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Zinner Syndrome (Very Rare) Confirmed
Confirmed Zinner syndrome. Trying to find best doctor/hospital for this condition. Right renal Agensis, giant 10x6.3cm seminal vesicle cyst, and ejaculatory duct obstruction. 1st recommendation of local doctor is cyst removal which includes resection of seminal vesicle and cyst on right side. Patient is 19yrs old. Not certain if the left seminal vesicle works. No ejaculation in 1 yr. Small amounts of ejaculation prior 2 years. concerned about fertility. looking for recommendations or any doctor who has treated zinner syndrome before.
Here is from a scholarly article on the subject. You should probably look up the various doctors referenced and also the doctors who wrote the article or ones like it.
"Several optional treatments are available for this rare anomaly. Existence of bothersome symptoms is a significant factor that can affect the decision for treatment. Most investigators recommend treatment only for symptomatic patients. We have faced different treatment modalities, including medical treatment, percutaneous drainage, transurethral aspiration and alcohol injection, transrectal aspiration, laparoscopy, and even open cyst surgery in the literature. Kajita et al. reported effectiveness of percutaneous seminal vesicle cyst drainage in a patient with Zinner’s syndrome. They found no recurrence at 5-month followup. Van den Ouden et al. reviewed diagnosis and management of 52 patients with Zinner’s syndrome in a pooled analysis. They reported cure rate of 100% and 75% for open surgery and transurethral unroofing of the cyst, respectively. They also concluded that cyst aspiration should be used only for diagnosis due to its low success rate (30%). Kao et al. performed transrectal aspiration of the seminal vesicle cyst in a patient with bladder outlet obstruction due to seminal vesicle cyst. They noted improvement in the lower urinary tract symptoms and increase in mean urinary flow rate after the procedure. Seo et al. performed laparoscopic surgery with transperitoneal approaches as a minimally invasive modality in the management of 4 patients with congenital seminal vesicle cyst associated with ipsilateral renal agenesis. They noted mean hospital stay of 6.8 days and no operative complications or transfusions."
"Several optional treatments are available for this rare anomaly. Existence of bothersome symptoms is a significant factor that can affect the decision for treatment. Most investigators recommend treatment only for symptomatic patients. We have faced different treatment modalities, including medical treatment, percutaneous drainage, transurethral aspiration and alcohol injection, transrectal aspiration, laparoscopy, and even open cyst surgery in the literature. Kajita et al. reported effectiveness of percutaneous seminal vesicle cyst drainage in a patient with Zinner’s syndrome. They found no recurrence at 5-month followup. Van den Ouden et al. reviewed diagnosis and management of 52 patients with Zinner’s syndrome in a pooled analysis. They reported cure rate of 100% and 75% for open surgery and transurethral unroofing of the cyst, respectively. They also concluded that cyst aspiration should be used only for diagnosis due to its low success rate (30%). Kao et al. performed transrectal aspiration of the seminal vesicle cyst in a patient with bladder outlet obstruction due to seminal vesicle cyst. They noted improvement in the lower urinary tract symptoms and increase in mean urinary flow rate after the procedure. Seo et al. performed laparoscopic surgery with transperitoneal approaches as a minimally invasive modality in the management of 4 patients with congenital seminal vesicle cyst associated with ipsilateral renal agenesis. They noted mean hospital stay of 6.8 days and no operative complications or transfusions."
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