Help about to see consultant ?MS

[00Pudding]

I have not been diagnosed with MS but due to see Neurologist 17/10. This will be my 3rd visit. My neuro history goes back approx 12 years, not sure if it all relevant but 3 episodes seem connected.

Approx 11yrs ago bells palsy with altered sensation which apparently isn't classic? Affecting left side face Recovered facial tone and sensation but never feels quiet right when I'm tired and known to droll out the corner of my mouth affected side.

Approx  7 years ago when driving home from work vision not quiet right, clipped the cerb, went to change gear left arm wouldnt move unless i looked at it and intense tingling and loss of tone left side of face. Self resolved within 30 min. GP = Migraine

Approx 2 years ago definately altered vision whilst at check out with just some milk and biscuits, couldn't see numbers to pay, only new by pattern, checked both eyes back at car, same vision with both, drove home! Thought nay e low blood sugar as had no breakfast so sat down for a ccuppa whilst watching TV, realised I couldn't pick up my mug without looking at my arm, right side this time. Symptoms self resolved within 30min. GP admitted me to hosp, MRI NAD intermittenent symptoms continued, hot sensation to feet, vibrations and tingling particularlly to legs but also hands also widespread intermittent fasiculations (muscle spasms) follow up 2nd consultant , repeat MRI 6months later  NAD diagnosed stress and over active brain!! Learnt to ignore and live with these symptoms calling them my friends. Never felt right but never felt wring enough to say hey! There's something wrong with me?! Also have had intermittent difficulty with bladder control but not often.

1st Sep standing in a que, vision definately altered. Could only see a small amount directly in front of me and this was edged with a watery semi circle past this was nothing! Lasted approx 30min self resolved. Sat and had a drink whilst walking out of shop my left arm went intensely tingly then numb feeling heavy and swollen, then my top lip on the left side only felt tingly and I could feel it distinctly spread across and up my face and again self resolved within 30min.

Have to say I'm getting a little scared now. Seen GP following day who has revered me back to neurologist, my friends as I referred to them early haven't changed in nature but are now there every day throughout the day and much more prominent, I've even had my neck and diapraghm twitching and also random areas like above my ear, I feel like something is crawling in my hair (rarely thank god) and the vibrations are much more pronounced , like having a phone going off, I've even checked! Legs vibrate when sitting with feet up and lying in bed but also today after a very short walk of only 1/2mile. I also get very tired.

Like i said to my GP I WANT to know what this is now so I can do everything possible to prevent or delay any symptom progression. I'm scared next time it happens it won't self resolve but also just as apprehensive that the consultant will try and fob me off with an over active brain again!

I would appreciate any advice..... Thankyou x

[Sparkysarah]

Hey Lulu...what do you mean we Brits have a funny way with the English Language....It could be the other way round!!!! (Ony joking)

I just want to welcome you to the forum and say I can undestand why you are concerned and want to get to the bottom of all this. I suggest that you ask the neuro to request blood work (for elimination of potential disorders) and a visual evoked potential as you appear to have had a lot of visual problems.

It is good news that to date you do not appear to be showing lesions on the brain but have you had a spinal MRI?

I hope that your next visit with the neuro goes well and that you get on well with your consultant as it really helps if you can make a connection and feel that he/she understands your symptoms. Have you done a timeline (as described in health pages on this site?) Keep us posted.

Best wishes

Sarah

[Lulu54]

Nothing to apologize for - It was pretty easy to figure you are from the UK.   You Brits have a funny way with the English lagnuage.  LOL

[00Pudding]

Thankyou! And apologies I'm 37 female from England :-)

[Lulu54]

You have certainly had a trail of symptoms over the years - this can be very frustrating when you know something is wrong but you c an't get answers.

Getting the referral to the neurologist is major, assuming you are on NHS care. You don't list your location, but I'm prety sure you are in the UK from the wording you used.

We have a number of members here from the UK and they can add their insight on how to best get on with the neurologist and what you might expect next.

You might want to visit the health pages here and read more about MS, the diagnostic process and even what to expect from your appointment.  Arm yourself with knowledge so you can make the most of this time with neurologist and ask the important questions.

Welcome to the forum here - I hope we will see you around with your questions and updates.
be well,
Lulu