Aa
I want to scream!
So after months of waiting I finally got an appt. with my neuro. The first thing he said to me was why are you walking with a cane? I told him because you prescribed it for me due to extreme weakness in my legs, to which he responded what is your diagnosis? I said, you told me it was probable ms. then I got my list out and started telling him all the problems i have been having. He got very angry and told me he was tired of everything being sent to him. like when i told him that i had to go to the er for a very tight chest and a feeling like i couldn't get a deep breaath he said see a cardiologist. when i said i was having bowl issues he said not my concern and so on. During this conversation he said remove your shoes and socks, and then never even looked at them or anything. When i brought up my concern with finding a bio brother with wilson's disease he patted my shoulder and said what other diseases would you like me to put on your list? When I questined him over the strenghth of the mri machine he wanted to know why i was finding infromation on my computer? was i trying do diagnose myself and if i was what did i need him for? I AM SO FRUSTERATED!!! Because I have a medical card finding another nuero is impossible i have even talked to my pc about it. and he said my options were limited. A little back ground on me, optic neuritis ,abnormal vep, positive babinski, abnormal test on legs ( can't remember the name), uthoffs syndrom, tremors in left hand, spasms in legs,back. electric zaps all over body , dizzyness, constipatain, trouble finding the right word to say and so on. What to do? also frontal brain atrophy, lp was normal and no visible lesions on mri
I started seeing Dr. Samuel Hunter from Advanced Neuroscience Institute in Franklin, Tennessee. He is by far the best, renowned, and master of this field. He found out exactly what was wrong with me after performing every test possible and caring. He truly researches your information! I went to doctors for about 20 years and was told a lot of the same things you were told. I have MS and started infusions quickly. He found the frontal lobe epilepsy (I was born with it) along with several other associated issues that are pages long. I have never been so relieved as I am now about diagnosis and being at the right doctor! Good is so good!!
Sorry to hear of your disappointing visit with this Neurologist.
What I hate the most (my Neurologist does this ALL the time) is when I visit him (normally when something is happening -- itching for a month, pain in half my arm, etc) he can't recall anything I've seen him for in past visits (which were only weeks ago or at least a month).
For this Neurologist who hasn't seen you in quite sometime, you'd think before he entered the exam room that he would go over his notes in YOUR chart and look at your chief complaints and what he has done for them. (ie: prescribing you a cane and what his impression or possible diagnosis along with a differential diagnosis).
Right there, that tells me he's not paying attention and lacks organization skills. Not someone I would want, even if my options were minimal with whatever insurance I had.
First thing to do is find who else would accept your type of insurance other that that phuckhead. :D
Good luck to you.
Lisa
What I hate the most (my Neurologist does this ALL the time) is when I visit him (normally when something is happening -- itching for a month, pain in half my arm, etc) he can't recall anything I've seen him for in past visits (which were only weeks ago or at least a month).
For this Neurologist who hasn't seen you in quite sometime, you'd think before he entered the exam room that he would go over his notes in YOUR chart and look at your chief complaints and what he has done for them. (ie: prescribing you a cane and what his impression or possible diagnosis along with a differential diagnosis).
Right there, that tells me he's not paying attention and lacks organization skills. Not someone I would want, even if my options were minimal with whatever insurance I had.
First thing to do is find who else would accept your type of insurance other that that phuckhead. :D
Good luck to you.
Lisa
Oh, I so agree with all the above! All I could think of was JACKA**! Not one thing right about what he did. Next time I will just say what I was thinking. Now I know it won't offend! I would report him for sure.
Hi, my neuro hasn't got a lot of bedside manners. He is blunt and distant and doesn't talk much but he's not overtly rude or insulting. I'm pretty sure my neuro treats all his patients the same whether their illness is physical or psychological, whether they are on pensions or multi millionaires.
Even if this man genuinely thinks that your problem is not physical he needs to address that in a much more caring and supportive way. A year or so ago, I was in hospital and I suddenly couldn't bend my right leg. It just wouldn't move. I panicked, I called the nurse who called my neuro. He came to see me within 15 minutes and examined me. He asked me to bend my leg and I couldn't. He said he had no idea what the problem was and started talking about a new treatment I was going to start. After a few minutes he nodded at my leg. I had bent it!! I was REALLY embarrassed.
He didn't treat me as if I was pretending to have the problem. He just smiled and called me a nut, to this day I don't know why I couldn't bend it, but my neuro didn't get cranky or accusatory. They have to realize that sometimes the mind does whacky things to your body and you have little control over them. This doesn't mean that you don't have a physical illness, but sometimes the stress of not knowing can cause physical problems as well.
What I'm trying to say is, your doctor is a bas***d.
Regards
Even if this man genuinely thinks that your problem is not physical he needs to address that in a much more caring and supportive way. A year or so ago, I was in hospital and I suddenly couldn't bend my right leg. It just wouldn't move. I panicked, I called the nurse who called my neuro. He came to see me within 15 minutes and examined me. He asked me to bend my leg and I couldn't. He said he had no idea what the problem was and started talking about a new treatment I was going to start. After a few minutes he nodded at my leg. I had bent it!! I was REALLY embarrassed.
He didn't treat me as if I was pretending to have the problem. He just smiled and called me a nut, to this day I don't know why I couldn't bend it, but my neuro didn't get cranky or accusatory. They have to realize that sometimes the mind does whacky things to your body and you have little control over them. This doesn't mean that you don't have a physical illness, but sometimes the stress of not knowing can cause physical problems as well.
What I'm trying to say is, your doctor is a bas***d.
Regards
I agree with everyone but if you have to see this jerk again definitely take someone with you, he wont dare treat you like that with a witness. If you cant bring someone, ask to have a nurse or assistant present. A good friend had a similar experience with an orthopedic doc thru workman's comp. After he complained he had someone come with him from the insurance and the doctor acted a lot different. I am not sure that he wont revert to his nastiness at following visits though.... Good luck, there has to be a better option for you.
What they all said plus more - get moving on finding a new doctor. You have enough to deal with without having a jerk for a doc.
Keep us posted and let us know if you need another push to get you moving~!!!
best, L
Keep us posted and let us know if you need another push to get you moving~!!!
best, L
I was gonna add much of what doublevision just did... lacking bedside manners is one thing, but this guy is an arrogant jerk... I know many neuros have a serious god syndrome - my first neuro was that way. His name was Jackel, I called him Dr. Jacka$$.... but your doctor makes him look like a prince!!
You mentioned having a medical card... can you explain? Is that a government program like medicare? Call them, there has to be another doctor you can see. This guy is just not the right person, you're looking for answers and help not to be treated like a bad child.
I am so sorry you're dealing with a neuro like this.... Please please please look into options, you deserve a doctor who will be compassionate and care about how you're doing and to find answers for you! Not this weenie head who complains about being informed how HIS patient is doing!!!
Good luck and keep posting. Hope you find someone new quickly!
Jen
no no no, this isn't just a problem with bedside manners. I'd say my neuro doesn't have strong bedside manners because he's quite formal and stiff, calls me Ms. not by my first name, is very robotic in his speech and manners. But he's smart and knoweldgeable, not pompous and doesn't challenge me or make accusations and isn't threatened when I educate myself. Your guy is a blatant a$$hole - sorry guys, but he IS! Yes definitely report him to whomever is the highest authority in his practice. Document what he said to you, verbatim, in quotes, if you can remember his words exactly or very close. He's more than unprofessional; that conduct is inexcusable for a physician.
The issues you described with deep breathing and the bowel difficulty absolutely may be neurological. Maybe not, but it's not ethical for him to just ignore thesed things. You may have to go through some hoops to rule other causes out which is fine, but the way he responded is not fine.
What a condescending idiot. If there is ANY way you can see another neuro, do it no matter what it takes. Get on the phone and start looking; hopefully you have support if it would require travel. I drive nearly 5 hours to see my neuro, because I have no choice, he's the closest one. Thankfully he's at a very good university hospital clinic. If you can get to someplace similar this would be a much better option that what you are presently dealing with. Good luck.
ps: if you ever do need to see this jerk again, bring someone with you.
The issues you described with deep breathing and the bowel difficulty absolutely may be neurological. Maybe not, but it's not ethical for him to just ignore thesed things. You may have to go through some hoops to rule other causes out which is fine, but the way he responded is not fine.
What a condescending idiot. If there is ANY way you can see another neuro, do it no matter what it takes. Get on the phone and start looking; hopefully you have support if it would require travel. I drive nearly 5 hours to see my neuro, because I have no choice, he's the closest one. Thankfully he's at a very good university hospital clinic. If you can get to someplace similar this would be a much better option that what you are presently dealing with. Good luck.
ps: if you ever do need to see this jerk again, bring someone with you.
don't give up girl, I drove 465 miles one way to find my "wonderful" neuro
and waited about 33 years to get a Dx. It was some frustrating years and meeting some idiot neuro's along the way. Finally getting some DMD meds next week!
hang in there and get pro-active!
keep us posted
and waited about 33 years to get a Dx. It was some frustrating years and meeting some idiot neuro's along the way. Finally getting some DMD meds next week!
hang in there and get pro-active!
keep us posted
What a butthead! He had no reason to talk to you like that! I would report him to higher up in his practice.
He has no reason to dismiss you like that and has no right to talk to you like that! I understand it is hard to find neuros when you have a medical card. They are hard to find and when you find one the other ones that take the insurance are in the same practice and won't see you because you are an established patient of his. I went through this too.
My neuro finally turned around, however he never talked to me the way yours did or I would have had to put him in his place...that is just the kind of person I am.
Is there a bigger University hospital around you that may accept your medical card? If not you may have to find someone who is a bit further away. I was looking into a docotor a lot farther than my current neuro but my nuero finally turned around and started doing things for me.
I love my neuro now, he did a complete turn around after running more tests on me and me not letting up.
I really hope you can find someone else, call neuros that are not close to you to see if you can get in. I know it stinks to drive 2 to 3 hours for an appointment but sometimes it is necessary to get the care you deserve.
Good luck,
Paula
He has no reason to dismiss you like that and has no right to talk to you like that! I understand it is hard to find neuros when you have a medical card. They are hard to find and when you find one the other ones that take the insurance are in the same practice and won't see you because you are an established patient of his. I went through this too.
My neuro finally turned around, however he never talked to me the way yours did or I would have had to put him in his place...that is just the kind of person I am.
Is there a bigger University hospital around you that may accept your medical card? If not you may have to find someone who is a bit further away. I was looking into a docotor a lot farther than my current neuro but my nuero finally turned around and started doing things for me.
I love my neuro now, he did a complete turn around after running more tests on me and me not letting up.
I really hope you can find someone else, call neuros that are not close to you to see if you can get in. I know it stinks to drive 2 to 3 hours for an appointment but sometimes it is necessary to get the care you deserve.
Good luck,
Paula
I am so sorry! What a horrible experience. The first thing I would do is get another dr.! There are other dr's that will listen and look. There are just some that need a "bedside manners" class. Get to someone that will help you. Goodluck!
Your frustration sounds very understandable. It ***** you're going through all this. I'd be looking for a new doctor. You deserve compassionate care. There are good doctors out there, and I wish you luck finding one who can help.
- Jane
- Jane
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