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199882 tn?1310184542

Illeovesicostomy and Sling Surgery

On the 15th of February I had an Ileovesicostomy and a sling done.  This was an extremely hard and very painful surgery.  I just had my staples removed yesterday and for the first time since having the surgery I can stand up straight finally.

The surgery consisted of the surgeon having to take a section of my small intestine, cutting my bladder in half, stitch the intestine into the bladder, closing the bladder back up, attaching the other end of the small intestine to a port on the right side even with my belly button, which attaches to a urostomy bag.

Trust me it is as bad as it sounds.  My surgery took about 5 1/2 hours and I had a 7 day stay in the hospital.   This is also a very bloody surgery and will sometimes cause you to have to have blood transfusions.

He also did a sling under my bladder.  Now for the bad part.  After going through all of this there is still very little urine going into my bag and I'm leaking almost constantly through the urethra.  He said this may stop on it's own but if it doesn't they will have to go back in and completely close off the urethra from the bladder.

I really wish they would have done this while they where in there and I'm still not sure why he didn't.  I'm pretty down in the dumps about this right now and am unsure of what I want to do.  The thought of them opening me back up terrifies me to death.

I go back to my doctor in 4 weeks and I guess we will decide then on what to do.  All I can really say it make sure this is very necessary before proceeding onward.  Also, make sure they do everything while there in there the first time so you don't have to make the decision of having to be opened back up.

I'm not meaning to scare you and I don't even know if this is the same type of surgery you are talking about, but just be careful and make sure you have a second and maybe a third opinion.

I'll be praying,
Carol

P.S. I had posted this on slightly brokens question but I wanted to see what you all thought about it and to see if maybe you had any suggestions.
12 Responses
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279234 tn?1363105249
I'm so sorry that you are going through this. My hope is that maybe, your not quite done healing yet from the surgery, and that maybe, after a few more weeks of healing, things will return to what they should be.

I know that when my sister just had the sling surgery done, the recovery period was 6-8 weeks, but the full recovery (her being able to urinate completely normal) did not happen until she was 3 months post op. Her doctor had the sling surgery as well, and told her this.

Either way, it seems your doctors should have informed you of everything, and it does seem that they did not. With you, just having the 2 surgeries, I know it must have been rough on your body. I hope that you will fully recover from this and everything will return to normal, without further surgeries.

The surgery that I'm considering, isn't quite like yours. I will get a sling too, but they want to anchor the sling to my spine, for more support. I have a prolapse bladder that fell down in December. I do have a spastic bladder as well. I'm not sure what they will recommend for this.

Again, I hope you just need more time to heal, rather than the surgery not working like it should.
Take Care & Please keep us informed of the situation.
Helpful - 0
1142230 tn?1268675666
So, so sorry to hear about your horrendous experience.  Very disheartening to go through so much like that and then find out they need to do more.  Try to rest and heal from the first surgery as much as possible and maybe you'll feel a little better while waiting to hear what they need to do next.  Sounds like you've had a tough road.  I'll keep you in my prayers for a good outcome in the end.  

Wendy
Helpful - 0
297366 tn?1215813051
I'm so sorry for your situation. I am praying right now for your good recovery and healing. I pray that you'll not need additional surgery, or that if you must have it, that your doctor will be highly skilled and your recovery quick and easy.

Stay strong--you're in our hearts!

Lisa
Helpful - 0
198419 tn?1360242356
Granny Carol,

Maybe it will hold and you won't have to go back in! That's what I'll pray for. Stay on with us while you are getting the blues - and get something to help. You deserve to feel good or at least ok.

We love you much,
Shell
Helpful - 0
Avatar universal
I'm so sorry that operation was such an ordeal. I don't think they leveled with you about that beforehand, did they? For myself, I've had several doctors say 'discomfort' when the truth was 'agony.' It's better to know what to expect than to be blind-sided.

I really hope you won't need further surgery, but if you do, absolutely insist on laparoscopy if it's at all feasible.

And if you feel you're getting depressed, that's totally understandable. Just don't wait for it to overwhelm you before seeking help. Also, the stress of the surgery could be exacerbating your MS.

Please take care of Carol. We'll continue to send you warm wishes, hugs, and virtual ice cream galore.

ess

Helpful - 0
Avatar universal
How awful. God will see you through what needs to be done. I'll just pray He heals you on His own, and doesn't rely on the surgeons' intervention.

Hugs & Prayers
Maggie
Helpful - 0
Avatar universal
I am sending up prayers for Jesus to guide you thru this tough time and to heal you!
Kristi
Helpful - 0
572651 tn?1530999357
Dear Carol,  this is a horribly traumatic experience for your body.  I sure hope that the next week or so will get everything working correctly and you don't have a need for a second surgery.

If you think depression is about to descend on your house, please talk to your doctor.  I know you're a strong woman but please don't try to tough this out on your own.

lots of hugs,
Lulu
Helpful - 0
648910 tn?1290663083
Carol your portrayal sounds truly horrible and something I would not want to experience.  

I will keep you in my thought and prayers.  I hope it does not come to having to go back for more suregery and that you begin to heal and progress quickly.

I wish I had some words of wisdom but this is not within my experiences.  

Take care, terry
Helpful - 0
199882 tn?1310184542
Thanks ya'll the prayers I will definetely take. I just feel like a big depression is fixing to hit me like a boulder.  I really don't think I can go through another surgery.  Maybe if it's arthroscopic I could do it but no way with the big incision again.

I'll be praying,
Carol
Helpful - 0
1207048 tn?1282174304
Carol,

I'm sorry you are having to go through all this. I'll be praying that everything clears up on it's own. ((hugs)) and healing thoughts.

~Jess
Helpful - 0
667078 tn?1316000935
Carol.
  I am so sorry you have to go through any of this. I have no wisdom. I just care deeply.

Alex
Helpful - 0
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