If you scroll down to a posting here that's named 'Creepy icky feelings ...', I wrote a really long reply to the person posting the question that might give you some more details about the diagnosis and treatment aspects. fwiw.
Welcome to MedHelp/Lyme.
I am sorry to hear all that you have been through. I don't know if you have Lyme, but your symptoms sure sound a lot like what I and others have had. Everyone who gets Lyme is a little different, so that's not surprising.
You've been through a lot already, and I know how hard it is to keep going -- but it's what you have to do, and you are doing it. Good for you!
I would guess that if your current MD were familiar with Lyme, s/he wouldn't have been sending you all over creation to specialists trying to guess what to do next. (I went through more than 20 MDs before I got a diagnosis, so your journey sounds more than a little familiar.)
My suggestion: find a Lyme specialist and get tested. The tests you are getting from your current MD are not useless, but some tests are better than others. So if I were in your shoes, I'd get the tests done as planned, but in the mean time, start looking for a Lyme specialist, which we often call an LLMD, which is slang for Lyme Literate MD, meaning one who really understands Lyme and the other diseases that come from the same ticks.
Here are some websites that I believe have referral functions to find an LLMD:
lymediseaseassociation [dot] org
lymenet [dot] org
chroniclymedisease [dot] com
You can also google/search something like "LLMD chicago" or "LLMD new jersey" or wherever you are located and see what you get.
Lyme diagnosis and treatment is a new and developing field with much controversy involved, and mainstream medicine (that is, the MDs you've been seeing) are largely ignorant of Lyme. There is frankly a war going on in the medical community between those who think Lyme is like the sniffles and those who know from experience what Lyme patients know: it's misery.
You may not have Lyme, but if I were in your shoes, I'd want to know, and to find that out, you need to see an LLMD. I am NOT medically trained, so this is just my own opinion, but you didn't mention any symptom I haven't heard of in connection with Lyme, and I have had most of the ones you have.
There is a website at ILADS [dot] org that you may be interested in when you are feeling well enough to deal with it ... it is the home site of the International Lyme and Associated Diseases Society [ILADS], the organization for MDs and other healthcare providers who take Lyme seriously. It's a lot to digest, but when you feel up to it, go there and read in particular Dr Burrascano's treatment guidelines. It's a lot to absorb, but if you're like me, the more I know, the less anxious I am about the whole situation.
There is a book (now in paperback) called 'Cure Unknown' by Pamela Weintraub, who is a science journalist/writer -- her family got Lyme and she writes brilliantly about the experience both from the scientific side and the personal side. I highly recommend it, but if your brain is as addled as mine was, you might not be up for it yet.
Also there's a movie called 'Under Our Skin' that came out a year or so ago, but I'm not as fond of it as some people, because it is short on explanation and long on watching people twitch and feel awful. I found it depressing and annoying, that is was so relentlessly dark, and it concerns me that someone who is where you are may be more distressed than helped by the movie. If you google 'under our skin', the first hit has a link to a preview of the movies, which is now in DVD. Most people here seem to like the movie; I just know that when I was at my sickest and as yet not diagnosed or treated, the movie would have really frightened me and given me an even worse feeling of hopelessness. One of the people in the movie has severe muscle cramping that I never had, but it's distressing to watch and worry about oneself getting that way, imo. Fair warning.
Lots of people never see a tick or get a circular red rash, no matter what mainstream medicine says. Don't let that slow you down in getting a work up by an LLMD. It can take a little while to get a first appointment, so go for it. I got really good at juggling different MDs at the same time to proceed on all front, instead of going to one until we hit a dead end and then starting all over. Enough already, you know?
You really will need an LLMD-type. Regular MDs too often don't know about Lyme, don't know what tests to order, and don't know how to read the tests they do order. And if you find an LLMD that seems odd, find another one. Don't give up. You've come this far: keep going.
Let us know how you do, okay? Take care. Been where you are; a lot better now.