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Has anyone out there with RRMS improved significantly after starting on Copaxone?

I was on Copaxone 20 mg daily for about 4-5 years.  I didn't really  improve, but didn't seem to get worse either. Then I went to 40 mg 3x weekly.  I had worse injection site reactions, which I didn't like, and was frustrated that I wasn't getting better, so I stopped altogether.  I'm thinking of going back to taking Copaxone, but I have moved to a state with poor access to appropriate medical care.  I have serious signs of progression, serious difficulty walking, and cognitive impairments and fatigue.  I'm not sure what to do. Any thoughts on this?
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5265383 tn?1669040108
Agree with JJ.  I've been on Copaxone one year.  It hasn't helped previous accumulated damage, but it has stopped relapses so I'm not accumulating NEW damage on top of the old.  I had started getting significant leftovers from each relapse.

What is helping to some extent is a lot of physiotherapy and exercise.  As well I've been addressing gait issues with an AFO and fatigue with a sleep specialist.  If you haven't had a sleep study, have your gp set one up pronto.  Various sleep disorders are very common in those with ms.  Often ms fatigue is secondary to something that might be treatable.

Hope this helps!!
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987762 tn?1671273328
COMMUNITY LEADER
Hi and welcome,

DMD's are suppose to improve your relapse rate and technically not do anything much to improve preexisting issues, the more time you have to recover between relapses can definitely help to improve any issues that can improve.......as you know there are no guarantees, some issues will completely remit, others improve a little or a lot and other become permanent it just depending on lesion location, number of years you've had MS, symptom type, if the DMD is working for you or not etc etc

If you've not been experiencing relapses and still have progression, it's possible you've transitioned into secondary progressive so you really do need to see your neurologist to discuss what you options are now, i'm in another country so all i can advice is for you to contact your local MS society for assistance!    

Hope that helps.....JJ  
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