No answer more issue? Remember me

[Krispt]

Hi guys
Some of you will remember I posted on here some months ago and was met with some mixed answers etc from people. I appreciate all your time so I took time away and have gone to many lengths to try to resolve issues.

However I still have the issues
- left hand tingles
- left foot burning tingle
- cold patch on thigh
- Lhermittes when driving or in bath sometimes
- tight leg muscles and sharp Stabbing pains in legs, stiff sometimes too
- arm pains stabbing in muscles
- achey pain from neck down arms to hand both sides
- right arm feels very on edge almost

Now IVE had 2 MRIs jan/April clear 1.5t machine brain cervical and thoracic
Four neuro exams three by one neuro and another by second opinion neuro normal,
Emg nerve conduction all normal
Limbar puncture in May normal

My neuro told me to go away no idea what it is but he's ruled out Ms, the second neuro said it didn't look like Ms at all

Any ideas on what next? I keep having these issues that come and go, some things have gone and not come back but most I still get on different days, some days I feel almost normal but all my issues are pain and tingling burning

No numbness or weakness

Im on lyrica too for anxiety and the pain, any ideas on what to do? I'm lost and IVE tried to ignore it but it's getting the bette of me now

[HVAC]

The hand and foot thing is not MS.

Alex

[kwarendorf]

Krispt -

We are not doctors. We cannot diagnose anything. Please stop symptom shopping and seek professional help.

Kyle

[Krispt]

One more thing
Does the fact that the tingking in my foot and hand come on when I'm in the bath mean anything?
My foot then burns as soon as I sit in the bath, same goes with my hand, it goes back to how it was before it started getting better

[Krispt]

Ps thanks for all the advice

[Krispt]

Hi Kyle Thankyou for your opinion and I know what your saying regarding Ms not being so widespread and thanks for
Taking the time to read my ramblings
Same with you Barb thanks

And Jj thankyou again, you have an amazing way with descriptive words and compassion, for the first time Its kind of sunk in. I hope you are all right and again really appreciate All the answers and insight  regarding this and ocd etc

[bbassel]

I completely agree with kyle! Everyone has been kind to you and truly wishes the best for you! There really is nothing left to say on the matter.

I truly wish you the best and hope you figure everything out but there are no more ways to say what has been stated months ago.

Barb

[kwarendorf]

"Very widespread and almost symmetrical, both legs both arms"

This is not MS. It does not present this way. You need to get MS out of your head and focus on finding out the real cause, anxiety related or not, of your issues.

We are an MS forum, not a general neurology forum. We can only help in matters related to MS, which I do not think applies in your case.

Kyle

[supermum_ms]

Unfortunately, the nature of the health anxiety beast demands attention, usually in cycles and once your in the cycle, it becomes extremely difficult to redirect what only you believe to be true.

You are in the health anxiety loop, numerous medical opinions, repeated diagnostic test evidence, patient opinions, etc are not validating what you believe but your health anxiety mindset will not be reassured by any test evidence, any opinions, any information which challenges or invalidates what you absolutely believe......

You'll keep seeking information and opinions looking for 'anything' to validate your fears and it will be very confusing and frustrating when you don't get the validation your health anxiety demands...........every time you give control over to your health obsession (OCD) by asking opinions, getting more tests, googling information, thinking, self checking etc you keep feeding your health anxiety as it gives your obsessed thoughts what it' needs, your attention!

You know your beliefs about MS are not entirely rational, and you accept your OCD and health anxiety is a factor but whilst you are stuck in this mindset loop you can't believe the truth of what any of us explain about MS. I honestly don't know how any MS community could help you, when they've already tried and tried to explain MS and you still can't get past what you believe......      

Good luck to you, I hope you do get the psychological help you need and you choose to change your tomorrows!
        
Peace..........JJ

[Krispt]

Hi
Ok Ess
It's pointless, I know you are put out by this and I appreciate your help but Its a forum that I'm asling for help' on, I also get how your help is to focus on the anxiety which I have been sorting out and am seeking help but the nhs takes an age, even private takes an age here
It's the lhermittes that worries me the most and if it turns out to be Ms it's such an unusual and fast presentation it's terrifying me

[essdipity]

I could be mistaken on this part, but I thought I read that you have a *history* of health anxiety. Haven't you said as much?

And what you consider snide comments may just be hitting too close for comfort. I'm being real here.

[Krispt]

Hi Ess
Thanks for the reply as always and no I have asked elsewhere and had a similar response, I don't see the need for the snide remarks but that's your prerogative

I hope to god it is a psychogenic cause to all of this but I can't shake the feeling it's not, the lhermittes has moved to foot tingling when i bend my neck which I assume points to some neck lesion or disc issue

But yes I admit I have an anxiety issue but only in response to what has happened as before the lhedmittes barring a stressful life situation I was a very happy man

[essdipity]

Here you are back again, after your being most annoyed by several here, including me, who told you what you didn't want to hear, that it's extremely unlikely you have MS. We also strongly urged you to have your severe health anxiety treated.

Now an appointment for this is coming up next week, but you're not sure with whom? Haven't you been saying that you have a session booked 'soon' for weeks and weeks? Why is this so relatively unimportant? It should be number one on your agenda in my opinion. Given your myriad MS test results, all negative, the probability that you have MS is next to zero. Meanwhile, by your own statements, the probability you have a serious anxiety disorder is 100%. Try opening yourself just to the mere possibility that what you describe has a psychogenic cause. There's no shame in that. And there's a real likelihood that your issues can be relieved.

I have the feeling that when you tried 'other forums' you didn't get much response, whereas here you've gotten many. However, what they've boiled down to are MS mimics (which you've exhausted), and anxiety issues. So try putting more than lip-service into the latter.

ess

[Krispt]

Hi
I've had tests for lymes which came back negative and I'm from the UK and not noticed any bite so I think they consider it unlikely along with the lhermittes pointing away from it
I've had a sore throat when swallowing and in my ear the same since the start thoiugh whether that means anhthing?

Thanks guys

And Jj yeah the anxiety thing has come up and I have an appointment next week I think with a psych lady

I can't help thinking Ms but not showing up but then it all does seem
Very widespread and almost symmetrical, both legs both arms

[supermum_ms]

Apart from Lyrica affecting chemicals in the brain that send pain signals across the nervous system and may not be the right medication for you, did you ever get your health anxiety officially diagnosed by a psychologist or psychiatrist, and if so have you started the treatment that was recommended for you, and if not why not?

Cheers.......JJ  

[aspen2]

There are so many mimics.  There are a number of peripheral nerve diseases that are mimics -- I have a referral to rule these out now.  So .. maybe?  It's all very confusing, isn't it?

[Katya4]

I second the lyme idea. We have a lyme forum here, come check it out.

http://www.medhelp.org/forums/Lyme-Disease/show/148

[HVAC]

Have you tried antibiotics for Lyme?  Have they ruled out Lupus? Other than that I do not know.

Alex