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Vestibular Migraine Diagnose and Rehab Therapy

42 year old female, Chronic fatigue syndrome, anxiety disorder, medications over 15 year period. Now only take percocet for severe back pain as needed, (I have 3 herniated discs with an annular tear in lower back, two herniation's in neck, and arthritis in lower back) I only take xanax in low doses when absolutely needed. MS has been ruled out, there has been no Lumbar Puncture done, no ocular band tests, and no serotonin or dopamine testing has ever ever taken. I had gotten numerous episodes of vertigo, with Meneires disease and Benign Positional ruled-out. The new diagnosis from an ENT specialist that has been added to the concoction of many is "Vestibular Migraines", of which is a rare disorder and only 2% of the population has it. Have been going to Vestibular rehabilitation doing exercises at home as well. The last rehab therapy concentrated on a steady gaze with head to a left 45 degree angle motioning back and forth while on a treadmill. That day following therapy I slept for 6 hours, and woke up with what felt like a bruise and swollen left base of my skull. This pain lasted six days, as well as pain in both hips, lower back, shoulders and severe light & sound sensitivity, fullness in the right ear, and high anxiety. I am unsure of this Vestibular therapy since I have lived in pain for 10 years and it seems to have increased my multitude of symptoms.Please advise.I forgot to mention I also noticed a difficulty to find the right words, stuttering, and that my short term memory loss increased following the last rehab therapy that I posted above.What the heck do I do now?
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764912 tn?1322711843
I forgot, these links have some good info that may help.

http://www.vestibular.org/vestibular-disorders/specific-disorders/vestibular-migraine.php

http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/vestibular/conditions/vestibular_migraine.html
http://www.scientificamerican.com/article.cfm?id=what-are-vestibular-migraines  
The last one I really liked, but all have good info.  Please know there are many of us who suffer too, and we are here to listen or help in anyway we can.
Tracy
Helpful - 0
764912 tn?1322711843
I am so sorry, it is frustrating.  My situation is a little different as I have epilepsy, but I wanted you to know I did those same exercises (gazing at a dot on a plain wall, turning my head) but couldn't continue because it caused a seizure and constant nausea.  Have you called who ever is working with you on these exercises, maybe it is too much and causing you to over do it?  At  PT I was told you should have some dizziness or nausea but not to overdo it.  They changed my focus point from letters to a dot, because it was too much for me.  Did they do a video-oculography test to check out your gaze?  They are finding  many vestibular symptoms now associated with migraine, according to the Vestibular Disorder Association...but there are tests such as VEMP, and gaze stability.  

I hope this will help some...but know you are not alone.  Please feel free to ask me anything or just vent.
Tracy
Helpful - 0
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