the clumsiness is awkward to get accustomed to - the staggering and falling into walls is even worse! you are right, it is just crazy unless you know what's going on.
PS we're glad you're here too!
Then why can't it be seen in the MRI or by the DR's. I already stagger and fall out in the open and into walls or bump into other people. It is just so frustrating not knowing why.
Thank you so much for your answer.
You stay safe too!
I too hate the knocking things over. Getting things out of the cabinet seems to be the worst. I reach for something and knock it all out. Of course turning your glass over everyday isn't fun either. Come to think of it neither is running into walls, furniture, or the falling down....lol.
I guess we have to learn to live with it and some days are easier than others.
Wishing you the patience and strength you need to get through this.
Thank you! You too. I love bumper cars with people, they just look at me like what is up? But I haven't knocked them down yet. LOL
Patience, strength and a sense of humor for you too, hang in there.
I have always been clumsy, but before dxd, everyone would say that because of my hyper nature, I would look where I was going or what I was looking for. I felt like nobody understood me.
Even though I am still clumsy, now I have something to blame it on. My PCP says that I was born absent minded, I think he is right (we went to school together until we were to college).
Do not feel that you are the only one with these symptoms, a lot of our forum friends will come up to tell you the same thing.
Have a good day,
Thank you, I feel very alone many days. My family calls me "blond" and absented minded. It all hurts to go through then to have others not understand.
I hear you on the human bumper cars. My husband and I went somewhere once recently where we had to do more walking than I usually do and he said I should take my cane. Turns out he wasn't so much worried about me as all the other people I might run into. His reasoning was that if I took the cane not only would I not weave so much, but other people would give me a wider birth and I wouldn't be so likely to knock someone else over ;-)
Actually, the weaving can be dangerous as I also walk fairly slowly so people are always passing me and I sometimes do suddenly veer in unpredictably directions.
Invite your family to search this forum and hopefully they will understand l little about your symptoms.
You can always have all of us as friends and there will be someone to answer your question.
You know what helped me when I was feeling lonely, laughter. If you laugh about some of the crazy things we do due to MS, you would leave feelings of loneliness at bay at least for a little while.
You know we are in th middle of MS Awareness Week for the .National MS Society. I encourage you to check their site and share the information with your family and friends.
Take good care and count on this forum to help you out
I would with my family but they don't even know. Well my husband does he is great. But my sister,brother & father don't know, that they think I might have MS or are testing me for it. They just aren't that interested, or would invest their time. Sad to say.
Thanks Sho, even if you didn't mean to it made me laugh maybe that is why my husband wanted me to have a cane. The cane is not for hitting others? LOL LOL I laugh when the poor rabbits head for the nest box because they can tell I am going to fall in the yard.... what must they think?
Thanks so much!
I was too tempted with my thankfully-now-ex-neuro #1, because I was carrying a cane, and had an urge to teach him a little about neurology.
In the health pages up above, there's a great composition whose title I'm not sure about, but it's something like "What I want my family and friends to know about MS." It was deeply touching, yet highly informative att he same time. Check it out when you get a chance.
I had no idea that was there, THANK YOU. Like my Dad has said about drs they are "practicing" physicians and I have told one once he needed to practice more, but on someone else.....LOL Good thing I didn't have a cane.
You guys are too funny. I use my cane as little as possiable...vanity I guess. But in order to maintain balance I walk with my legs wide apart. It is a wonder ppl don't think I have wet on myself....lol...like you see a little kid walking when his pants are wet :) Maybe I should use my cane more.
No, No you may have a rash...:) It's heat rash....use baby powder. Oh this helps to laugh! We should all walk together. What a MS walk, how far could we go without knocking each other down.?
Hugs to you all...