well spot the newbie. I posted something about a week ago and the only reply I got was:
I was here thinking to myself. Is this person for real? what help was BUMP to me?
Now I get it and feel so stupid. . . . Thanks for that helpful info.
Ah well I'll get there.... eventually........Silly me.
We are asking that no further comments be added to this thread.
For any questions, observations, or any new thoughts on this, please start a new thread and we can chat all we please.
Hey thanks for making me feel welcome. The info was very clear.I will surely be using this forum.
To all, sorry. It's the writer in me. Thanks for telling me so politely!!!
I love the cap idea . My vision is messed up and it's hard for me to see. If you hold down CTRL and scroll the wheel on your mouse it makes everything bigger and smaller.
I found it out by accident a couple years ago and it helps me a lot.
Thanks, you have some good suggestons in here.
Thanks for the computer tip about increasing and decreasing font size. I too am experiencing changes with my sight. I have asked my Opthamologist if there is anything that can be done!
I'm lost... might take me a while to figure this place out. Became a member in January, but wasn't too active. I want to try to use the different tools and get to know more people.
i was on the dr's forum, and saw that it takes them quite a while to get back to us. just some questions for you kind people who may or may not relate, but have at least some experience. here is my issue----
im 29 years old, generally good health (besides high cholesterol and controlled asthma). I'm 28 weeks pregnant with normal blood pressure, and so far a pretty good pregnancy.
one week ago, i woke up seeing a wierd spot in my eye, went to an opthamologist and a retinal specialst who both said they saw a little bit of fluid in the back of my eye, and that nothing to worry about that the few things that could have caused it will self resolve, and that the spot itself may be visible for a few months.
since then.... Ive been getting wierd symptoms for 4-5 days now. It's tingling/vibrating sensation thru my hands, feet, legs and arms....and very occasionally thru the side of my head. i have no pain..... and no other issues....(no walking issues, no pain, no blurreed vision etc)... i went to my neurologist, who did the "point to ur nose/touch my fingers, etc examination" , checked my blood pressure, etc. she said i look perfect, has no idea whats causing the tingling sensations and said if anything gets worse to call her back.
she did an mri of brain w/and without contrast 6 months ago witch was completely normal.....a cbc blood test 2 days ago, completely normal (accept for slight anemia probably pregnancy induced) .....also my thyroid was checked 6 months ago and perfectly fine.
my questions are --- from your experience do you see MS as a possibilty ?? or something worse??? im very concerned and scared. noone has answers for me.
do you think that my blood counts and complete blood count work would be off if it was something serious like ms? please read my full story on the forum thank you naynay363
I just read your story, I'm still trying to get the hang of things on this website...I'm an RN struggling with issues which is why I came here. But as far is I know, medically and personally, for MS, a positive ANA can be done in blood work but is only suggestive for a wide range of diseases. A spinal tap and MRI of the head and consultation with a neurologist can confirm diagnosis. I have had CBC blood work come back normal when I was obviously so sick. All a CBC really is is Hct, Hgb, RBC-baasically counting the blood cells and what they contain. Not specific at all.
I just wrote a RN type of response to someone, but now thought I should come back-my story really is told in a prior posting, but thank you for showing me this.
Basically I'm in limbo land and am not sure if I have MS, but am a RN, and can take an educated guess at things as I cant get into see a doctor/specialists or get proper tests ordered right now.
I dont want to be one of those people obsessed with health, and really im not, but how can I not be when this disorder has affected all areas of my life??? Im 23 years old and cant do anything I could 1 year ago and am so sad. How much longer will it be like this???? I cant even leave my house anymore!!!
-Neuro. Diagnosed Cervical kyphosis, nerve related symtpoms.
-Perfect vision until 8th grade. Was so embarassed when they told me I needed glasses. It has been getting worse ever since and I see floaters.
-GI problems. Thats a crazy history. Right now I went from bowel obstruction constipation so severe to explosive diarrhea.
-Joint pain. My knees felt like grapefruits this morning, my walk is getting stiffer
-Im getting foggier/cloudier in memory
-Positive ANA-autoimmune history
-Weird reccurent sebacceous gland MRSA infection....
-Fatigue so bad it hurts me, it hurts to be tired.
-And pain so bad Vicodin doesn't work, nor do OTC meds. I just rub Icy Hot everyhwere and do epston salt tub soaks.
-And much more! :) Bbut this flareup all started after I got a recurrent and persistent infection of tonsilitis and thhis STD...yikes...Epstein Barr? I dont know
-My guesses: My friend just died, I just saw her 9 months ago, from lymphoma- with symtoms like mine-is it really sebacceaous gland MRSA or carcinoma, cancer. Muir Toures Syndrome, also Cancer. Or MS, with cervical spinal cord injury, secondary to head truma when I was much younger.
-Do you have any guesses? I'm just so tired and so sick and tired of being sick and tired. Literally. I cant leave the house anymore or drive and my phone died-bad luck I know. So my only communication now is the internet and screaming for help....
I just feel like Im dying. and I kknow what that feels like as I just recovered from anorexia 9 months ago, I almost died then apparently. I also OD'd 41/2 years ago and did die, but was brought back, so I do know what its like. I am stable, and happy, today. I worked with Hospice patients as well, I see the signs. Im scared and people listen but no one hears me. Its so much pain to not be heard
hi naynayt and sldylani. You have posted on the introductory thread for this forum and you won't get a personal reply to your questions. Please take a moment and copy what you have written here and paste it into a new question, please. I'm sure everyone here would love to meet you and offer their welcomes and advice. - Lu
One of the main causes for the tingling sensation is the deficiency of vitamin D3.
I'm also new here and was hoping someone would respond to my post, just would like some input opinions
this is a nice introduction and it makes me feel welcomed
Thank for such a great welcome!! God Bless you all!!
Thank you for the most welcome I've had in a long time! I feel as if I belong here, finally! I was diagnosed with Fibromyalgia in 2009. I didn't fit in at the local group meetings I attended nor did my symptoms come close to their symptoms-except for the fatigue-so I was treated as if I were from mars. The Group leader told me about the burning in my skin, "That's not a symptom of Fibro, have you talked to a Dr abt MS"? The Neuro sent me there!
I recently got a new Neuro & a 'Clinical diagnosed of MS', so far-more tests to come but some already....indicative.
greeting to all the new people here . You can post here, but keep in mind we don't answer your questions in this thread. This is meant to be a welcome statement and a quick overview of how this MS forum works.
Be sure to start a new thread and tell us all about yourself and your questions. We love to greet new people.
I'm also an RN and have had MS since 1974, but not diagnosed until 1986. It was quiescent until last 2 years, now I have trigeminal neuritis from a plaque in the brainstem and very low T cells, probably from the gilenya, but my neurologist wants me to stay on it. I am also scared - sometimes it is worse to have knowledge of all that can go wrong.