Wow! You've been through a lot. It's really hard to say what this is. Can you describe the pain? Is it like an electric shock down your spine? Is the pain in your face? Is it primarily one-sided? Or is it on both sides?
No one here can diagnose you, obviously... But if you can provide a few more details, someone may be able to put your mind at ease a bit.
I sure hope the new doctor will be able to help you. Be prepared though, because neurological problems are notoriously hard to diagnose- even for the specialists. Sometimes it can take years for enough to be visible on the tests. Hang in there. Try searching for symptoms in the search bar for this forum. It might be helpful. In the meantime, I am sorry you needed these questions answered,, but I am glad you're here. Welcome.
I was going to ask if you'd had a spinal tap. Evoke potentials with a Neuro opthomologist could see if your optic nerves have demyelination. Um.. Honestly, I got really lucky & have a great Neuro. But I've heard a lot of bad stuff from friends with MS. I'd say your best bet could be to see an MS specialist specifically. I went because my Neuro recommended that I see one. I'm SO happy I did. Do you know if contrast dye was used in your MRIs?
hey guys thanks for answering...the pain i get is like a burning tingling sensation on my arms and back of my neck and a pressure type feeling in my head...almost like i wanna stick i needle in my head and let air or pressure out like a balloon....also the electric jolts of pain dont go down my spain it feels like its coming from inside my head but i cant say if its from a specific side of my head i just know that its in my head. I cant really tell if its a facial pain or if its deeper than skin and coming from inside my head...its weird cause sometimes i notice ill simply be on my computer and ill click or move my mouse and as soon as i move my hand or finger to move my mouse i get that sharp jolt of pain in my head....its crazy idk what it could be...
Jus wondering if that other neurologist was able to find anything? Did they do a spinal tap? A cervical MRI? Has Chiari been ruled out? Trigeminal neuralgia? Been following ur case and was wondering.