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773646 tn?1239225659

Lhermitte's what it feels like

Hi everyone !  I haven't posted in a while but I do have a Question about L hermitte's and what it feels like.

My first experience with Lhermitte's was two years ago . I was being treated for a herniated disc in C-5 but I was nearing the end of a workers comp thing and was sent to nuero 's from both sides for final assessments on whatever permanent damage I had suffered from that injury.  I think my first L hermitte's happened when i sort bent my knees and head to unplug my vacuum I got a shock from my neck down to my feet painful and just like an electrical shock!
I was so surprised ! I thought I touched the plug or something and got an actual shock .  But it happened again quite a few times (and not while pulling out plugs just by bending my neck down while i was doing general stuff) and enough for me to bring it up to the two neuros I saw . They both told me it had to do with the disc and I
accepted that.  It went away and i didn't think much about it.

When I went back to work (desk job) I did hours of data entry type stuff and I noticed keeping my head bent looking at the comp. I was getting an annoying buzzing running into my right shoulder. I'd change position and it would stop but it was weird and would come back as I worked and I'd move around get it to go away and so on . This was not a painful shock just a buzzing feeling . I also had a lot pain in my neck while this was going on. I just thought its the disc I'm gonna have to deal with it

Well it went away for a while I was able to work without it and it was great. Well now its back but it runs down my spine . Its not the shock just the annoying buzzing . IT's like a cell phone buzzing running down my spine This happens when I hunch over ,work on the comp and now even when I'm walking around. I ignore it like  I've learned to ignore a lot of the weird stuff Ive been going through lately. Now I know this is brought up a lot but I was wondering if these sensations are  Lhermitte's or just left over stuff from hurting my neck?
    
I did have an mri on my cervical spine about 6 months back . It shows the herniation but says it's not encroaching on my nerves anymore.  Anyone who goes through Lhermitte's Dose this sound like it or is just something I have to deal with from the neck injury? Is it worth it to bring it up to the neuro? A friend of mine with MS says it happens when your standing and bend your head down.
That's not really how it is for me. I cant intentionally cause it just seems to show up. I can stop it by straightening up my posture.
    any thoughts opinions would be appreciated
     Thanks Karen
19 Responses
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Avatar universal
Hi, how are you now many years after your post? Is your Lhermitte's gone? Was it due to ms?
Helpful - 0
152264 tn?1280354657
Hi Karen. Sounds like it could be hard to sort out the injury issues from anything else that might be going on, but dizziness and blurred vision would not be from a problem with the spine. Actually, there is something called "cervical vertigo," but certainly blurred vision wouldn't be related.

I've "procrastinated" on going to another doctor for 6 years (don't want to hear again that I'm a hypochondriac or have "benign paresthesias"), but then my symptoms have been fairly mild and manageable.

Best of luck to you in getting it all sorted out. Certainly getting a repeat brain MRI is standard and something you should definitely do, especially since your first MRI was not clear. Hope you have a better week next week. :)

Nancy
Helpful - 0
864831 tn?1243618672

Lhermitte's what it feels like.... When it happens to me it really doesn't hurt It's a electrical shock that will start from the base of my head down to me feet .
I would actually bend my head down just to feel it sometimes.
I do have very bad back pain so that might be why it doesn't bother me as much .
Helpful - 0
773646 tn?1239225659
Hi Nancy,

   I'm a new limbolander and to make a long story short I had a seizure like episode that sent to the emergency room. They thought i had a small stroke recommended and mri.
There were multiple leisions indicative of ms in a person of my age (43) My pcp recommended the neuro office from mars and here I am.
I passed all the blood tests for ms mimics and had a clear lumbar puncture. So Im gathering up all my test results and looking for a nuerologist with whom I'll feel comfortable with and or get into my local ms clinic. In april I should be six months from my original episode and The nuero from mars wants an mri with contrast to see if anything changed. I doubt Ill ever go back to him.
I have  this issue with the cervical spine so Ive lived with pain and numbness and felt it was caused by that.
When My PCP told me about the white matter lesions on the mri I looked up MS and read the symptoms and said to myself aw [email protected] .
   I have quite a lot of the symptoms of ms and have had them for a while. Not knowing what they were I blamed it on age my neck the rain anything and just kept on going.
  My pcp is wonderful and when I get sick of being in pain will prescribe something for me. I try not to do that often and mostly take a lot of aspirin.
It's getting harder to ignore now that my right leg is starting to turn against me now.
Im dragging it around more and more now and I have a weird numb patch above my knee and an embarrassing shaky right hand. (my whole right side has turned against me)
I have some of the embarrassing symptoms which I have brought up to no doctor like constant constipation being unable to completely empty my bladder or sometimes running to the bathroom like an olympic event to holding the record for not going at all. And loss of sexual  feeling (men get viagra women get add lubrication Thats not helping if I dont feel anything down there.) sorry if thats too graphic but Id like to see a discussion on that.
I have my Lhermitte's which dose move around . Numbness tingleing . this crazy itching. terrible dizziness and blurred vision and so much more!!!!
  As Quixx posted to me once I have a right to feel like alice in wonderland (i love her posts ) and I do.
I'm trying to be open minded about the whole thing .Even if I was diagnosed with MS Im not sure I'd take the dmd's anyway.
I do know somethings not right with me and Im procrastinating going to another doctor and hearing Its stress or depression
Well my short story got long but maybe I needed a vent . I had a bad week but it feels good to have a place to ask questions or just complain .
Thanks for the info.
Karen
Helpful - 0
152264 tn?1280354657
You asked, "What is the medical term for your rear end anyway? "

My guess would be buttocks or, focusing on the muscles, gluteus maximus; but "fundament" is a great word too (I admit, I looked in the thesaurus!).

And don't forget (less medically speaking) derriere, seat, behind, rump, hindquarters, duff, tush, and other words that would likely get bleeped.

Any way you say it, it's a WEIRD place to get Lhermitte's (as I know from personal experience).

None of which answers your question, which had to do with (I think) the cause of your Lhermitte's. Spine problems other than MS certainly can cause Lhermitte's, and I would guess that there's not much difference in how it manifests.

However, the spine doctor that I saw said that if my Lhermitte's were due to a problem with the spine itself, such as a pinched nerve, it would stay in one place instead of occurring in different places, as mine does.

Perhaps your Lhermitte's IS still due to the disc problem--who knows. But I think you should definitely bring it up with your neuro and let him/her know what is going on with it.

Have you been diagnosed with MS, or do you have other symptoms?

Nancy



Helpful - 0
1 Comments
Hi, how are you now many years after your post? Is your Lhermitte's gone? Was it due to ms?
773646 tn?1239225659
What is the medical term for your rear end anyway?
Helpful - 0
773646 tn?1239225659
I found this sensation unpleasant and I guess painful but i have so many painful things going on this is a minor annoyance, It is good to know its not like a text book sort of this must be a shock from bending your head straight down to your toes etc,  I think Its a flare thing as I get relief from it for weeks at a time and then along with heavy stress and other symptoms it comes back.
Helpful - 0
620877 tn?1282764097
This is a great thread - I have wondered too about the sharp, quick almost lightning like pain I have had that goes from the left side of my ribs to my right side.  It has only happened a couple of times & I don't know if I moved my head prior to it or not, so I haven't ever been sure if this is L'Hermittes.

Do you all experience this everytime you bend your head?  Or is it when you are in a flare?

Chrisy
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Avatar universal
Well I will be ****** This forum is more educational that I ever imagined.  Nope Keister is not an Aussie word...lol, I am not a New Zealander but I don't take offence, we are close and I live where there are lots of sheep...lol, but I can say six without it sounding like sex....lol

Cheers,
Udkas
Helpful - 0
198419 tn?1360242356
You know....the rear
Helpful - 0
198419 tn?1360242356
LOL! Swallow!

So, not dumb, it's keister, hiney, bum, butt, stoop, fanny, gludous maximus (I know I spelled that one wrong)!

You are funny, but it's right in the middle of THAT! yikes!
Helpful - 0
359574 tn?1328360424
Excuse me, you're Australian.  I'm sorry.  That's probably one of those unpardonable faux paux.  Please forgive.
Helpful - 0
233622 tn?1279334905
I am so glad you all answered this.  I have gotten the shock before but now I get a buzz in my back side that runs down my legs and causes weakness.

LA dx 2008
Helpful - 0
359574 tn?1328360424
Maybe you New Zealanders call it a bum?  Keisters are also known as posteriors, bottoms, rear ends, and booties around here.
Helpful - 0
Avatar universal
Well I'll be,,,,, the whole time I have been on this forum I have thought your sign in name was swallow and well something in my brain has clicked today and realised that it's not. Opps.

It's interesting that everyone's sensation is different but just as painful.  I don't actually get my sensation in my neck as I stated, it goes down thru my spinal cord quickly but into my legs and sometimes my arms but is caused by the flexing of my neck.  

Where's your keister or more the point what is it? Sorry if that's a dumb question.

Cheers,
Udkas.
Helpful - 0
378497 tn?1232143585
Mine buzz me in the backs of my legs and my heels primarily. And bending my neck down even slightly will trigger it. I don't get any kind of radiating zaps down my back, but for a couple of weeks, I had a deep buzz in my lower thoracic when I bent my neck, like someone had buried a pager waaaay down in there somewhere. It was really disconcerting, and I actually tried not to bend my neck so I could avoid the sensation.

Bio
Helpful - 0
198419 tn?1360242356
Duh, uh, I meant they are "UNpleasant" they rot, they;'re wack! ha/ha What the heck is "u" pleasant anyway!
Helpful - 0
198419 tn?1360242356
I do think the sensations and happens vary greatly.

What happens to me, is when I put my head down to look at something, etc. I get a buzzing in my tailbone.  No sensations down my back.  Just smack in the middle of my keister. It fluctuates and sometimes it's better than other times.  i.e., I feel numbing sensations in my legs and weird sensation in my keister when my head goes down.

I avoid putting my head down altogether, the happenings are just "upleasant" to say the least.

Helpful - 0
1 Comments
Hi, how are you now many years after your post? Is your Lhermitte's gone? Was it due to ms?
Avatar universal
I get Lhermettes and it drives me insane but I don't have it all the time.  The last time I had it I was in a meeting and every time I went to tilt my head down to write on the paper after looking up at the screen I would get like a super fast zap, like almost an electric zap that radiated down my spine from my neck but it went also into my legs and arms, very painful, put me in mind of touching an electric fence but only lasts seconds.  That day i also made a zillion trips to the loo and then got embarrased about the whole thing, it was like do I wet myself or do I get up and go yet again...

That's what it feels like for me, I don't have it often but when I do it is caused by bending my head/neck forward.

Cheers,
Udkas.
Not sure if everyone's is different.
Helpful - 0
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