Avatar universal

Sound sensitivity

Please help...I am in limbo with finding a good doctor for treatment. I am awaiting more tests/blood results and then I will decide on a doctor. In the meantime, I am starting to experience really bad sound sensitivity. I find everyday sounds are beginning to drive me nuts. I can not tolerate certain sounds anymore, and most times I have to leave the room. This seems to be getting worse. I feel like I am going crazy. Please tell me that this will get better when I start treatment...I am scared because I have noticed the past few weeks my symptoms are getting more and more hard to handle.
3 Responses
Sort by: Helpful Oldest Newest
1094370 tn?1317134825
Hi Eri22,

I was just dx with lyme in January.  I also am having bouts of sound sensitivity.  It comes and goes.  When awoke this morning, I knew that it was going to be a rough day because I noticed it right away.  For me, it comes and goes.  My husband just today asked me if I wanted to go to a Sharks playoff game tomorrow and I said no, it would be too loud.  

Have you been dx with Lyme?  There are others on the board who have sound sensitivity as well.  I hate it.  Sometimes I have difficulty being in the same room with my husband and son.  When my son starts whistling, I go crazy, my husband pops his gum, it drives me crazy to no end and makes my anxiety shoot through the roof.

I do think that once you get treatment, you will see that start to get better.

Good Luck and keep us updated!

Helpful - 0
Avatar universal
Thank you Carrie, it is awful. Sometimes I find myself screaming at my kids..I can not be in the same room with them. Just my husband breathing at night makes me crazy. I have to have him roll over - I want to crawl out of my skin. This diagnosis process is so annoying...I was dx on the Igg Igenex blood tests, but I am seeing an Infectious disease doctor who wants to run his own tests. He does not believe in the Igenex test. I am going to him b/c it is in network and the only doc covered, I know I am just spinning my wheels from what I have read online. After 5 years of symptoms/a diagnosis of hodgkin's lymphoma you think someone would just give me a answer 100%. I know this probably contributed to my lymphoma b/c it was never treated and suppressed my immune system.

From what I have been reading, I am going to have to pay out of pocket for an LLMD, since i have no out-of network benefits. Can anyone give pointers/advice on this?? I know that this is probably a lost cause...I wish there was an easy solution - but I know that many are in my shoes with this disheartening circumstance. If I need treatment for over a year does anyone know how much I can potentially be in the hole for?? I am fearful of 30k+??? Please share any experiences on this if you can so kindly?

Happy to know that it comes and goes! It seems to be a flair this week. I am so thankful there is hope!
Helpful - 0
Avatar universal
If you search "lyme hyperacusis", you will find information that might help.

About the billings, no easy answers.  You can ask your doc for a payment plan, or a fee reduction for compassionate reasons.  For me it came down to paying out of pocket for treatment that worked vs cheaper treatment that was going nowhere.  No brainer of a decision for me, and I've no regrets.

Good luck with the ID doc.  The one I saw lives in an alternate universe.

Best wishes --
Helpful - 0
Have an Answer?

You are reading content posted in the Lyme Disease Community

Top Infectious Diseases Answerers
1415174 tn?1453243103
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Fearing autism, many parents aren't vaccinating their kids. Can doctors reverse this dangerous trend?
Can HIV be transmitted through this sexual activity? Dr. Jose Gonzalez-Garcia answers this commonly-asked question.
A breakthrough study discovers how to reduce risk of HIV transmission by 95 percent.
Dr. Jose Gonzalez-Garcia provides insight to the most commonly asked question about the transfer of HIV between partners.
Before your drop a dime at the pharmacy, find out if these popular cold and flu home remedies are a wonder or a waste
Fend off colds and the flu with these disease-fighting foods