If you search "lyme hyperacusis", you will find information that might help.
About the billings, no easy answers. You can ask your doc for a payment plan, or a fee reduction for compassionate reasons. For me it came down to paying out of pocket for treatment that worked vs cheaper treatment that was going nowhere. No brainer of a decision for me, and I've no regrets.
Good luck with the ID doc. The one I saw lives in an alternate universe.
Best wishes --
Thank you Carrie, it is awful. Sometimes I find myself screaming at my kids..I can not be in the same room with them. Just my husband breathing at night makes me crazy. I have to have him roll over - I want to crawl out of my skin. This diagnosis process is so annoying...I was dx on the Igg Igenex blood tests, but I am seeing an Infectious disease doctor who wants to run his own tests. He does not believe in the Igenex test. I am going to him b/c it is in network and the only doc covered, I know I am just spinning my wheels from what I have read online. After 5 years of symptoms/a diagnosis of hodgkin's lymphoma you think someone would just give me a answer 100%. I know this probably contributed to my lymphoma b/c it was never treated and suppressed my immune system.
From what I have been reading, I am going to have to pay out of pocket for an LLMD, since i have no out-of network benefits. Can anyone give pointers/advice on this?? I know that this is probably a lost cause...I wish there was an easy solution - but I know that many are in my shoes with this disheartening circumstance. If I need treatment for over a year does anyone know how much I can potentially be in the hole for?? I am fearful of 30k+??? Please share any experiences on this if you can so kindly?
Happy to know that it comes and goes! It seems to be a flair this week. I am so thankful there is hope!
Hi Eri22,
I was just dx with lyme in January. I also am having bouts of sound sensitivity. It comes and goes. When awoke this morning, I knew that it was going to be a rough day because I noticed it right away. For me, it comes and goes. My husband just today asked me if I wanted to go to a Sharks playoff game tomorrow and I said no, it would be too loud.
Have you been dx with Lyme? There are others on the board who have sound sensitivity as well. I hate it. Sometimes I have difficulty being in the same room with my husband and son. When my son starts whistling, I go crazy, my husband pops his gum, it drives me crazy to no end and makes my anxiety shoot through the roof.
I do think that once you get treatment, you will see that start to get better.
Good Luck and keep us updated!
Carrie