Hi hon... so nice to see you back online. I've not been on as much as I have been looking and checking online. It really has made my day to see you back here and looking forward to seeing you on here. Take it easy and talk soon
hugs
wobbly
It's so good to see you guys, too and know that you're still here.
Quix
WELCOME BACK!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Mike
Hi Quix,
It's wonderful to see you back on the forum. I've missed your presence and your insightful and compassionate posts (and from all the posts above I can see I'm not alone). I'm sorry to hear about your ankle and ensuing ordeal, but glad for the silver lining of helpful PT.
sho
Hi, Quix:
I am new around here. Was Dx on 5/13/13. Like many I did a lot of research when initially Dx so I could learn all about this disease. In doing so I came across much of your wisdom and words of encouragement to so many and for that I am grateful. It is fantastic to see you back.
Best,
Eric
Hi Quix, I don't really post much but lurk every few weeks.
Sorry to read about your left leg. Surgery, and an infection / reaction on top of what you already deal with? :(
Must be something about left legs...
In July I injured my left leg from a fall trying to get into my car during a huge rainstorm (chipped fibula bone, bruised bone, but no break) and it ended up getting infected, and turned into cellulitis! Which then turned into multiple ronds of antibiotics and multiple doctor follow ups to ensure it was getting better. but I avoided getting admitted.
My ankle is still swelling a bit, and has a weird bruised / bump to it, and itches slightly but I'm doing well :)
(Myeloma is still quiet and in remission, though my blood counts will move around a bit just to remind me it is still there...)
WELCOME HOME!!! We've missed you ,but as others have said your legacy lives on. Cant wait for more Quix tlaes.
So sorry to hear about your ankle but am glad you are ready for Venice Beach!!
Gotta run. Time to leave for Tysabri, dose 25 and still JC negative!! :-)
Welcome back Mama Quix!!
Snoopy dance and ice cream coming your way!!!
Ren
Welcome back!!
I believe your departure coincided with my dx but I have read many of your posts and your knowledge has helped me greatly -
So sorry to hear about your ankle but so glad to hear that you were found quickly and are on the mend!
Tracy
OMG!!! You're backkkkkkkk!!!!! And as usual you tell the best stories I've ever heard, though it all did sound quite painful!!! I am very happy the Trash Guy rescued you!
I've thought of you often and when I lurk I always check to see if you've been on here.
Please take care of yourself, I'm very happy you're back, I've missed your wonderful sense of humor and your big heart!!!
I'll have to start lurking more often...haha
Hugs,
doni
Hello Quix.
I had to look twice to make certain the date on your post was current. We have had several of your older posts pop up with some of our new members asking questions.
You can surely feel the love and concern for you, and our thrill at your return. I agree with Laura that you must not let us fatigue you. Please take time for yourself. Welcome back.
Most sincerely,
Beth
I'm sorry to hear of your ordeal but glad you are doing better now. I'm very new around here but I have been reading so many of your helpful health pages for about a year now. I especially liked the thread about what Neuro's often say which had me laughing so bad I was in tears. I use the MRI translation as a guide also.
You have given your medical knowledge to others by making things understandable but also with great humour & compassion. Thank you for this great gift.
I am in limboland which is not made easy by my already existing medical conditions & that I've been on Rituximab for five & a half years. I have been guided by a lot you have written previously & can only say WELCOME BACK & thank you for all the help you have given me without your knowing.
Take Care.........karryon.
Quix, I'm so glad you're back! I've been coming here for about a year and a half. I have devoured the health pages while in limbo land! Thank you so much for all of your input on this site. It has really helped me to understand what was happening with my body. Unfortunately, I was diagnosed last September so I guess I'm officially part of "the club".
I am so thankful that you are still kicking! No pun intended. I often wondered about you and prayed that you were alright. Your sense of humor has often brightened my day. Welcome back!
Blessings,
Colin
And you all thought I couldn't keep a secret ----
I have been wanting to scream from the rafters that we had a special appearance coming and been waiting for the time to be just right, so here it come ....
Guess what, everybody - Quix says she misses us and is going to come back home to where she belongs!!
Phew! I feel better now that I can share that with all of you!!! :-)
Love you, Quix -it made my night to see you finally found your way home.It's about time but this time around we have to have you promise you will take it easy and not let us wear you down.
~Laura
PS I told you EVERYONE would be excited to see you back...you've been missed even by people who didn't know they were missing you.
Absolutely wonderful to make your acquaintance Quix.
I'm another limbolander and/or a person with an obscure thing that most people have never heard of (including most doctors) - gluten ataxia.
By the way, I think your health pages are priceless!! :-)
Cheers
Poppy
Good to meet you again and thanks for the kind words.
Moki - No, THAT is the most mindless and cruel diagnosis ever given. (Sorry, Johnnybear) "You have an undiagnosable neurologic illness so we need never look at you again. We need not even try to consider your problem and we will remove all hope from you so that you look no further (and possibly prove me wrong)." Unless that guy know all there is to know and has consulted some of the best minds available he is a horse's patoot! It makes me so angry I can't even remain sitting here!
Q
Wow Mama Bear, it's so wonderful to see you on here!!!! I don't post much these days but do pop by to see how everyone is doing and so glad that I did today!!!! To say you have been missed is truly an understatement!!!!
Sounds like you had a rough but interesting year but knowing you, you will have handled it with the toughness and humor that is in you.
I'm declared undiagnosable with the specialist saying he's sure it's in my central nervous system but thinks I have something knew, lucky me. lol He figures it will be years or never for me to find out what it is and no one else will now take me on so that's where I am.
Anyhoo, as another member of O&OA, I'll cut this short but leave saying how happy I am that you are back!!!!!
Moki
Is there a doctor in the house? By golly there is...again, finally. A huge welcome back dear Quixy.
We all think we're experts around here but sadly we're all just full of $hit! You have been sorely missed for your insight and expertise.
Yeah, MS is funny disease until you fall over and break your good ankle. Yikes, I'm sorry to hear that but glad you're on the mend.
So in the words of Austin Powers I think you're shagedelic baby! You're switched on! You're smashing!
Blessings
Alex
Oh, my.....I am overwhelmed by your graciousness and enthusiasm. I would like to respond to each of you individually, but know I won't have the energy at the desk. Please know that you've buoyed my flagging mood.
A little info to answer a couple of questions. I'm still on Tysabri (about 24 months now) and still JC virus negative. A new 6 month check is still pending and I pray it remains absent.
I am definitely continuing PT for increasing strength. As for my balance, I clearly need a new gyroscope. I see walls, door jams and furniture as my moment to moment tools for course correction - like a participant in a great cosmic pin-ball game. Can I call "TILT"!!? Every time I have blown out an ankle it has been from getting into a semi-squat and not having the strength to support it. Kudos for Kwarendorf's journal age on Exercise accountability!
HVAC - Oh, no! The cancer is unfair and you should demand a "Do over".
Dagun - your English is wonderful.
Johnnybear - I feel an addition to Lies My Neuro Told Me coming on. There is NO such thing as non-specific Demyelinating Disease!!!! OMG!! Has this guy never even looked at the Criteria for Diagnosing MS??? Did his squishy little gray thing finally make it to the treeline! Think about it. If you have the signs and symptoms of demyelination - however atypical - and you have ruled out all better causes, THEN the diagnosis IS MS! There is no such fake, cubbyhole diagnosis for use by the neuro who lacks both a brain and a pair of balls. Who thought up such a mindless, witless, gutless excuse for sitting permanently on the Fence. Hmmm, have you seen a Tiddly Winks trophy in his office??
I love lobster......
Thanks again to all of you! I hope I can interact personally with each of you in the coming days.
Quix
Hi Quix, I am another newbie here and have definitely read several posts and pages from you.
I am glad that you have had a well-deserved break and your humour matches mine so bless you for keeping it alive in your posts.
I can't believe your leg! Oh my, thanks to Terry the Trash Guy! Thank goodness he noticed your flailing and waving.
I look forward to getting to know you better.
Corrie
The highlight of my Labor Day weekend! This is no mean feat, given that i have been stuffing lobster into my gob for the las two days!
Your departure preceded my arrival so we have never met. I'm happy to make the accquaintence of the Legendary Quix! Although after reading your tale I think we should call you Job!
We are happy for you to return in whatever capacity you choose :-)
Kyle
Hi Quix-
I am also a newbie and saw your information when googling and lurking. Thank you for taking the time to help more people than you can ever realize.
I choose not to dwell upon MS too much and refrain from unnecessary research as I don't want MS to becoming my life, simply be a part of it. I completely understand your need to take a break and just wanted to simply say THANK YOU.
Best Wishes you've been missed by many and an asset to all!
Best Regards,
Lizzie
I meant to say that you're seriously injured yourself twice with a sideways move. (What is that, laterally?) When I go over it's sideways in the exact same kind of narrow space. I always reach out and grab any wall available, but sometimes there's no wall. How do MS folks avoid that kind of situation? No room for a cane, can't get a chair in there...
I'm so glad to see you here! Alive but not kicking - perhaps flailing weakly. I have been absent from the site for nearly a year, and just today decided to see what this phone would do.
It sounds like you needed a vacation from MS, or at least talking about it. I'm just horrified by the good leg breaking, the allergy to Hibaclens (who has an allergy to Hibaclens?) and the already existing problems making your recovery worse. PT folks seem to think that whatever physical problem you're having can be fixed with determination and exercise. Seems to come with the job.
PT has been good and bad for me. I got some last year for my weak right leg and balance issues. it helped me regain some confidence with my balance. It's been bad in that I now think I have balance. I've fallen over more since I had PT - at least twice where I just toppled like a tree.
The best advice was to raise my right toes. I have to consciously think to do this, but it does work. Sometimes. This last week it's back to folding by surprise. I'm doing great otherwise and have actually reduced or stopped some medications.
Yeah, she's back.............we've missed you...................you bring smiles to our faces just being here!