Loss of appetite?

[joomka]

hello friends! its been a while and now am back. My MS diagnosis has now been confirmed (as it was a "maybe" for the last few months) and now going on the Pretnisone dose (the super booster course of 1250 mg for five days). Will start that tomorrow. However I have noticed that i am extremely exhausted by the afternoon. Usually I can truck on for the entire day of meetings. But today I've had two meetings, and two con/calls and am absolutely spent by 2pm today.  Also anyone have sudden loss of appetite? I love food and honestly can't even think of having a meal. Right now forcing myself with chopped veggies and hummus to get me through the day but one/two servings is enough. Can't attribute to loss of appetite to drugs (only taking Lyrica right now) so just wanted to ask. Is this something that others are also experiencing in relation to MS overall?

[yorkieville]

I'm sorry that you have also lost your appetite. Rebif actually improved my appetite, but, I cannot digest much.

I agree, I would love to enjoy eating again.

[PhyllisPerry]

Yes, this is my reality. I have lost 50 pounds in the last year and I started losing before I went on meds (Rebif). The weight loss isn't a big problem in and of itself (yet), but I would give just about anything to be able to enjoy food again. My theory of the cause of this loss of appetite is a loss of some sensation in the tongue. Fingers are numb, toes are numb, tongue is numb, too.

[yorkieville]

Many years ago, one of my Neuro's prescribed Elavil. I developed an intense sugar craving, and gained 10#s.

I mentioned the weight gain to my then, GP, and he laughed and said, "it's the Elavil".

Well, I didn't find it so funny, and I disposed of the Elavil.

I empathize with the way you feel....I wish being underweight was my only problem. (:

[Needhelp16]

My pcp said 2 of the meds I quit taking can cause weight gain.  She's thinking that the weight I'm losing is just the weight that the meds prohibited from losing.  Those were amitriptyline and trazadone.

Last November I had my wedding rings resized because they no longer fit.  They were too small.  Now, they're way too big!  lol...I wish this was the only problem I had to complain about, but at least it's not horrific!

[yorkieville]

Hi, Laura.

I stopped taking UltramER a few months ago, and I noticed my appetite improved to some degree.

I'm glad your appetite is slowly returning.

It may take awhile, but hopefully it will return completely.

Your weight loss, may continue, until you are eating well, again.

Good Luck!

Sheila

[Needhelp16]

I've recently come off of 4 different meds.  Since then my appetite has increased. It's not where it use to be, but better than 1 yr of only eating 1 small meal a day.

Even though my appetite is slowly bouncing back, I am still losing weight without trying.  Fortunately it's weight that needs to be lost anyway!  :)

Laura