Multiple Sclerosis Community
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398059 tn?1447945633

CCSVI follow up discussion

3 Responses
429700 tn?1308007823
This IS something that the MS community needs to be alerted to in regards to the risks and necessary follow-up from CCSVI treatment.   If you have treatment, it is super necessary that you receive treatment like you've had a stroke, aneurysm, or heart attack to avoid blood clotting and to stay on blood thinning regimens so that the blood numbers don't return to hypercoaguted states until your doctor gives an okay that's it is safe to discontinue.

I know of the risks of developing blood clots when traveling in a plane for an extended period of time.  I bet it is even ten times a risk of developing a blood clot if you don't have treatment to avoid clotting having had CCSVI treatment!

Have you had this procedure?  
398059 tn?1447945633
No, I cannot afford such things.
572651 tn?1530999357
Shoshin had this done - her journal is complete from her start to now. You might want to read her experiences.   It was interesting to read the link you posted - I  am trying to stay up on CCSVI news.  thanks, Lu
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