Has MS Changed Your Mood, Thinking, etc.?

[yorkieville]

I have noticed that I feel very different. I am over-sensitive, don't 'think' the same, tend to 'react',  get irritated more easily.

Has anyone else oberserved these changes in themselves?

Often, I get upset, but I don't know why.....until later.

Sheila

[yorkieville]

Well, let's see....

I have P.T. in Nov. & Dec. Tech told me it was covered 2 treatments a week for 6 weeks. Didn't tell me that I couldn't make up missed treatments due to tests, doctor appts. until the 7th treatment.

Treatment was inconsistent, because she had another Tech do my treatments, and didn't show her how she was doing my treatments, so, on those days-no benefit from the treatment.

Hospital billing dept. mis-filed 15 claims, dating back to Sept. '12.

They admitted they filed my therapy with the wrong place. When they filed it with the correct place, it turns out that it "is out of network", so.....we are getting hit with a huge medical bill, that we simply can't afford.

"In network" my P.T would have been 100% covered.

Billing supervisor said it doesn't matter that my Tech told me my P.T. was covered.

Two weeks ago, they began refiling claims that had already been filed, and paid.

Billing supervisors response was "Someone got over-zealous".

Now, they are submitting claims for things I didn't even have done. Billing supervisors response? "We submit it as it is coded".

They are now filing more claims with the wrong place.

My husband is retired, we live on a fixed income.

So, this is STRESSFUL on both of us.

There is stress in life, and to suggest that we are blaming external aspects of life and putting it into the stress box is demeaning to anyone that states they feel overwhelmed, stressed.

[supermum_ms]

Here's where I becoming a pain in the b-hind, to me stress is a generic term, it means different things to different people, and what one person finds stressful another will thrive on. Life in general has been dissected and analysed and just like 'fatigue' is over used by everyone and their pet hamster, well to me so is 'stress' over used.

Why is it stress and not being 'understandably' overwhelmed by a nasty personal bucket load of reality. If your personal bucket is already full, well it makes sense that the next little thing will make it over flow. Lets not forget about having a chronic medical condition, that makes the responsibilities of normal life just that much harder to do.

I do not see many aspects of life as stressful, that's just the way it is, its just life! I must be one of the people that thrives on chaos, because I dont get it, i honestly do not understand why people blame outside elements and not the internal.

To outsiders looking into my life, I'm the daughter of a elderly mother with bipolar, sister of 2 brothers with Asperger's, the mother of two very different kids, my son is a scarily gifted teen and an Aspie, my daughter is very successful in her chosen field, struggled academically and is also an Aspie. I've always worked in pressure cooker environments, and loved ever moment i volunteered or worked in schools helping kids with special needs and behavioural issues.

People automatically assume my life must be a stress-fest nightmare, dysfunctional family etc etc but it so isn't anything like that, it never has been but people assume my life has to be an emotional roller coaster and unbelievably stressful because of the family I have and I just don't get why. Seriously, if i had a dollar for every time someone said to me "I don't know how you do it?!" and its never said with anything other than confused pitty, lol its been said a thousand times and it still shocks the hell out of me.      

I really dont know if we should be blaming the external aspects of life and putting into the stress box, when the other alternative is the internal you, what your medically dealing with and what's going on inside your head space because of it. Are we sometimes just being too hard on our selves, doing to much, expecting too much etc........when our buckets are full?

HUGS...........JJ  

ps if you didn't already know it, i sometimes ramble on and on and on :o)    

[yorkieville]

Thank you, Jeny. Afraid I don't have any family. And I can't get out with friends right now. Hopefully, when this Lymphocytic colitis is put into remission, I will be able to go out again.

The MS hasn't really gotten me down. I was actually very thankful to get my diagnosis. It took 6 long years, and my MS Specialist was able to determine, from my symptoms, that I'd actually had MS since at least, '98.

Right now, what is getting me down, is that I developed Lymphocytic colitis, and it is making the nerve pain in my spine, unbearable.

I've lost weight again-back down to 74#s, so I have only a few areas left to do my Rebif injections.

I'm very thankful for my friends in this forum.

It seems like only people coping with illness, really understand.

(((HUGS)))
  Sheila

[yorkieville]

Hi, Laura.

Thanks. I didn't realize I hadn't checked accept messages.

I agree, it is hard on our partners. I know Rich hates to see me in so much pain. But, he also loses patience with me, lately, because I am "reacting" to things. I'm working on thinking through what is bothering me, so that I can avoid reacting.

I feel, like life is going on without me. I hate it. I used to be so active, and now, the nerve pain is so bad, that I am forced to spend my life, laying down.

Sheila

[Lulu54]

please check your settings on messages. I tried to respond to your pm but it rejected my words, saying you aren't accepting messages.  :-(

If  can be hard on our partners because they want to fix us, not so much that our being short is what gets to them.  I do find at times I am less toelrant than others - perhaps I often feel like I am wasting time while the clock is ticking.  

Laura

[jen673]

I'm sorry you are struggling.  Don't be afraid to reach out to friends and family.  Maybe they can help get you out .  Just being out with friends can do wonders!  Don't let this MS get you down.  We are strong and this disease is a roller coaster.  I'm sure you will get better again!  You can vent anytime.....we are your friends too :)

))HUGS((
Jeny