For all of you

[misdiagnosed509]

I hope this article helps others

http://www.inlander.com/content/newscommentary_reports_spokanes_ms_multiple_sclerosis_rate_have_been_greatly_exaggerated

[sllowe]

HI there,

How you been feeling these days? Haven't seen you around much.

Thanks for posting this for everyone.

ttys,
Shelly

[SOONERMOM]

I am so sorry that all this happened to you!  I think that you are doing the right thing by reaching out through this article to tell your story.

I have a friend that went numb from the waist down and although her testing was mostly negative, except a borderline VEP, the neuro told her that he though it was MS and was going to treat her as such.  She was given high dose solu-medrol for 5 days and thought she was going to die.  All of her symptoms worsened and her whole body started hurting.

Unfortunately, she didn't go to the MS specialist until after that experience and he told her that it probably wasn't MS and if it was it would be considered atypical.  She is still undiagnosed at this point.

I think that we as patients should NEVER trust just one doctor's word.  You must be proactive and look into your situation and ask questions.  I also think that it is a MUST to see an MS specialist if you are being told that you have it or could possibly have it.  

I have certainly found in my own personal journey that not all doctors know everything.

I hope you don't take any of my comments in the wrong way, because I am completely appalled that you and so many others in your area may have been misdiagnosed!!  I really hope that you can regain some of your life that you have lost.  I am glad that at least you are on the right track now.

Stacey