Curious about Chronic pain and disability

[chrissyle]

I haven't been on the forum much lately but I was thinking Im I the only one suffering with chronic pain?Soo..needless to say I thought I'd ask how many of you Msers are in pain everyday and are on pain meds and fighting with SSD for your disability,granted I do have back problems to but I hurt everywhere somedays and not to mention how tired I feel from doing the smallest things so I thought I'd ask,Thanx for any info:)Best wishes all-Chris

[chrissyle]

Thanx everyone for all your info.I've been fighting disability now for almost 4yrs,I haven't been diagnosed yet either but I do have Herniated disc's in all the disc in my  neck an my L5-S1,Generative disc disease and arthritis plus all the symptoms related to the ms or whatever it Is.The ms dr I see says if it is ms its not the relapse Remitting(?)type but anyways I go back to see him August 5th so hopefully Ill get a diagnosis.Iam on pain meds too but they don't always help but Im thankful to have something that I can take,as you all no some days are easier than others.On top of dealing with your health you have to fight SSD after working all your life,I worked as a dialysis tech for ten years and loved my job-Doesn't that say anything you know who leaves a good job that they love for this without good reason,ok now Im just babbling lol,But I appreciate everyone's help it just goes to show were all dealing with our own problems and it helps to have people you can turn to that understand,Best wishes,many hugs,Chris:)

[VictoriaDouglas83]

Hi Chris.

I know how you feel.  I am finally starting to feel a little bit better actually.  I'm not dx yet, going to the neuro on Aug. 10th.  

Since June 2nd, I was in chronic pain.  My arms, legs and torso seemed like they were on fire, like a tingly, burning pain.  I described it like my entire body was being tattooed continuously!!  I went to my doctor, she prescribed me neurontin thinking it was fibromyalgia.  

After going back to her about a week ago with cognitive problems and vision problems she changed her opinion and said she was sending me to a neuro to get tested for MS.  

Since yesterday the issues in my arms and legs has gotten better, but it isn't gone.  I'm not sure if that is from the cymbalta and neurontin I am on or not.  Whatever it is though, I don't care, I'm just glad the pain is easing up so I can sleep.

I would be up for days with this pain and my doctor didn't want to prescribe me any pain pills till she knew what was going on.  So I found some old norco and flexeril and self-medicated with some wine.  Definitely didn't take the pain away, but helped it enough to where I could get a few hours of sleep.  Now those are gone and I am stuck with nothing.  Ugh...

If you find anything that works for you let us know!  And I wish you luck!

Victoria

[green924]

Hi Chris I'm not on here much either (oops!) but I do have horrible chronic pain too, MS and back, cause of a spinal fusion from a burst fracture bout 8 years ago. So I kinda know what you are going thru. Maybe thats why not on here much, who knows, anyways... Something told me to get on here today so I just thought I'd say hey & good luck... Live, Laugh, Love
Mel

[Csativa]

Hi Chris,

Not sure if we have "talked" before, so welcome to the Forum.  It's a great place for information and to learn and share.

I suffer from chronic pain, and have so for many years.  Some is related to the MS, to another neurological condition I have, neurofibromatosis, but the majority is due to degenerative disk disease.  

The pain from the disk disease is the worst. It severely affects my ability to walk, stand for any length of time - more than 20 inutes, balance, etc.  I take several meds for the pain; Cymbalta (120mg), Gabapentin (Neurontin) (2700mg) and Oxycodone (60mg).  The pain clinic I attend is considering switching the narcotic to dilaudid (a morphine based drug) and reducing the oxycodone to a breakthrough drug.

I am on SSD.  I have to say that it was a quick process for me.  It took about 8 weeks from the time I filed to aapproval (there was no first denial).  I had plenty of documentation from 6 physicians, however,  and especially from my employers who really considered me a liability and wanted so badly to get rid of me (I was told about 400 pages of documentation in total).

Good luck, and I hope to “see you around.”  

Thoughts and prayers are with you.

Frank

[Inny2009]

Im not offically diagnosed yet, but i do have chronic pain. It also veries. Sometimes it hurts even just to be touched, other days my muscles and joints feel like ...on fire? When someone askes me about my chronic pain i try to explain to them that it almost feels like the flu. When your sick with the flu your whole body just aches so bad and even the hairs on your head hurt. Thats how my chronic pain is, it can be different for everyone.

Im not on disability yet (though my doctor said its probably oging to be neccessary). But I am also fatigued as well. Sometiems i get so tired i cant even lift my head up. Today was one of those days but i am feeling better after a cold shower.

Your not alone, you have our support. Good luck and gentle hugs.

Inny