I WOULD JUST LIKE TO SAY THANK YOU TO ALL OF YOU THAT HAVE TAKEN THE TIME TO COMMENT ON MY JOURNAL POST. WITHOUT ALL OF YOU I DONT KNOW HOW I WOULD HAVE MADE IT THROUGH THE LAST WEEK. I AM SO GLAD THAT I STUMBLED ONTO THIS COMMUNITY IT HAS BEEN THE BEST THING THAT HAS HAPPENED TO ME IN A LONG,LONG TIME. SO THANK YOU TO THOSE OF YOU THAT HAVE REACHED OUT TO ME AND TAKEN THE TIME OUT OF YOUR LIVES TO GIVE ME YOUR SUPPORT, AGAIN YOU ARE MY ANGELS THAT I WISHED FOR. THANK YOU SO MUCH! I LOVE YOU ALL. I HOPE I CAN GIVE BACK TO YOU WHAT YOU HAVE GIVEN TO ME. THANK YOU
Again, I just very much hope and pray the information you have received will help you get the help you need! If your uro wants any more info please let us know!
I was dia with msk 5 yrs ago and need to know what type of surgery helped . Im in so much pain all the time and there are no Dr.s here that are willing to do anything about it . They tell me just to suck it up and take teylenol and that doesnt do anything. I have 4 kids and they are having to grow up without me and I feel like such a desappointment. Jen
I just happended on to this sight,I have MSK's ,was diagnosed eleven years ago,and never realized there are so many oof us out there.When I first was told it seemed as if they new very little about it,and after reading some of these comments they are still not sure why the pain is so bad,I know how you feel Jen1112 I was told I shouldnt have pain as well..Find another dr that takes you seriously,I have four sons and it killed me not to be able to play the sports with them like I could before this..Just dont give up,and look for a dr that will help and send you to pain management
for some reason my other name.. failed log in 1000x.. so I'll try to be back in discussion soon =) Amie
I know what you are saying. I was told I shouldn't have any pain either, but I have it constantly. I have two kids and I feel like I am not being a good enough mom because I am sick all of the time. I was diagnosed 4 yrs ago with MSK, but had issues with stones since 1997. I do have a kidney Dr and a urologist, but they aren't doing anything, but basically telling me to take Tylenol and sodium bicarbonate. I was refered to the pain clinic, but ours said they don't know how to treat it...so here I am right back where I started. I was told I have calcification's and stones embedded as well as having mass amounts of stones in the kidney. I was told my kidney is leaking and that there is protein in my urine. I just don't know what to do. I am tired of hurting and feeling sick, and tired of the uti's constantly. I did have a procedure done that stretched the ureter to help the stones pass easier, but that only worked for about 2 yrs.
I am so glad that I stumbled across this site. I don't feel so alone and overwhelmed now. So many times I've been looked at as if I were crazy when I say I hurt, and it is very frustrating. Whether it be at the ER or even by my kidney Dr and Urologist. My urologist told me my pain was just the muscles in the back around the kidney and to take some tylenol. Tylenol does nothing I'm sorry to say! I just wish they could take the kidney and be done with it, but they won't because it still functions somewhat. I basically sleep all day, go get my kids, and spent time with them as best I can, and am back in bed by 9 p.m. It's a chore just to stay up. I want to be able to enjoy my kids and my my life, but it's just so hard to do. It takes everything I have, but I do the best I can each and everyday. It's very depressing!
I do want to thank Shelly for the great info, I really appreciated it!!
I have been diagnosed with MSK symptoms and inherited this disease. I have been in the hospital on so many occasions with kidney infections, kidney stones and chronic pain. I lost so many jobs regarding this disease and wanted to know if anyone ever filed for disability or can I file for disability because I have been unable to keep a job regarding my issue. Can someone please assist me regarding if I am able to do so not. I'm so glad I stumbled onto this site and I'm wondering why this disease is not being considered as a disability.
Thank you all for being here...I just found this page and it is so nice to know that there are people like me out there...I have been dealing with this for 4 years now....I am so frustrated...thank you all for your input...if nothing more, it is nice to know that there are people like me out there...
thankyou for letting me know I'm not alone. I've been so upset. For me not understanding is the worst.