i havent gave up hope yet , but its been 2yrs now. my doctor has gave up on helping me. i dont know if she just dont know how to help or dont believe me. i had a bad one and passed out and have lost my vision for about a min. i went to the er and had a cat scan done and nothing was found. i have a good neuro sugeron but he dont see me except for my yearly mri, told me to see my neuro for headaches and a speacialist.i have a screw that i can feel and it gets sore. the zomig helps me to but it dont last long , the taste is still there when the headache comes back.ive had the nerve block shots in my neck,just made them worse.i have heard about a crainotomy headache im going to ask my neuro about .i get very moody and cant stand noise or light , it just makes it worse. is it the same for you? wish you the best , dont lose your hope . brainpain
Yes I do have swollen temples! Wow, I'm sorry you had to go thru all that too! It was my pleasure serving the country.....my scar gets real tender after all my headaches and the pain radiates over both my eyes.....I take zomig for the migraines, which seems to work, but I'm afraid of becoming addicted, my doctors continuously warn me about that...Ive tried a lot of meds too and nothing seems to work.....nothing shows up in my MRIs either....but the next time I see my neurologist I'm going to ask for a CT scan. In the past before my second surgery they saw nothing that was leading to my stroke on the right side. When I got a CT scan by MISTAKE they then saw that my left ventricle had been blocked. I still have hope...do you? I wish you and your family the best....thank you for getting back to me....
Alaina
hi, i know how you feel . i had a crainotomy 2yrs ago for a 22 mm pituitary tumor. i have the same pain in my head as you do.my scar gets a sore spot after a bad one,does yours? i have headaches daily the pain is at my scar on left side goes to center of my brain,above my left eye.im sorry im asking you questions but your the only person with the same pain.does your temple swell ? doctors have gave up on helping me and when i get a very bad one i have to go to the er. i did get a script for zomig nasil spray it helpes but dont last long.nothing shows up on my mri , thankfully the tumor is still gone. i have tried so many meds , like you cant rember there names. thanks for your service in the military , sorry you had to go threw this serving our country. take care of your self.wish you the best, brainpain