My name is Vineet. I am 17. Firstly, before anything, I am diagnosed with MS, however what is happening to me at the moment is nothing like it.
In June of 2012, I had MPFL surgery on both of my knees. Before that, between February and March of 2012, I was hospitalized due to an MS attack--I had a significantly big dosage of corticosteroids. Anyway, moving on, due to this, I have never really had any chance to exercise-elevated BP didn't allow me to exercise, and when I was finally given the OK, I did surgery. I was finally given the OK about 3 months ago, and ever since problems have started.
Whenever I exercise, or play sports--anything physical--the night after, some part of me will become numb or tingle. The first day I went out to play, I took soccer free-kicks for about 2 hours to get my kick back. The morning after I woke up with my right foot numb. After about 2 weeks, it went away. What triggered it going away was stretching. HOWEVER, this is not it. A couple of weeks after that, I slowly decided to ignore that numbness and go out again. Again, the same happened, however with something more--my right arm got numb as well. One day later, the right side of my lip got numb, and so did my tongue. These symptoms stayed for about 2 weeks. I stretched out my right leg, however this did not do much, but with eventual stretching, about 90% of the sensation in my right leg came back. One may think it is Uhthoff's Phenomenon however while in, for example, the shower or while taking a hot bath, it actually calmed the numbness at times... I was experimenting with stretching, and by stretching my neck, I regained sensation in my hand. Eventually, my tongue and lips came back too. However, after a week, WITH NO EXERCISING, the numbness came back. This time, stretching did not help much either. But, after 2 weeks, it went away. However, a patch on the right side of my lip and the left side of my tongue are still numb ever since. I did not exercise at all after that. About a month after that, an even more weird thing started happening, again, WITHOUT any triggers. I would start feeling extremely dizzy all of a sudden and I would start to get slurry speech, for about 2-10 seconds at a time. It would usually happen after standing up quickly, or such, and I know that you can get such symptoms if you suddenly stand up but this was different--it would happen some times when I stood up suddenly, however it would also happen if I were, for example, walking quickly or had a suddenly elevated heartbeat, or just woke up. This random dizziness and slurring went away in about 3 weeks.
Now, here are a few things that possibly triggered it to go away: 1) stretching. Stretching definitely solved my right arm's numbness. Literally, by stretching my neck, in a matter of about 5 minutes, I had regained probably about 80% of my right hand's feeling. 2) heat. Whenever I took a hot shower, the numbness reduced immediately, whether it was in my legs, lips, tongue or hand.
Some other things: This numbness was always on the right side of my body, right hand, right leg and right lip. The tongue, however, when it happened was the full tongue, and at the moment solely the left side of my tongue is numb. Now, finally, one more thing--my dad for reason has a hunch that such symptoms always happen for me in the cold, as previous MS attacks for me have been happening during the winter months. An MRI done this week showed an INACTIVE lesion in my cervical spine, and while that would somewhat explain the numbness in my right hand and leg, there was nothing to support the numbness in my tongue or lip. ALSO: THIS NUMBNESS WAS ALWAYS VARIABLE. IT WAS NEVER THE SAME. IT ALWAYS CHANGED. SOMETIMES IT WOULD BE NEXT TO NOTHING WHILE AN HOUR LATER I COULDN'T FEEL ANYTHING.
At the moment, my right lip and left side of my tongue are seemingly permanently numb, while recently (probably two to three days ago), parts of my right leg have started to get numb randomly. If I stretch it during the night, by the morning the numbness is usually gone. The numbness comes when I'm lying down. And, with my tongue, it is quite literally on the left side of my tongue. If you create a line splits my tongue in half, the left side of that line will be numb and the right side won't. Please. Please help me. My neurologist is hell-bent on the idea that this is MS even though he cannot explain the variable numbness, why it is triggered by exercise, why the tongue and lips are numb, etc when there is no lesion on those nerves. I can give you the MRI's if you want them. Please help me. Please.
(I have posted this same question in International Neurology and Neurology however did not receive any reply...Please, I really need help)