Thank you for the info. It is good to know that I could deteriorate quickly. I am on Malarone (4 pills/day) but I stopped about three days ago. I am going to resume 1 pill in a couple days, then slowly work back up again. At least I am feeling a bit better, and my stomach, spleen, and liver don't hurt as much as they did earlier.
So sorry that you had such a rough week.
I can't remember if you are taking Mepron or Malarone but my hematologist blamed Malarone, more than the Babesia, for my anemia. Please keep a close watch on the blood work. When I landed in the hospital due to my Anemia it was 3 days after my blood had been checked and shown I was NOT anemic. That is how fast it went south.
After my transfusions I felt so much better, it was a miracle. Knock wood, my Babesia was gone that fast.
Hope you feel better this week.
I had a really miserable week, starting last Monday. I had terrible brain fog, fatigue, malaise, and my abdomen bloated up, hurting all the way across, just under my ribs. My stomach really hurt and I couldn't eat much at all, but I still gained 2-3 pounds in 3 days. I actually had to take Vicodin on two days because I hurt so much.
I spoke with the ND on call at my doc's office and he said to stop 2 of my 3 antibiotics to give my stomach a rest. He said I probably have small bowel bacteria overgrowth. He also ordered a GI ultrasound to check my spleen, stomach, and liver. I'll have that on Monday. I was so miserable I stopped the 3rd med, too. I am convinced that a few days into the supplement that busts biofilms, my system just got overloaded with Babesia. I match the description of acute disease, usually seen in people who just got infected. I think my biofilm problem was worse than we thought.
Blood tests say I don't have anemia, just slightly elevated creatinine. White cell count is slightly low, but still within "normal." It's amazing how bad I can feel and blood tests don't really show anything. I did read one Dr. Schaller article that said that some forms of Babesia Duncani do not cause anemia. I'm guessing that's the version I have.
The good news is that 4 days after stopping meds, my system is finally settling down. Less bloating, less pain, improved overall function, but still uncomfortable and tired and feeling spacey. I am almost wishing I was anemic enough to justify a transfusion if that would get me close to wiping it out in one day. I certainly never expected to have a week this bad so far into treatment. *Sigh*
Looking forward to feeling better this week!
I never tried A- Bart but used Chinese herbs Art 2 from Dr Zhang. It helped the Babs just as his HH2 had a big effect on my Bart's. I am still using that. I know that since I ran out once and all my Bart's symptoms came back.
You may want to try Art 2. Schaller gives that to his patients too. Hepa Pro sells it online if your interested.
Thanks, all! I really appreciate it! Other people don't always understand.
Mojogal - I remember your anemia, but I don't remember fluid in the lungs. That was news to me that Babesia could trigger that. I wonder if I've had fluid all along in my lung sac. (I just hit my two year anniversary of shortness of breath and air hunger at the end of January.) I have two homeopathic supplements to help. They seem to be working. I've had a lot less gasping in the last few days, although my fatigue is actually worse.
Did A-Bart work well for you? I took it in the summer when I had to go off all my abx. I didn't have any response, which was a good indicator that my Bart was indeed gone. I know two other people who had noticeable headache, fatigue, and brain fog reactions to taking A-Bart, which essentially means they still had Bart.
Don't know much about Babs, but I'm sending you love, and hope you get through this bad time quickly.
xxx
Egad, I understand better now. I feel like I got off easy. :(
Hugs!!! (Don't know what else to do!)
Rico, I can relate. Remember when I was in the hospital? That was from Babs giving me anemia and fluid around the lungs, after I had 2 blood transfusions all my Babs symptoms went away. Knock wood.
For me the Bart's seems to be the hardest to get rid of. I have it very badly affecting neurological functions. The herb that I know works ( because I went off of them all my symptoms came back) is very expensive costing me $120 a month.
The Lyme seems to be the lesser of 3 evils. I also am now a Bambi hater, lol
I hope you get better soon.
We didn't know I had Babesia until 11 months into the Lyme treatment. Because I tested negative for Babs three times and didn't have a response to the top three anti-Babs herbals, we set the issue aside. But as most of my Lyme symptoms were fading out, my air hunger/breathlessness didn't go away as it should have if it was caused by Lyme.
It was when my doc told me to take two anti-Babs herbals at once in late Oct that I finally had a reaction. I started at full dose and I had noticeably worse breathing problems, headache, and increased fatigue the next day. It was a lot worse a week later when I started Malarone. The Babs herxing was worse and longer than any Lyme herxing I've had. Seems I have a pretty bad case of entrenched Babs.
It needs to be treated, and it doesn't have to wait until I am completely over Lyme. Stopping Amoxicillin now would allow the Lyme to regroup. My doc is confident that although I've had breathing issues for a while, the Babesia has been hiding out in biofilms.
I did read one IDSA page on Babesia describing the possibility of a Lyme patient coming back after abx treatment to report shortness of breath and other Babesia symptoms. Even they acknowledge that you might not see Babs symptoms until after Lyme is knocked down. It is just maddening to me that other coinfections can appear well down the road of treatment.
I read that the CDC isn't even funding any studies of Lyme with coinfections. Babesia and Bartonella are under different research groups than Lyme, although they're paying a bit more attention to Babesia these days. They don't even acknowledge that Bart is transmitted by ticks. They are decades away from any good scientific research into how these bugs interact and affect symptoms and presentation. All we have to go on is the experience (by trial and error) and observations of the LLMDs.
We desperately need better tests for all of them! This is a sorely neglected field of medicine.
$160 for 45 days is $3.56 per day. Not too bad when you look at it that way.
I still don't get why your doc is treating Lyme and babesia side by side, but that's why he's the doc and I'm not!