient because the EM is not present, Just like my husband should not be denied treatment because I have it and I was the one bitten and he was not.

If they found it in dog semen and they have found it in human semen, then why are they not adding it to their list of sexually transmitted diseases??? Is it because there are so many more diseases that are or can be sexually transmitted and they are opening a can of worms that our health care systems can’t afford?????

This is not about correcting people or putting people down for their thoughts on this terrible and misunderstood disease. Its about supporting people on the forum with open arms.

It’s called MedHelp not MedDebate.

Glad you took the time to read this.
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Avatar universal
You say:  " ... how come some people don’t get the skin infection [rash] but then get Lyme and all the symptoms? I am truly convinced that those who don’t experience an EM rash were infected sexually."

Sexual contact may be one mode of transmission, as may be mosquitoes and other non-tick insects.  However, I don't think it's warranted to conclude that those who don't have the rash were all sexually infected.  Children get Lyme; celibate adults get Lyme.  I know some of both, and the children aren't sexually active and the adults aren't lying about their social lives.
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Avatar universal
Under laboratory conditions, horseflies, deer-flies, and mosquitos also may carry the bacteria but their role in transmitting Lyme disease in the wild currently is unknown. - quoted on the Albert Government Webiste

http://www.health.alberta.ca/health-info/lyme-disease.html

very interesting!
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Avatar universal
http://www.rense.com/general5/lyme2.htm
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Avatar universal
http://www.canlyme.com/sex.html
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