Aa
Update to worlds longest headache - was 18 years, now 23!
Yep, another five (5) years under my belt and now 201,500 hours of 24/7 CONTINUOUS chronic pain, about 8 to 9 on the old pain scale!
Much has happened with the end result being location of DVT in a pretty big vein deep inside my brain. Result of an old infection and now completely blocked off with old scarring and tissue.
Impossible to be treated and appears it will not kill me - damn!
No support from wife or family or who long ago lost interest, sympathy and understanding for Dad's Headache!
Off all painkillers, anti depressants now as pain is so intense and no medication works anymore.
Not afraid of dying, just afraid of living, something I hope is pretty short lived !
All that keeps me going is my dog! Sad isn't it!
When I , half my entire adult life will have been living with chronic pain and nobody really cares about moi anymore, just mi dawg!
Much has happened with the end result being location of DVT in a pretty big vein deep inside my brain. Result of an old infection and now completely blocked off with old scarring and tissue.
Impossible to be treated and appears it will not kill me - damn!
No support from wife or family or who long ago lost interest, sympathy and understanding for Dad's Headache!
Off all painkillers, anti depressants now as pain is so intense and no medication works anymore.
Not afraid of dying, just afraid of living, something I hope is pretty short lived !
All that keeps me going is my dog! Sad isn't it!
When I , half my entire adult life will have been living with chronic pain and nobody really cares about moi anymore, just mi dawg!
My sister has had a non-stopping headache since July 2022.
I’ve looked up many things, and also recommended intermittent fasting which i know for sure can cure headaches, but she is being told by the rest of my family to just continue living which sucks because it’s not true that she can’t heal. She is being influenced by their advise and that’s not allowing me to persuade her of how important it is to look into what i tell her, not because i say so, but because Health professionals say so.
The possible causes of headaches i looked into to name a few (she didn’t really try to find out if it’s one of these as she never completed anything she started) are:
1- hypoglycaemia
2- low progesterone
3- hormonal headaches
4- coffee withdrawals (it affects adenosine levels making you have more adenosine which dilates your blood vessels
5- rabies
6- blood vessels dilation
7- insomnia
8- shedding from people who were jabbed with the bias
covid-19 jab (all injections are trash)
9- peripheral nerve damage affecting the nervous system as she’s had non-stopping sympathetic nervous system activated since November 2022
10- amygdala hijack, which dilates the brain’s blood vessels and also affects your body’s blood circulation as it maintains activated the sympathetic nervous system putting you on the fight or flight or shutdown or free mode which requires more oxygen going to your lungs and more oxygen and therefore more blood going to your heart to keep you alive against the tiger that’s not even there (it’s useful only if there really is a tiger representing a danger for you)
11- lack of sodium
12- using oxytocin nasal spray (she didn’t try it, but it must mean lack of oxytocin is a potential cause of a headache as well)
13- liver damage by alcohol (there may be more)
14- birth pills, because they cause heavy metal poisoning, hormone imbalance and high D-dimers in the blood
15- heavy metal poisoning
16- physical trauma
17- alcohol (ruins your brain affecting the neurotransmitters and the hormone system in your body which can’t work well when certain parts of the brain like the hypothalamus are affected, or the pineal gland or pituitary gland or some others)
There’s many potential solutions depending on what’s the cause, i’m going to name only a few, but again, my sister didn’t really completely follow any protocol from beginning to end:
1- intermittent fast
2- Kangen Water (drinking enough which she doesn’t)
3- sea water
4- celery juice every day
5- Making sure you take enough potassium citrate and magnesium citrate daily to make sure you have enough energy to sleep, yes, because sleep requires a tremendous amount of energy! And getting enough sleep is a potential way to get rid of your headache
6- reishi
7- magnesium l-threonate
8- a glass of water with ginger powder
9- chiropractic
10- chaste tree with diindolylmethane (known as DIM)
11- doing a heavy metal detoxification
12- doing a spike protein detoxification
13- GenesisGold.com (i’m NOT affiliated to them) to give the nutrients to the hypothalamus in the brain which is the key of Health within the body as it controls practically every single body system if not all of them
14- gelsemium sempervirens which is a homeopathic remedy
15- supplementing with some nerve damage repair
16- multiple B vitamins or the B1 called thiamine tetrahydrofurfuryl disulfide
17- reduction of candida as it is a MUST to avoid suffering when cleansing the liver and because candida makes 71 toxins and it keeps your liver too busy unnecessarily
18- liver cleanse where you pee cholesterol that could be almost the size of marbles maybe (not painful, it’s just cholesterol), cholesterol that’s been clogging your liver ducts
18- garlic for better blood circulation to counter high D-dimers which can be caused by birth pills, physical trauma like the multiple shoulder dislocations my sister had or graphene oxide from contamination from a person who was jabbed with the bias covid-19 jab (again, all jabs are bias, the technique itself is bias, we got a gut for a reason, and saying injections are required is saying God is stupid, which of course He is not!)
19- holding the breath under water to help regulate the heart beat and the breathing, not have short breath anymore and get back to the parasympathetic nervous system which her headache is linked to because when she laughs she doesn’t feel the headache and she feels calming (only while she laughs)
20- cardiac coherence
21- going camping during Winter to train the amygdala so it can stop hijacking the brain, or it could be also during Summer
22- i have to look into amygdalin to find out whether that vitamin can help against amygdala hijack because the similarity in the name intrigues me, maybe it has nothing to do with it, but i doubt it…
I’ve looked up many things, and also recommended intermittent fasting which i know for sure can cure headaches, but she is being told by the rest of my family to just continue living which sucks because it’s not true that she can’t heal. She is being influenced by their advise and that’s not allowing me to persuade her of how important it is to look into what i tell her, not because i say so, but because Health professionals say so.
The possible causes of headaches i looked into to name a few (she didn’t really try to find out if it’s one of these as she never completed anything she started) are:
1- hypoglycaemia
2- low progesterone
3- hormonal headaches
4- coffee withdrawals (it affects adenosine levels making you have more adenosine which dilates your blood vessels
5- rabies
6- blood vessels dilation
7- insomnia
8- shedding from people who were jabbed with the bias
covid-19 jab (all injections are trash)
9- peripheral nerve damage affecting the nervous system as she’s had non-stopping sympathetic nervous system activated since November 2022
10- amygdala hijack, which dilates the brain’s blood vessels and also affects your body’s blood circulation as it maintains activated the sympathetic nervous system putting you on the fight or flight or shutdown or free mode which requires more oxygen going to your lungs and more oxygen and therefore more blood going to your heart to keep you alive against the tiger that’s not even there (it’s useful only if there really is a tiger representing a danger for you)
11- lack of sodium
12- using oxytocin nasal spray (she didn’t try it, but it must mean lack of oxytocin is a potential cause of a headache as well)
13- liver damage by alcohol (there may be more)
14- birth pills, because they cause heavy metal poisoning, hormone imbalance and high D-dimers in the blood
15- heavy metal poisoning
16- physical trauma
17- alcohol (ruins your brain affecting the neurotransmitters and the hormone system in your body which can’t work well when certain parts of the brain like the hypothalamus are affected, or the pineal gland or pituitary gland or some others)
There’s many potential solutions depending on what’s the cause, i’m going to name only a few, but again, my sister didn’t really completely follow any protocol from beginning to end:
1- intermittent fast
2- Kangen Water (drinking enough which she doesn’t)
3- sea water
4- celery juice every day
5- Making sure you take enough potassium citrate and magnesium citrate daily to make sure you have enough energy to sleep, yes, because sleep requires a tremendous amount of energy! And getting enough sleep is a potential way to get rid of your headache
6- reishi
7- magnesium l-threonate
8- a glass of water with ginger powder
9- chiropractic
10- chaste tree with diindolylmethane (known as DIM)
11- doing a heavy metal detoxification
12- doing a spike protein detoxification
13- GenesisGold.com (i’m NOT affiliated to them) to give the nutrients to the hypothalamus in the brain which is the key of Health within the body as it controls practically every single body system if not all of them
14- gelsemium sempervirens which is a homeopathic remedy
15- supplementing with some nerve damage repair
16- multiple B vitamins or the B1 called thiamine tetrahydrofurfuryl disulfide
17- reduction of candida as it is a MUST to avoid suffering when cleansing the liver and because candida makes 71 toxins and it keeps your liver too busy unnecessarily
18- liver cleanse where you pee cholesterol that could be almost the size of marbles maybe (not painful, it’s just cholesterol), cholesterol that’s been clogging your liver ducts
18- garlic for better blood circulation to counter high D-dimers which can be caused by birth pills, physical trauma like the multiple shoulder dislocations my sister had or graphene oxide from contamination from a person who was jabbed with the bias covid-19 jab (again, all jabs are bias, the technique itself is bias, we got a gut for a reason, and saying injections are required is saying God is stupid, which of course He is not!)
19- holding the breath under water to help regulate the heart beat and the breathing, not have short breath anymore and get back to the parasympathetic nervous system which her headache is linked to because when she laughs she doesn’t feel the headache and she feels calming (only while she laughs)
20- cardiac coherence
21- going camping during Winter to train the amygdala so it can stop hijacking the brain, or it could be also during Summer
22- i have to look into amygdalin to find out whether that vitamin can help against amygdala hijack because the similarity in the name intrigues me, maybe it has nothing to do with it, but i doubt it…
Hello sir, have you ever contacted or considered contacting Guiness World Record about certifying this headache as the world's longest? just curious...
Im sorry I know how it feels I don t know if you have tried this but I have had the Same thing for 7 years and Im 15 nothing ever helped me the doctors tried nearly every medication that I was aloud but I tried taking magnesium supplements and I took two a day I think for a year or two and they helped so much my headache used to me around 8 or 9 all day and although I had learned to ignore it I can hardly feel it its around a 1-3 some times the worst is 6. I dont know if that had been me getting used to it or not but I would suggest taking the magnesium I came off of it 1 year ago and I still have no problems and I shouldnt have but if I do then I would start taking them again. They do take a minimum of three months to get into your system but it was worth it. GOOD LUCK
You haven't tried every drug, theres just one left and at the point your at, you've got nothing to lose, so how about taking a drug nurse you spiritual life, yes prayer, to the Almighty.
I'm coming up on my second year and moved across the country so I could keep the pain in the 6-7.5 range instead of 8-9. The only way I've survived is by using my techniques as a hypnotherapist and from psychotherapy. If you want to contact me, even just to talk, my website is www.franzblauhypnosis.wordpress.com.
The doctors are trying, regular people are threatened by the knowledge that conditions like this can exist, and thank god for animals.
I think those of us with what I have to call a continuous migraine need to get together and find our own creative ways to cope. I started having auras at 5, pain at 6, so I grew up with migraines as a normal part of my development.
Susan
The doctors are trying, regular people are threatened by the knowledge that conditions like this can exist, and thank god for animals.
I think those of us with what I have to call a continuous migraine need to get together and find our own creative ways to cope. I started having auras at 5, pain at 6, so I grew up with migraines as a normal part of my development.
Susan
Sorry to hear about your hubby. In what ways is he not supportive? Does he think that you should be doing more than you are able to do? Don't expect him to be saying comforting things to you. Most husbands are not that communicative. My husband has taken me to the ER many times in the past before my Botox injections and then I also needed to wear Butrans patches to stop the ER trips. He is very understanding about my very limiting activities. But he does not emotionalize about my pain. Let me know. I'm here to support you 100%. There are ways that I can suggest to help your husband to be more understanding. You take care.
This helps tone down and sometimes eliminate my headaches altogether. I
It is a SKIN GEL. The ingredients of the inflammation gel that requires a special pharmacy to mix up are: Amitrityline-2%, Ketoprofen – 10%, Gabapentin – 3%, Lidocaine – 2% and Transdermal Gel – 60 g. By prescription. I use it many days of the month. No rebound headaches because it doesn't get into the blood stream. Especially helps when the migraines are milder. But of course timing is always important. Getting them early usually prevents the more serious ones. But not always.
It is a SKIN GEL. The ingredients of the inflammation gel that requires a special pharmacy to mix up are: Amitrityline-2%, Ketoprofen – 10%, Gabapentin – 3%, Lidocaine – 2% and Transdermal Gel – 60 g. By prescription. I use it many days of the month. No rebound headaches because it doesn't get into the blood stream. Especially helps when the migraines are milder. But of course timing is always important. Getting them early usually prevents the more serious ones. But not always.
Hi there Airbus, Sarah and others,
I continue to plod along with my 8 year headache that like yours has no cure.
I replied to you, Airbus,a while back on a different thread. I'm in a similar boat in terms of my hubby's diminishing support and also have a very understanding dog. My little doggy, named Peanut aka Nutty is the main source of joy in life like yours is to you.
I now see a pain psychologist which is helping some. I basically vent to her a lot, but have also learned some coping mechanisms. She was the one who suggested a companion doggy.
One suggestion I have is that you might wean off of the Junista (since it stopped working for you) and then stay off of it for a few months. Then you can restart it and it might work again. I did a wean about a year ago. I was taking 60 mg of OxyContin three times a day and 16 mg of dilaudid four times a day. LSS I weaned off and reset my clock, so to say. I am now actually getting relief again and only on 20 mg. of oxyC and take 5 mg of oxycodone no more than three a day. So yes, I will have to increase as my tolerance builds but at least I know that I can reset again when I get to high med levels that no longer work.
I've also doing Botox injections every 3 months, use ice packs, use lidocaine to do my own blocks, and get bilateral radio frequency ablations to my supra orbital and sphenopallatine nerves every six months. All of this helps a little and I am having some actual pain free days. Not many of these, but enough that I now can remember what it feels like.
When I have a good day now I spoil my peanut like crazy. The hubby tries and just doesn't get it, I get support from folks who do. Peanut helps him too!
Now I have a few head pain buddies and we talk, laugh, cry and vent with each other. It's oddly comforting to know you are not alone and that there are others who get it.
Anyways I thought I'd drop by and say hi. Also thought I'd share some things that help me.
Horselip
I continue to plod along with my 8 year headache that like yours has no cure.
I replied to you, Airbus,a while back on a different thread. I'm in a similar boat in terms of my hubby's diminishing support and also have a very understanding dog. My little doggy, named Peanut aka Nutty is the main source of joy in life like yours is to you.
I now see a pain psychologist which is helping some. I basically vent to her a lot, but have also learned some coping mechanisms. She was the one who suggested a companion doggy.
One suggestion I have is that you might wean off of the Junista (since it stopped working for you) and then stay off of it for a few months. Then you can restart it and it might work again. I did a wean about a year ago. I was taking 60 mg of OxyContin three times a day and 16 mg of dilaudid four times a day. LSS I weaned off and reset my clock, so to say. I am now actually getting relief again and only on 20 mg. of oxyC and take 5 mg of oxycodone no more than three a day. So yes, I will have to increase as my tolerance builds but at least I know that I can reset again when I get to high med levels that no longer work.
I've also doing Botox injections every 3 months, use ice packs, use lidocaine to do my own blocks, and get bilateral radio frequency ablations to my supra orbital and sphenopallatine nerves every six months. All of this helps a little and I am having some actual pain free days. Not many of these, but enough that I now can remember what it feels like.
When I have a good day now I spoil my peanut like crazy. The hubby tries and just doesn't get it, I get support from folks who do. Peanut helps him too!
Now I have a few head pain buddies and we talk, laugh, cry and vent with each other. It's oddly comforting to know you are not alone and that there are others who get it.
Anyways I thought I'd drop by and say hi. Also thought I'd share some things that help me.
Horselip
Thanks very much for your comments and sentiments!
Yeh, zillions of us chronic pain sufferers out there but the Docs eventually give up on us and just keep dealing out the drugs!
Yeh, zillions of us chronic pain sufferers out there but the Docs eventually give up on us and just keep dealing out the drugs!
Hi Sara, Yep, Serepax is the shot for me, just one of those drugs that seems to work, I never get addicted to with zero side effects. just perks me for about 6-8 hours before I take the second and last one for the day.
It is the same as Klonopin so same ingredients I guess!
You are in much worse shape than me sadly but you always cheer me up with your responses!
I have found that 100 mg of Pristiq works pretty good for me for deep seated depression and the Serepax to maker me better on the surface!
I just have to give up on the headache but it is always there in a dizzy, drowsy, sleepy WAY as well as the pain and I can drop off to sleep in a minutes notice!
I took a vita-mix tablet called Protrandim a few years back that definitely perked me up but, liker most vitamins, it's effect wore off but I have given it another try again on double the dose to see what happens. The urine test before and after I took it fgor several months was truly astonishing it the difference but doesn't mean to say it was doing any good.
The Net is alive with the Pros and Coins of it's value!
I'd eat scorpions, cobras and rattlesnakes (alive) if I could just wake up one morning without constant pain. Really gets me down and at best get three hours sleep a night that cant be doing me any good either!
Anyhow, keep on trucking and please look after yourself. Drop me a line if you are ever feeling down and out and want a chat eh?
***@****
Cheers
Ian
It is the same as Klonopin so same ingredients I guess!
You are in much worse shape than me sadly but you always cheer me up with your responses!
I have found that 100 mg of Pristiq works pretty good for me for deep seated depression and the Serepax to maker me better on the surface!
I just have to give up on the headache but it is always there in a dizzy, drowsy, sleepy WAY as well as the pain and I can drop off to sleep in a minutes notice!
I took a vita-mix tablet called Protrandim a few years back that definitely perked me up but, liker most vitamins, it's effect wore off but I have given it another try again on double the dose to see what happens. The urine test before and after I took it fgor several months was truly astonishing it the difference but doesn't mean to say it was doing any good.
The Net is alive with the Pros and Coins of it's value!
I'd eat scorpions, cobras and rattlesnakes (alive) if I could just wake up one morning without constant pain. Really gets me down and at best get three hours sleep a night that cant be doing me any good either!
Anyhow, keep on trucking and please look after yourself. Drop me a line if you are ever feeling down and out and want a chat eh?
***@****
Cheers
Ian
Oh my sweet Airbus. I'm on Pristiq too. But I'm also on Klonopin which is an anti-anxiety medication which I read that Serepax is. I need it for my involuntary jerking caused by my stroke, otherwise would not be able to sleep at all. But in the process it has taken away a mild form of anxiety that I was only vaguely aware of, but was with me constantly. And then I would suddenly have extreme anxiety about absolutely nothing. All that is now gone. So can't you get on something like Klonopin which is available in a generic?
You sound a lot better than your posting above, nearly 2 years ago. I know that you would rather be a whole lot better than you are however.
I have next to no life with all my medical problems including the 24/7 migraines plus other major pain issues. But I have made peace with it. But then I do have a wonderful husband. He has all the freedom that he wants to work on his hobbies and does all of his socializing without me. He used to get upset about me never being able to go to anything, but has gotten adjusted to it.
Forget about the better pain killers--LOL . I'm with my neurologist who keeps saying that he wishes that we could figure out how to get rid of my migraines.
I do wish you a good rum and coke. I cannot drink anything alcoholic with my Butrans patches as well as probably a bunch of other medications, but I'm with you in spirit.
You sound a lot better than your posting above, nearly 2 years ago. I know that you would rather be a whole lot better than you are however.
I have next to no life with all my medical problems including the 24/7 migraines plus other major pain issues. But I have made peace with it. But then I do have a wonderful husband. He has all the freedom that he wants to work on his hobbies and does all of his socializing without me. He used to get upset about me never being able to go to anything, but has gotten adjusted to it.
Forget about the better pain killers--LOL . I'm with my neurologist who keeps saying that he wishes that we could figure out how to get rid of my migraines.
I do wish you a good rum and coke. I cannot drink anything alcoholic with my Butrans patches as well as probably a bunch of other medications, but I'm with you in spirit.
You are my good (old) reliable supporter Sara!
Yep, tried all the patches and several treatments of Botox but surprise surprise........ No joy!
At the moment I am probably a five out of ten on the quality of life scale! Although I have been on the Jurnista 32 mg for about three years, it still helps me out a bit .......... Not a lot but OK.
I have switched my anti depression pills around, now on a great BP tablet and can get through the day not too bad.
I'm now on an anti called PRISTIQ that is working reasonably well but the old SEREPAX 30 mg twice a day is still my life saver!
Wouldn't say I'm a happy little black duck but I think I heave kind of accepted that what I am is what I am!
Keep waiting for a better pain killer to come along ............ Like squillions of others no doubt.
Funny thing is that other than the 24/7 headache I can never recall ever being sick in the last thirty if so years! All my tests come up as A1 and that frustrates the hell out of me, to feel so healthy but destroyed by the pain!
Oh well, maybe a rum and coke now might be the ticket!
Yep, tried all the patches and several treatments of Botox but surprise surprise........ No joy!
At the moment I am probably a five out of ten on the quality of life scale! Although I have been on the Jurnista 32 mg for about three years, it still helps me out a bit .......... Not a lot but OK.
I have switched my anti depression pills around, now on a great BP tablet and can get through the day not too bad.
I'm now on an anti called PRISTIQ that is working reasonably well but the old SEREPAX 30 mg twice a day is still my life saver!
Wouldn't say I'm a happy little black duck but I think I heave kind of accepted that what I am is what I am!
Keep waiting for a better pain killer to come along ............ Like squillions of others no doubt.
Funny thing is that other than the 24/7 headache I can never recall ever being sick in the last thirty if so years! All my tests come up as A1 and that frustrates the hell out of me, to feel so healthy but destroyed by the pain!
Oh well, maybe a rum and coke now might be the ticket!
Again, I am so sorry to hear that nothing has helped you. Sorry to hear that the Botox didn't help you. It didn't help me at all until the dose was greatly increased. Hope that you got a fair trial of it.
Also to everyone else, I had a few pricks on my forehead for about a day or so which I proudly said was my badge of honor--showing people that I do whatever it takes to get better--LOL. Also getting a prescription for a lidocaine cream reduced both the pain and the pinpricks from showing.
Also the Butrans patches have helped me to stay out of the ER and allowed me to move around a bit more without the migraines getting so horrible. Did you ever try those? It is a narcotic. There's always a reason to try something new if it will help your pain even just a little. You take care.
Sara
Also to everyone else, I had a few pricks on my forehead for about a day or so which I proudly said was my badge of honor--showing people that I do whatever it takes to get better--LOL. Also getting a prescription for a lidocaine cream reduced both the pain and the pinpricks from showing.
Also the Butrans patches have helped me to stay out of the ER and allowed me to move around a bit more without the migraines getting so horrible. Did you ever try those? It is a narcotic. There's always a reason to try something new if it will help your pain even just a little. You take care.
Sara
Yep, been there dun that with the Botox in the neck, forehead til I looked like a pincushion! Had CAT Scans of neck, shoulders and nothing there to get excited about.
As the pain is in the front of my forehead and none in the neck or other parts of head, most specialists say it would not be from neck issues.
Thanks again for your advices!
As the pain is in the front of my forehead and none in the neck or other parts of head, most specialists say it would not be from neck issues.
Thanks again for your advices!
Neck pain can indicate a source of your head pain. Have you tried nerve block and trigger point injections in your head, neck and shoulders? That has helped me a lot. And if you have headaches at least 15 days a month, then you would be a good candidate for Botox injections which have helped me the most. I'm assuming that you have tried at least several daily preventative migraine medications. Let me know what they have offered to you.
i think medical is advanced & day by day it will have more solution to the problems, who knows by end of year we may have solution.
i am sure u will get cured.
i am sure u will get cured.
I have so much empathy for you. Losing the support of your family is difficult- I stopped many years ago complaining about or discussing this issue with my family, friends or co-workers. My boyfriend admits he does not understand and actually he says I should just quit all the doctors and medications. Maybe he is right.
What no one who is not in this situation cannot understand is the immense frustration of the run around by the physicians. Also that it is very difficult to continue to seek care when you feel like absolute crap every single day. I have to go to work, act like nothing is wrong, perform at 100% every day (I am a veterinarian) and then find time and energy to continue to seek care and try to get better.
So.... no wonder you are frustrated and simply want the pain to end. I completely get this. I have been to 6 different neurologists in the past 3 years. My head and neck pain is worse, not better.
I am hoping for a miracle at this point!
What no one who is not in this situation cannot understand is the immense frustration of the run around by the physicians. Also that it is very difficult to continue to seek care when you feel like absolute crap every single day. I have to go to work, act like nothing is wrong, perform at 100% every day (I am a veterinarian) and then find time and energy to continue to seek care and try to get better.
So.... no wonder you are frustrated and simply want the pain to end. I completely get this. I have been to 6 different neurologists in the past 3 years. My head and neck pain is worse, not better.
I am hoping for a miracle at this point!
And I'm still contemplating what it would be like just to not wake up one morning, pity is I wouldn't feel it would I? Wouldn't know the pleasure of it!
I've had no more tests or X-rays etc. but have been messing about with anti depressant tablets and still on 32mg Jurnista that has pretty well stopped working after almost four years of taking it now.
My nerves and emotions are completely shattered and I can't remember the last time I laughed over anything. All that keeps me going is my five year old dog who is like a third leg to me. Never lets me out of his sight and is a wonderful companion. My wife continues not to give a rats about me and I guess I can understand that after all this time. Even my doctor just treats me like a customer at the supermarket, come in, hello, here's your scripts, goodbye!
If I ask what else can be done, just get a shake of the head and nothing!
I really do fear that if anything happened to my mutt, I would end it all. I have "some tablets" stored away that I know will do the trick but too worried of what would happen to my pooch. Sad isn't it when all you have left in life is a dog! Family couldn't care less, doctors don't care, sigh, what a mess I'm in!
I go and hide in another bedroom so I won't annoy my wife when I put a nice pack on my head - that does no real good - just shut myself away from everybody!
That's is guys, I'm probably in the worse shape I've ever been in though I've had the occasional feeling sometimes I might be on the improve but it's only a temporary relief for a week or two and then all downhill again.
Bugga!
I've had no more tests or X-rays etc. but have been messing about with anti depressant tablets and still on 32mg Jurnista that has pretty well stopped working after almost four years of taking it now.
My nerves and emotions are completely shattered and I can't remember the last time I laughed over anything. All that keeps me going is my five year old dog who is like a third leg to me. Never lets me out of his sight and is a wonderful companion. My wife continues not to give a rats about me and I guess I can understand that after all this time. Even my doctor just treats me like a customer at the supermarket, come in, hello, here's your scripts, goodbye!
If I ask what else can be done, just get a shake of the head and nothing!
I really do fear that if anything happened to my mutt, I would end it all. I have "some tablets" stored away that I know will do the trick but too worried of what would happen to my pooch. Sad isn't it when all you have left in life is a dog! Family couldn't care less, doctors don't care, sigh, what a mess I'm in!
I go and hide in another bedroom so I won't annoy my wife when I put a nice pack on my head - that does no real good - just shut myself away from everybody!
That's is guys, I'm probably in the worse shape I've ever been in though I've had the occasional feeling sometimes I might be on the improve but it's only a temporary relief for a week or two and then all downhill again.
Bugga!
Thanks for your comments. I am impressed that you have tried to keep working in a technical, complex and fast moving occupation. That says a lot for you. Good luck with your therapy sessions. You get out of it what you spend time on the exercises outside of the session, which I'm sure you will be dedicated as your comments show. Best to you.
It has been almost two years since I have responded to this thread. I have had three more shunt revision surgeries for a total of five brain surgeries (Apr 2012, May 2012, Jul 2012, Feb 2013, and Jul 2013) to address my subarachnoid cyst. The cyst was rather large (12 cm by 5cm x 6cm) which caused severe headaches, difficulty talking and significant cognitive issues. The shunts are in place to ensure that the fluid does nto build up anymore. The headaches are virtually gone. I am starting therapy next week to improve my speech and improve my cognitive abilities. I am a quality engineer that was employed at a robotics company. I have left the robotics company and moved to a company that makes proton therapy equipment that treats cancer in hospitals. This condition has made my home life and particularly my work life very difficult due to speech and cognitive issues that has made day to day life fairly difficult. I have struggled to continue to work as an engineer in very complex and fast moving environments. However, there is light at the end of the tunnel. I am starting physical therapy next week to help improve my speech and cognitive issues. I am a very private person that normally does not “share” anything. I do not use facebook, twitter or any other media. However, I was looking for information on my condition and found this thread. I want to share my improvement in the hope of offering some kind of hope to others in similar situations. Airbus, I am very pleased to see the improvements in your both your physical health and mental health. Warm Regards.
Airbus, What a sweet, caring message from you. I am so glad that there is some light in your life. God knows that it must be hard. Thanks so very much for getting back to me. Sorry that I didn't catch it until now.
You did mention some depression in your message. My severe depression was the most pain that I have ever endured. The pain was so bad that I constantly bargained with myself to not commit suicide. Now my depression is controlled by an antidepressant. And also from Klonopin which I need to take for my involuntary jerking caused by my stroke. But it is also an anti-anxiety med which has also helped my outlook.
So if you can get any better treatment for your depression, that would make a HUGE difference in your quality of life. It makes everything worse.
Things have gotten a bit better for me as far as my migraines due to better placed locations and increased quantities of Botox. Also a TENS unit has helped me.
I am truly sorry for your long road of pain. But you are a good person. You take care.
Sara
You did mention some depression in your message. My severe depression was the most pain that I have ever endured. The pain was so bad that I constantly bargained with myself to not commit suicide. Now my depression is controlled by an antidepressant. And also from Klonopin which I need to take for my involuntary jerking caused by my stroke. But it is also an anti-anxiety med which has also helped my outlook.
So if you can get any better treatment for your depression, that would make a HUGE difference in your quality of life. It makes everything worse.
Things have gotten a bit better for me as far as my migraines due to better placed locations and increased quantities of Botox. Also a TENS unit has helped me.
I am truly sorry for your long road of pain. But you are a good person. You take care.
Sara
My sympathies for you airbus and sarah and the rest of you.
You do seem very mature and intelligent in your way of reasoning and I think that you are correct in almost all you write.
People do forget. Life is hard.
To lose friends and family to the point where you feel that there is nothing left, that is really hard.
Life ***** and there is nothing we can do about it sometimes.
You have my sympathy, for what it is worth.
You do seem very mature and intelligent in your way of reasoning and I think that you are correct in almost all you write.
People do forget. Life is hard.
To lose friends and family to the point where you feel that there is nothing left, that is really hard.
Life ***** and there is nothing we can do about it sometimes.
You have my sympathy, for what it is worth.
Hey, I wanted to tell you that I think you are a very brave man.
I understand what you said, about the pain of losing the support and interest of your family being the worst of all. It´s good that you try to see things from their perspective too, to understand them, but nevertheless it must be heartbreaking.
It´s a tough world, and there is so much suffering. Unfortunately most people only realize how much others suffer when they are in pain themselves. Maybe you can use that knowledge and that empathy to help others, at least if your physical condition lets you. There are so many mistreated animals in this world, so many children in need, so many lonely people,... Helping others will make you feel good about yourself, and that might make your life more bearable, despite the pain.
I´m sorry if I sound too moralistic, I just wanted to share this thought with you because I´ve been struggling with depressions for the last 15 years (and I´m only 33), and it´s that attitude that has helped me the most, more than all those antidepressants.
You have moved me very much with your story. I wish you all the best.
I understand what you said, about the pain of losing the support and interest of your family being the worst of all. It´s good that you try to see things from their perspective too, to understand them, but nevertheless it must be heartbreaking.
It´s a tough world, and there is so much suffering. Unfortunately most people only realize how much others suffer when they are in pain themselves. Maybe you can use that knowledge and that empathy to help others, at least if your physical condition lets you. There are so many mistreated animals in this world, so many children in need, so many lonely people,... Helping others will make you feel good about yourself, and that might make your life more bearable, despite the pain.
I´m sorry if I sound too moralistic, I just wanted to share this thought with you because I´ve been struggling with depressions for the last 15 years (and I´m only 33), and it´s that attitude that has helped me the most, more than all those antidepressants.
You have moved me very much with your story. I wish you all the best.
Dear Airbus,
Sorry to hear about your long lived headaches. My wife suffers from them as well and we know her triggers. Like you much has not helped her except Maxalt MLT 10mg if caught fast enough or if they are not weather related.
She has had success with EEG Neurofeedback. If you want to investigate this option search engine the term ISNR Neurofeedback and that will help get you started on the subject. Some insurers cover this treatment. It is noninvasive and is not a drug. If I hadn't witnessed her results I would never have believed such a treatment could work but it does. Her three day long migraines have been reduced to less then 12 hours in many cases and for us this is a success. She's had well over 2,500 migraine days since 1994 following post surgical brain aneurysm clipping. I hope this treatment will help you regain some of what you have lost. Good luck and keep me posted as I do watch this site.
Sorry to hear about your long lived headaches. My wife suffers from them as well and we know her triggers. Like you much has not helped her except Maxalt MLT 10mg if caught fast enough or if they are not weather related.
She has had success with EEG Neurofeedback. If you want to investigate this option search engine the term ISNR Neurofeedback and that will help get you started on the subject. Some insurers cover this treatment. It is noninvasive and is not a drug. If I hadn't witnessed her results I would never have believed such a treatment could work but it does. Her three day long migraines have been reduced to less then 12 hours in many cases and for us this is a success. She's had well over 2,500 migraine days since 1994 following post surgical brain aneurysm clipping. I hope this treatment will help you regain some of what you have lost. Good luck and keep me posted as I do watch this site.
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