I am a 38 yoa female. My entire youth was plagued with chronic sickness. By 18 yoa I had severe endometriosis; followed by 5 laporoscopies, a miscarriage, DNC, premature labor of my single surviving child, and by 27 a complete hysterectomy. At 26 yoa appendectomy. At 34 gall bladder removal. At 30 fibromyalgia/clinical diagnosis of lupus. I’ve been diagnosed with a past positive of Rocky Mountain Spotted Fever- probably at 7 yoa- untreated. I have gastroparesis, stage II esophagitis, a nonfunctional LES in my esophagus, hiatal hernia. At 36yoa diagnosed with Chiari Malformation. I had compression surgery, removal of the suspended brain matter, a portion of my skull replaced by mesh implant, and removal of part of my C1 vertebrae. After surgery I nearly passed away twice due to the onset of adrenal failure, Cushing’s Disease, and steroid induced diabetes. I couldn’t walk for 3 months, and was on oxygen. But as soon as I could I went back to work. Two years later no improvement, except due to my extremely strict dietary choices I am on a sliding scale of insulin only reactive to adrenal crashes. A recent MRI has shown four small lesions bilaterally on my frontal lobes. I have herrendous burning pain in my feet and what feels like breaking bones with severe muscle cramping in my legs from the knee down. I have constant blurred vision in my left eye, that minimally clears up a few times a month, but is pretty consistent with my not feeling well. I have been put on chlorazapam for sleep 1mg and I CANNOT sleep still because I am awakened by severe leg pain every single night. I cannot nap to recover. I have anxiety for no apparent reason, bouts of depression, and mood swings I can’t even keep up with - which somehow becomes a physicians sole focus?! I have a habitual metal taste to the point I have to use plastic ware, but I’m not anemic or iron deficient. I get a sharp ringing pain in my left ear, and have a spasm in my right hand (thumb kicks out). I have a spasm that has taken over my right eye, that is noticeable to others, and occasionally the eye droops. When I lay down to go to bed I’ll have a full body spasm. Sometimes when I’m relaxed I’ll have this involuntary gasp for air as if I had stopped breathing unbeknownst to me, and my lungs spasm and gasp for air. It’s somewhat loud and embarrassing.
I feel as though MS is a huge possibility and I’m begging for assistance from my doctors, whom just want to diagnose symptoms with medications. My entire life there have been so many things being proactive would’ve prevented and this is not one in five years I want to be like thanks a lot for treating me like a hypochondriac. Please tell me your thoughts, give me your wealth of knowledge, and advice PLEASE! I am an elementary teacher, mother of a senior, wife- I don’t quit, I keep on keepin’ On despite it all. I’m so very afraid to give in.
Thank you in advance!