How often did you have Flare Ups before meds

[lilmiss1999]

I have found a lot of information from people about the amount of flares they have since starting treatment but my question is how many did you have before treatment of any kind. Also how many real flares and how many pseudo ones. Thank you

Jen

[sllowe]

lilmiss,

Rebif user here - no major flares since starting in 07. I do however have chronic problems that change, or never leave, but they are not flares for me.
Like HVAC says - everyone is different, and I compare my problems to my 1st attack.

Keeping my fingers crossed I stay this way - I'll take limitation and glitches over any attack remotely like the one in 07 anyday of the week.

-shell

[COBOB]

I was tracking about 6 months apart (ON-TN-ON.)   I've hit 10 months on Copaxone now, so crossing my fingers (although the spasticity in my right leg has been in overdrive for the last week.)

Bob

[Needhelp16]

I had 4 noticeable flares pre dx and it was during my 4th one that I was dx.

[macaroni68]

I had 4 flares, in as many months, before treatment of any kind.

[HVAC]

Everyone is different I never stopped having symptoms since I started in 1965. They gradually added on as time went by.  Of course I have PPMS and not RRMS.

Alex

[lilmiss1999]

Im bumping this up hoping to get some more feedback. Thank you! :)

[lilmiss1999]

Thank you for that

I hear a lot about how some times it takes a long time to DX but then when looking into flares most people talk about the amount of flares since DX.

Some seem to be diagnosed at the first or second flare. I wonder about those that take longer to diagnose and the amount of flares they have before.

i hope more chime in on this.

Again thank you for our input. Just trying to make sense of all this.

Jen

[doublevision1]

Three flares in the first year or so of my diagnosis.  

The third one, O.N., occurred 6 months after starting Copaxone (about the amount of time it takes for it to start influencing the immune system) and was briefer and much less severe than the ones that occurred pre-treatment.

2.5 years relapse-free till my last relapse (mainly sensory) two months ago.  Again, not as severe as the first two flares.