Doc appointment today

[cheesymum]

Nothing to report really.  We're scheduling another MRI and we'll go from there.  Doc seemed a little rushed which is unusual but I guess everyone has off days.  If this MRI is negative, we'll "sit on this for a while."  I know this is the expected course of action and I certainly don't want to be mis-diagnosed but I just feel like I'm going to be one of those people who take years to get an answer.  I'm not a patient person so it frustrates me.  I don't know what I expected (him to look in his crystal ball perhaps???) but I still feel a little aggravated.  I know I haven't dealt NEARLY as long as most and I shouldn't complain but here I am doing just that.  

Anyway, that's my news.  I think I'll take a nap....

[HVAC]

I thought I will get a diagnosis and a health care team. I have a MS Specialist who says I am not bad enough for his attention and a GP who says she does not want to deal with plethora of ailments.  The GP started this whole MS thing in the first place. Their advice to me is like in the gangster moves "Forgaetabout it".

Here you can say what ever you want. I will listen.

Alex

[cheesymum]

Thanks, Ren!  I wish I could say I'd nap for you today but it's not happening.  I'll pencil you in for tomorrow, tho!  ;)

And, I do appreciate being able to be myself here.  I almost made the comment that, when my right breast went ice cold a while back that I should've just made milkshakes that day but I didn't know if that was pushing the envelope.  Oh, well.  I've gone and said it anyway now.  Whoops!  haha

[cheesymum]

Thanks, Alex!  You have been a good friend to me since I got here, always wiling to answer my endless questions and put up with my whining.  I just look around here and see folks who took years - DECADES - to get a diagnosis; I see you who has had MS since damn near birth and folks who are truly suffering and I think to myself "Shut yer whining mouth.  You've got it good comparatively!"  It's nice to know y'all aren't thinking the same thing!  LOL

[rendean]

Sorry to hear no new news but it seems you know the drill as Lu said you summed it up very succinctly. And as for gallows humor, bring it on! It's a type of humor that I enjoy and you're good at it (crystal ball, Tuesday).

Taking a nap sounds like a great idea. Sleep a little longer for me as I can't take my usual nap due to a doc appt.

Take care,
Ren

[HVAC]

You can complain all you want to!

Alex

[cheesymum]

Please feel free to laugh!  I absolutely meant it as a chuckle-inducing comment.  You'll find I have a very gallows sense of humour and will say serious things in a silly manner because 1- it's always better to laugh than to cry and 2- of all the things this disease (whatever it may be) may take from me, I will not allow it to take my sense of humour no matter how sick or twisted said sense of humour may be.  So, by all means, laugh!  :)

As far as the esophageal spasms, yes, they are very random!  Drives me batty (and, that's a short drive; more like a putt actually).  It's my most annoying symptom, I think.  The cold sensations and the cognitive fog and the balance issues get to me but feeling like, for all intents and purposes, my esophagus has painfully shut down and is no longer allowing passage is a "rhymes with witch".

If it helps any, I'm your neighbor in Limboland.  And, although it's a nice neighborhood and the townfolk are uber-friendly, I'm ready to move on.  I echo your thots daily - No, I don't want MS but I do wanna know something, anything at this point.  Good luck to us both!

[tripnstumble]

Ok, I can't help but laugh at your esophageal spasm comment about because it's Tuesday lol ONLY because I have this same issue and it's so random, NO not funny but your frustrated comment did make me laugh, Been there doing it ugh lol :) These suckers are very painful, almost feels like I'm swallowing a darn rock that won't go down!!! And being stabbed at the same time. I have a few times not been able to breath because of it which scared the hell out of my hubby and my reaction sure didn't help him any lol I took off running in a panic!!! Thankfully that hasn't happened in a good 6 months but the swallowing rocks has. I only get it from drinking, eating or swallowing my pills. Never on a Tuesday though :p

I am in limbo and not a happy. I just had an MRI on Friday and trying to be very patient with waiting for the results. My next appt. is this Friday at 10am so we'll see. Not sure I can wait all week though (no patience at all). No, I don't want MS but I do wanna know something, anything at this point.

[cheesymum]

Thanks, Sadie!  My last MRI was clean.  

I have a freezing cold sensation from about my hair line above my forehead all the way down to the tip of my pinky toe on the left side of my body.  There is no surface temp change, tho.  It only *feels* cold to me.  

I have "pins-and-needles" feelings and electric shock type feelings down that side as well.  I have had the very occasional cold spot on my right side (and once my entire right breast went ice bloody cold all of a sudden - that was a weird feeling!) but nothing like I have on my left side.

My legs sometimes feel so heavy I feel like I can't lift them.

My cognitive functions just are NOT what they used to be.  I forget things too easily; I reach for words and it takes me forever to find them, if I do find them; I feel like I'm walking around in a fog.

When I wash my hair, close my eyes and lean my head back to rinse, I almost hit the deck.

The heat is killing me.

I get what I think is the "hug" but I'm not sure.  

I have esophageal spasms that feel like my esophagus just closes off completely.  Sometimes it happens when I eat; sometimes when I drink; sometimes because it's Tuesday.  There is no rhyme or reason to it that I could say "Oh, this makes it happen.  I just won't do that anymore."

I don't "relapse" or "remit" at all.  It's been a steady progression of symptoms since all of this started nearly 2 years ago now.

I know I'm forgetting something.  I always do.  But, you get the picture.  

Thanks for asking.

[cheesymum]

Thank you, Lu!  From your fingers to God's eyes!  :)

[sadie405]

It's hard, I know, when as the patient we're anticipating these appointments so long in advance, and then when we get there we're reminded of how our appointment is but one of many packed into a busy day.

I don't blame you for feeling utterly frustrated, but I am glad you're not getting utterly blown off. Remind me--what are your recent symptoms, and what was the state of the last MRI?

Sadie

[Lulu54]

Wow, mum.... you summed that up pretty succinctly.  I'm with you and hope that you get an answer this time around.  Waiting and waiting is not a good place to be.

Lulu